Search:

Type: Posts; User: Saysusie

Page 1 of 20 1 2 3 4

Search: Search took 0.24 seconds.

  1. Replies
    0
    Views
    15

    My Thoughts For Today

    I posted this in my blog, but thought that I would also post it here for everyone to see:

    I was sitting, this morning, thinking and meditating. Trying to place myself in a calming, quiet,...
  2. Thread: untitled

    by Saysusie
    Replies
    2
    Views
    34

    Hello Wynnr and welcome to our family. I am glad...

    Hello Wynnr and welcome to our family. I am glad that you found us and decided to honor us by letting this forum be the place where you feel safe to open up about your Lupus. You will find that...
  3. Replies
    2
    Views
    76

    I cannot tell you if it will be your new normal...

    I cannot tell you if it will be your new normal or not? That depends greatly upon your tolerance of the drug and your symptoms. There are many who find that they've had to increase their...
  4. Wow; This is GREAT news, especially for the...

    Wow;
    This is GREAT news, especially for the 10yr old girl. Having specialized treatment that targets an actual cause is new and rare with Lupus.
    It would be great is the cause was universal...
  5. Replies
    4
    Views
    124

    Yes, there are some of us who are still here! ...

    Yes, there are some of us who are still here! WHL has been a bit slow lately, but in some ways - that is a good thing as we are down to only two (2) moderators.
    I am glad to see you back and...
  6. Replies
    5
    Views
    117

    OMgoodness - no Vicks in your nose??? I do that...

    OMgoodness - no Vicks in your nose??? I do that ALL OF THE TIME!! Did she say why not?? Just curious.

    Peace and Blessings
    Namaste
    Saysusie
  7. Oh Moonbeam; I am so sorry to hear that you are...

    Oh Moonbeam; I am so sorry to hear that you are under so much stress. No, your issues do not sound everyday to us because we totally understand how stress affects our health and our Lupus.
    I'm...
  8. Replies
    1
    Views
    45

    Hi Moonbeam; You did not tell us when your...

    Hi Moonbeam;
    You did not tell us when your test was going to be. Have you been tested? If so, what was the diagnosis and prognosis. Please update us on how you are.

    Peace and Blessings...
  9. Replies
    1
    Views
    55

    I try to drink eight (8) bottles of water each...

    I try to drink eight (8) bottles of water each day. I don't always reach that goal, but I try hard to do so.
    Do you think that your edema is due to your kidney issues? Have you discussed this with...
  10. Replies
    2
    Views
    46

    Thank You Steve and Moonbeam; I had a...

    Thank You Steve and Moonbeam;
    I had a wonderful birthday! My hubby took me to Cancun along with 10 other couples who are very good friends. So, it was a week long celebration with dear friends. ...
  11. Replies
    4
    Views
    83

    Hey Rizbit; Yes it HAS been a while! I do...

    Hey Rizbit;
    Yes it HAS been a while! I do hope that you get medical coverage soon so that you can continue to receive treatment.
    I am happy to hear that you are still involved with LFA, with...
  12. Thread: Hello

    by Saysusie
    Replies
    2
    Views
    58

    Hello and Welcome Elisabeth; Rob has already...

    Hello and Welcome Elisabeth;
    Rob has already given you great information about the cognitive issues some of us deal with due to this disease. So, please know that you are not alone and that we...
  13. Thread: New

    by Saysusie
    Replies
    2
    Views
    69

    Hello Debra and welcome to our family! Yes,...

    Hello Debra and welcome to our family! Yes, please take a moment to tell us a bit about yourself. I am so glad that you decided to join us. You will find that this is a place filled with...
  14. Replies
    5
    Views
    157

    OK..keep us posted on how you are doing! Peace...

    OK..keep us posted on how you are doing!

    Peace and Blessings
    Namaste
    Saysusie
  15. I've recently seen a commercial by athletes...

    I've recently seen a commercial by athletes talking about a brace that helped them through their injuries. I'm not sure if this is what you need or not. It is a copper fit compression knee sleeve. ...
  16. This has not happened to me, but you are not the...

    This has not happened to me, but you are not the first person to find that antibiotics relieved their symptoms. Using antibiotics as a treatment for Lupus is not a new therapy and has been around...
  17. Replies
    5
    Views
    157

    I'm sorry that you've had no responses to your...

    I'm sorry that you've had no responses to your question. I've never had this treatment, so I cannot give you and anecdotal replies about it's affect. I do hope that someone answers your question....
  18. Replies
    4
    Views
    283

    I have never taken MTX, but my daughter did for...

    I have never taken MTX, but my daughter did for almost a year. Like you, when she stopped the medication, her symptoms would return. Sometimes worse than they were before she started taking the...
  19. I am providing you with an article about "ANA...

    I am providing you with an article about "ANA Negative Lupus" as this condition does, in fact, exist. Your doctor is NOT supposed to use the results of one test to diagnose or not diagnose Lupus. ...
  20. Replies
    5
    Views
    269

    Oh Kim, While I am so glad to see you back with...

    Oh Kim, While I am so glad to see you back with us, I am very sorry that you are having to deal with so much. Which medication have they increased to help deal with your kidney? When will the next...
  21. Thread: Spider Bite

    by Saysusie
    Replies
    5
    Views
    140

    What type of spider was it?? I am soooo deathly...

    What type of spider was it?? I am soooo deathly afraid of spiders, and just for this reason. I'm glad that you took him to the hospital and that surgery will not be necessary. I also hope that he...
  22. Yes, it is very common for us to have overlapping...

    Yes, it is very common for us to have overlapping diseases with Lupus. Some of those diseases can be more harmful to our health than Lupus. But, we CANNOT live in fear of what disease me "might"...
  23. Replies
    3
    Views
    138

    Oh Yes, that's pretty much sums us up!! Thank...

    Oh Yes, that's pretty much sums us up!! Thank You So Much For Sharing This.

    Peace and Blessings
    Namaste
    Saysusie
  24. Replies
    2
    Views
    77

    It sounds to me like you've done everything that...

    It sounds to me like you've done everything that you can legally do about this situation. I am assuming that there in no noise ordinance where you live?? Perhaps you can call your city hall to find...
  25. Replies
    4
    Views
    124

    Happy Belated Birthday!! Hope your day was a...

    Happy Belated Birthday!! Hope your day was a wonderful one :-)

    Peace and Blessings
    Namaste
    Saysusie
Results 1 to 25 of 500
Page 1 of 20 1 2 3 4