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Type: Posts; User: lcasnyder

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    I know that it sucks having to wake up every...

    I know that it sucks having to wake up every morning not feeling well and having only maybe a couple of hours with the pain med. that you actually kinda of feel normal. It is great that you have the...
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    Here is what I know...

    Okay guys here is what I know. I went for an appt. with primary physician today. Also saw my labs from the ER visit that weren't back yet. My lupus isn't quite like the Rheum. thought when I saw him....
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    Thanks laurid8967. My primary physician knows...

    Thanks laurid8967.
    My primary physician knows that I have stopped I talk to her today. She and I are looking into something different and even a different Rheum. I just don't feel like he hears me...
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    dlrfoto, I have to say that it sounds exactly...

    dlrfoto,
    I have to say that it sounds exactly like me. I have been on it alot longer than that. I have been taking it since April. I have stopped taking it. I didn't notify the Rheum. yet, but I am...
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    meds.

    The hydroxychlor the Rheum. has me on, could that be the cause of all my abdominal pain. I haven't take the hydroxychlor for about 5 days now and I am starting to feel better in my stomach. I don't...
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    Am at a lose.

    Here is an update. I called the Rheum. I was given an appt. for yesterday. On my way down there I developed an awful pain in my lower right pelvis and I also had to pull over along side the road to...
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    I had both blood and protein in my urine last...

    I had both blood and protein in my urine last week, when they did the UA. They sent that sample out to see if what bacteria was present and no specific bacteria was found. I am having awful pain in...
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    Things have not gotten any better. I am having...

    Things have not gotten any better. I am having alot of pain in my kidneys. I called the Rheum. after I got the results from the doctor about the culture. The culture came back with no specific...
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    UTI and flank pain, want some in sight.

    I was to my primary physician yesterday and found out I have a really bad UTI, I have also been having a sore throat off and on, and pain under my ribcage in the front. I am not sure if I should call...
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    Karen, All is going well. I have been feeling...

    Karen,

    All is going well. I have been feeling really well lately. I can say I almost feel like myself. I feel like I should knock on wood, though. You just never know when it is going to hit...
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    What is going on with your daughter? If you don't...

    What is going on with your daughter? If you don't mind me asking. That is funny how that worked out with your son. My kids both were wonderful at 2. My son is 2 now, but he is just so much fun. My...
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    Karen, I am glad to hear that the sky was blue....

    Karen,
    I am glad to hear that the sky was blue. We had beautiful weather here yesterday. The sun was shining and it was warm. It is to be warm again today, but with clouds. I worked in my yard a...
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    You were the ray of sunshine that I needed today....

    You were the ray of sunshine that I needed today. I did to much yesterday as far as housework went. I paid for it all night last night. My legs, back, and arms just ached all night. I have the...
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    Thanks, Karen. I appreciate the encouragement. I...

    Thanks, Karen. I appreciate the encouragement. I feel I do the best I can, but sometimes you wonder if it is enough. I stay home with them so they have me everyday all day. I hope that they don't...
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    You are more than welcome. I just couldn't let...

    You are more than welcome. I just couldn't let that one go by without posting it here. I thought it was wonderfully written and explains a lot of what daily life is like. I have felt really awful...
  16. Just want to extend a welcome. I was just...

    Just want to extend a welcome. I was just diagnosed yesterday with SLE. I hope that you find lots of support and information. I sure have and have enjoyed everyone from the forum. I wish you the best.
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    Found this for us Lupies and undiagnosed Lupies.

    This is a letter that I found on a MySpace profile of person who also has LUPUS. I thought that it may be informative to those of you who donít know anything about it. Or for those of you who know...
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    You hit the nail on the head with that one, it...

    You hit the nail on the head with that one, it literally is a double-edged sword. I am just glad that I know what it is for sure and that I can go from there. There is no more wondering what the hell...
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    Hello, to all. I just want to let my new lupus...

    Hello, to all. I just want to let my new lupus family know that I was diagnosed today with SLE. The doctor put me on Hydroxychlor and Prednisone. I have appt. with him again in 6 wks. He took a urine...
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    Once again I would just like to say thank you to...

    Once again I would just like to say thank you to all who have taken the time out to extend a word of encouragement and to just be honest. I will make sure I get a copy of my labs tomorrow when I see...
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    Christine, I am sorry to hear that you are having...

    Christine, I am sorry to hear that you are having such a problem with getting a straight answer. I have found this place a very comforting and comfortable place to be. I don't struggle with my family...
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    I got a phone call from Rheumatology today. They...

    I got a phone call from Rheumatology today. They want me to come in next Tuesday to see the doctor, he told them he wanted a 30 min. appointment with me to discuss my labs. The girl from the office...
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    Am very frustrated.

    I have been doctoring with my GP for awhile now. I have had a elevated SED rate for over a year. I have been having joint pain, abdominal pain, fatigue, nausea, hair loss, muscle aches, some...
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