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  1. Replies
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    Hi, the first time this happened to me , I was so...

    Hi, the first time this happened to me , I was so scared. It felt like I just woke up behind a wheel and I didn't know where I was, and where I was going. thank god it lasted only about 30-45 seconds...
  2. an update and a question about Medical marijuana

    Hi Friends,
    I haven't been on here for couple of weeks. Just wanted to update you about my MRI results, for those who remember. I was send for an MRI because of migranes I have been suffering...
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    Hi, I'm originally from Vancouver, BC and have...

    Hi,
    I'm originally from Vancouver, BC and have moved to Stoney Creek, Ontario last year (toronto are).
    Nice to meet you :)
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    Thanks, for all the information. This is very...

    Thanks, for all the information. This is very helpfull. I was just about to post a thread about tingling and burning in legs and feet myself.
    thanks everyone :)
  5. Thread: Sore throat

    by Twinmama
    Replies
    18
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    3,033

    Hello friends, I thing that the meds helped me,...

    Hello friends,
    I thing that the meds helped me, howevere I still have a sore throat all the time. I got used to it over the month :). I tried to get off Prednisone, but that didn't work out. I only...
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    Hi Robyn, I agree with the ladies. I have had...

    Hi Robyn,
    I agree with the ladies. I have had Ulcerative Colitis before Lupus. almost 11 years now. this sounds definitely like an IBD. all they need to do is take a sample of your bowel to find...
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    Hi everyone, . pain is there everyday, worse at...

    Hi everyone, . pain is there everyday, worse at night. as you all know! does the pain EVER go away? EVER??? I went down with my prednisone dose , and pain is definitely worse . will it get better?...
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    Thank you everyone. The date is May/23

    Thank you everyone. The date is May/23
  9. Replies
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    I have my MRI scheduled for this month. I'll keep...

    I have my MRI scheduled for this month. I'll keep you posted :)
  10. Replies
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    2,598

    the main one would be my ongoing migraines and...

    the main one would be my ongoing migraines and the fact that NOTHING helps the pain not even Maxalt RPD . It's been going on for 7 months. I have regular headaches 5 days a week and migrane 3 times a...
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    Thank you Rob. You're absolutely right. I have...

    Thank you Rob. You're absolutely right. I have been to lot's of sun destination in my lifetime. the maritimes sounds like something we could do soon! also I've never been to NY since |I moved to the...
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    lupus in brain?

    hello everyone ,
    my Rheumy is sending me for MRI because he things" Lupus is in my brain" his words.
    If there is Lupus in my brain like he says, what do they do about it? give me stronger...
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    thanks for you reply's . I used to love the sun,...

    thanks for you reply's . I used to love the sun, I even moved to California because of it. Now I don't know where I'm gonna spend my (late)honeymoon or if we'll go for a family vacation to Mexico...
  14. Hi, I have taken Ranitidine before and it worked...

    Hi, I have taken Ranitidine before and it worked great for me. My son had to be put on this medication when he was 5 years old(liquid form) and it worked like magic for him. I have nothing , but good...
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    what do WE do in summer??

    Hello friends,
    this is gonna be my first summer with Lupus. what do we do in summer? the sun has been in and out now(mostly hiding which was good for me). but when the sun comes out for the summer,...
  16. Thread: Cheek Pain???

    by Twinmama
    Replies
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    8,309

    Hi Mary, I have a facial pain all the time. but...

    Hi Mary,
    I have a facial pain all the time. but it's not only in cheeks. so I don't know if it's the same or not. and I don't have sjorgens. I have the jaw pain, forhead, cheeks, around eyes etc. ...
  17. Thread: Sore throat

    by Twinmama
    Replies
    18
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    3,033

    Wow so many things that could be wrong :( ....

    Wow so many things that could be wrong :( . Anyways , I wanted you inform you that I still have a sore throat,BUT it's not as severe as it became (felt like strep or angina) and my white disgusting...
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    Sticky: hahaha. I've done that before also in BC. I'm...

    hahaha. I've done that before also in BC. I'm from Vancouver , live on the east now.
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    I lied ! The pain is NOT gone! Was just having an...

    I lied ! The pain is NOT gone! Was just having an ok day yesterday :(
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    Doing OK. went for more bloodtests . have red...

    Doing OK. went for more bloodtests . have red spots all over my body. not rash. just spots. have no idea what it is? Dr. is sending me for MRI cause of my migraines. no meds work whn I get them, and...
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    Thanks bunny, I will look into that book! That is...

    Thanks bunny, I will look into that book! That is if I won't fall asleep before I finish the first page. I tend to do that with any book. lol
    I found support group in my area. they have a group...
  22. Thread: Sore throat

    by Twinmama
    Replies
    18
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    3,033

    I have had a sore throat for about 4 months. some...

    I have had a sore throat for about 4 months. some days it felt better others I can't even swallow. I don't smoke. I don't have a cold. it feels just like strep throat. very uncomfortable ALL the...
  23. Thread: Sore throat

    by Twinmama
    Replies
    18
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    3,033

    Hi, thank you. I went to the Dr. today. didn't...

    Hi,
    thank you. I went to the Dr. today. didn't say anything about Thrush...and he suggested that it's probably thrush. So I got some meds for it. and I hope it will work.
    I'll let you know!...
  24. Thread: Sore throat

    by Twinmama
    Replies
    18
    Views
    3,033

    Sore throat

    Hi,
    does anyone suffer from severe sore throat? How do you deal with it? I have had sore throat for about 4 months now. some days are ok, some days are severe. my tongue is disgustingly white all...
  25. Thread: Frustrated

    by Twinmama
    Replies
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    839

    Hi flower 21, how are you feeling today? today...

    Hi flower 21,
    how are you feeling today? today is my first day lowering my prednisone dose. I also have been feeling very scared of whats coming. the last few days have been painful already, and...
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