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  1. I am discouaged and need some encouragement

    :( I am having a crappy day today. First of all, my legs are in so much pain. The dr's can't figure out why I am having problems walking. My pcp seems to believe it's the Lupus and My Rheumy seems...
  2. Thread: Faith

    by sisterloudjoy38
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    Faith

    I am trying to hold up my faith. It's been hard for me. I need some encouragement
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    White blood count

    Thanks for the good information. I did talk with my dr and he said I am doing better. The Lupus is stabilizing. My white blood count is normally at 2.5 and the decrease would be beneficial. So,...
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    Question about white blood count

    My dr. called me this morning. He stated that my white blood count was down and that he wanted me to decrease my cellcept from 4 per day to 3 per day. Is that good?
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    Cellcept

    I can't express the importance of taking this type of medicine on an empty stomach. I asked my rheumotologist should I snack or eat during taking this medicine and he said you would not get the full...
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    Cellcept

    Take it. Don't be afraid. While you are taking it say a short prayer of healing. I have been on cellcept for a year. I no side affects from this med. I take 500 mg 4 times daily. It has helped...
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    Cellcept reponse

    I have been on cellcept now for about 1 year. Since then, I have not had any flares. I may have gotten a slight swell here and there but nothing serious. I take 500 mg 4 times daily. I was going...
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    Cellcept

    Well, it's been August since my last appt with the nephrologist. He said my kidneys are doing great..nearly normal now. I urinate more frequently with the cellcept. I am blessed. Next appt is...
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    Cellcept

    Cellcept is working out great for me. I normally eat snack after my 5:00 dinner. I make sure that I don't eat anything between 7:00 pm and 9:00 pm. 9:00 pm is when I take the cellcept. Then eat...
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    Diagnosis

    :roll: I am so glad that you have a diagnosis. I remember last year around June I got sick. I had pneumonia, anemic, fluid around my heart, protein in my kidney, couldn't walk, fingers paining and...
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    Reply

    I know what you mean. I have throbbing feet pain and stiffness all the time. I went to my Dr. today and she said that the pain is due to the Lupus. I ask her does Lupus patients have stiffness and...
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    I talked to my Dr. today and he recommend that I...

    I talked to my Dr. today and he recommend that I have no snack while taking cellcept. He said it is most effective on an empty stomach. I normally eat dinner around 4:30 or 5:00 and try not to eat...
  13. Anyone know of a support group, Rochester, NY

    anyone know of several support groups for lupus in rochester, ny. I need to get a list of more than one. If you do please pass them on to me.
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    :wink: I normally take 2 in the morning. An hour...

    :wink: I normally take 2 in the morning. An hour before breakfast. Then eat around 8:00 in the morning because I hve to take my predisone with something to eat. Then I eat Lunch at 12;00 noon,...
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    I agree. I have been taken it for about 9 months...

    I agree. I have been taken it for about 9 months now. I hated to take it on an empty stomach. I have found out that it is more effective on an empty stomach. I take two 7:00 am in the morning,...
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    SPOONS

    Silfana, I want you to know that this post is the best post I have read. I appreciate the article on "spoons." I never knew the meaning or the importantce of spoons. I was diagnosed with Lupus in...
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    Thanks for sharing that with me. I noticed that...

    Thanks for sharing that with me. I noticed that the reflux isn't so bad after taking my cellcept after slowly lying back down.
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    I feel a lot better this morning. I took my...

    I feel a lot better this morning. I took my cellcept this morning. I didn't have no problem at all. My friend told me to get up slowly and sit on the edge of the bed before I take my medicine and...
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    Have you thought about seeing a rheumotologist? ...

    Have you thought about seeing a rheumotologist? That might be a good suggestion. You have to have quite of few syptoms going on the be sure that you do have lupus. Try to find a good rheumy.
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    Margo that's good advice. I was feeling like...

    Margo that's good advice. I was feeling like crap today. I had a dizzy spell that was out of this world. I decided to go to walmart and to the grocery store and I began to feel better. I am still...
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    Just replying back about cellcept. I have been...

    Just replying back about cellcept. I have been on cellcept every since January 2006. I am fairly new at this but so far I haven't had any swelling, maybe a very little. I had kidney involvment. ...
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    Medicines

    I am on 10 mg of prednisone and 2000 mg of cellcept. I haven't always had the foot pain until August. I was on 20 mg a day but I was cut back to 10 mg. My Dr. said something about upping my...
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    Suffer greatly

    Yes, I know what you are experiencing. I get the feet pain every morning and the stiffness in my legs. It's so hard to move first thing in the morning. My pain last all day. A lot of throbbing in...
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    Sticky: SAYSUSIE POST

    Thanks for posting this question. I hope you benefited from it. I had the same question in my mind. I hope things work out for the best for you.

    Saysusie this post is terrific information. I...
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    Yes, my nephrologist put me on 50,000 IUs once a...

    Yes, my nephrologist put me on 50,000 IUs once a month. Mine was obviously very low. Plus I am taking calcium and vitamin D twice a day. Hopefully this information will help you.
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