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Type: Posts; User: tripLexie

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    The Affordable Care Act outcome

    What does the AFA mean for us as Lupus sufferers? Personally, I do not like the idea of the gov't being in charge of MY treatment. Mandating MY preventitive screenings. Seizing MY medical records....
  2. Thanks, y'all! I am so excited. They are letting...

    Thanks, y'all! I am so excited. They are letting me leave today instead of next Friday since the new job is in desperate need of help. I'm sad, as I've met my year mark today, but VERY very happy to...
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    Thanks y'all! I don't think you're way off, my...

    Thanks y'all! I don't think you're way off, my PCP thinks that a rash I get very frequently is the urticarial form of vasculitis.. So I wouldn't be a shocker if I had some other form of it. They're...
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    I'm on vestura, it's a generic to Yaz. My PCP was...

    I'm on vestura, it's a generic to Yaz. My PCP was very skeptical about putting me on it but my rheumy insisted. I said I wanted the Yaz because that's what I was on years ago and had no issues. I'm...
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    Excessive bruising

    OK, so I've always been a clumsy one. But, lately, I look like I've been through a blender and then hit by a truck.

    Some bruises I can explain the cause- my 7 month old Great Dane puppy, brushing...
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    I'm not sure I have cataracts, I am only 20. But,...

    I'm not sure I have cataracts, I am only 20. But, I am having issues with my vision. I went to the optometrist yesterday and my diopters had gone from -3.00 to -4.25 in the left eye and -2.75 to...
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    You DEF. need to get that second opinon. RUN, not...

    You DEF. need to get that second opinon. RUN, not walk, from that rheumy. Most everyone here is familiar with the lovely flucuatiing of ANA levels and antibodies. I had a positive ANA ten years ago.....
  8. YUP! That is exactly how I feel. : ) : ) : )

    YUP! That is exactly how I feel. : ) : ) : )
  9. Finally putting my foot down.. Transferring outta of my terrible job!

    SO, those of you know I have been having issues with my employer. (For those of you who don’t, in a nutshell.. I’ve felt discriminated against during my dx process and ‘scared’ to ask off for all my...
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    Tapering prednisone.. Upping Lyrica?

    So, I got a nasty upper resp. infection and my PCP rx’d a z-pac that did nothing.. Then when the infection moved into my chest more rx’d levaquin and upped my prednisone from 5mg to 10mg. As soon as...
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    Thrombocytopenia

    Hello, all.

    Anybody out there with thrombocytopenia? Did you discover it because of petachiae or was it just discovered in a routine blood test?

    I’m thinking that the next time I’m in either...
  12. I'm in Midland, Texas. If you like the dust and...

    I'm in Midland, Texas. If you like the dust and the triple digit heat.. This place is for you haha!!


    Welcome to WHL!!!!
  13. Make sure and update us!!!

    Make sure and update us!!!
  14. Good luck!!!! May your (possible) antibodies be...

    Good luck!!!! May your (possible) antibodies be as drunk as an Irishman on St. Patty's Day!!!! : )
  15. Thread: Calcinosis

    by tripLexie
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    Lyn Day, DON'T hide your condition! It will only...

    Lyn Day, DON'T hide your condition! It will only bring more stress upon you, which in turn, will bring more pain upon you! You may or may not find out your family and friends do not how to react to...
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    Levaquin....... dum dum dum

    I got a sinus infection Sunday night, started antibiotics Monday (z-pac). My symptoms usually reslove by the second day. It's Friday and the infection has now spread to my chest and only gotten...
  17. Get tested FOR SURE!! Doctors have said that ANA...

    Get tested FOR SURE!! Doctors have said that ANA level and antibodies present do not always correlate with disease activity, or severity. So if one day you test a tire of 1:640, and the next month a...
  18. I LOVE THIS! Music that is relatable is so...

    I LOVE THIS! Music that is relatable is so important to me. I'm on of those people who if I can't somehow relate to lyrics in a song, I hate it. Thanks so much for this! It's beautiful!
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    I'm sorry Codi : ( I don't know what I would...

    I'm sorry Codi : (

    I don't know what I would do without my insurance. Please keep us updated and I wish that I had more advice for you! We're here if you need to vent more!!
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    Yes, please keep us posted!!! Do you mean that if...

    Yes, please keep us posted!!! Do you mean that if your bloodwork doesn't come back the way they want it do, they'll still do a trial??

    Do you know what group of drugs this is in??...
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    Does it cost anything?? I am interested!

    Does it cost anything?? I am interested!
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    Mother's Day gift idea's.. HELP!!!

    Hello all, hope everyone is as close to pain-free as possible today!

    With Mother's Day only 2 days away... And me 1,500 miles away from mom and grandma.. I NEED HELP!!

    What sort of things can I...
  23. Thread: Calcinosis

    by tripLexie
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    First thing I will say, I know that ANA titre...

    First thing I will say, I know that ANA titre levels, whether they come back normal or high, or even higher than normal, do not correlate with disease activity OR severity. My ANA titre flucuates...
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    I got off of the 60mg on Monday. Back to Lyrica.....

    I got off of the 60mg on Monday. Back to Lyrica.. I waso nly on it for 3 weeks, so he didn't taper.. I don't I've had any of the horrible withdrawl symptoms that I've read about. I'm so glad to be...
  25. Thread: Calcinosis

    by tripLexie
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    Hello Lynday. Yes calcinosis is very common with...

    Hello Lynday. Yes calcinosis is very common with Scleroderma, and more commonly, the sub-type form of CREST sydrome. Calcinosis also occurs in Mixed Connective Tissue Disease, which is when you have...
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