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  1. There are a number of things written about diet...

    There are a number of things written about diet and lupus. One of them is the Lupus Recovery Diet by Jill Harrington. You can look it up on the internet. It costs about $20 to download. It has some...
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    Sabre: I couldn't agree more about not letting...

    Sabre:

    I couldn't agree more about not letting it get to us. When people get sick sometimes their not their usual cheerful selves. Well, we're sick everyday and as you know some days just aren't...
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    Sabre: I totally understand. I was off all...

    Sabre:

    I totally understand. I was off all meds for quite a while and am going through a fairly hefty flare myself right now. I'm back on 50 ,gs of Prednisone and some others right now. Oh what...
  4. mommymc: I totally understand. There is a book...

    mommymc:

    I totally understand. There is a book I read recently called "Inflammation Nation" by Floyd Chilton. He's a medical researcher at John Hopkins University. He really explains inflammation...
  5. mommymc: My heart goes out to the both of you,...

    mommymc:

    My heart goes out to the both of you, particularly your daughter. Been there, done that, got the tee shirt on the can't get a vein problem. It's tough for a 50 year old man and I can't...
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    Actually, there is some research out that...

    Actually, there is some research out that indicates that Splenda is not what it is cracked up to be. You can look it up on the internet as well as looking up "sucralose".

    I was acrtually very...
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    Mary: As far as what to drink, the best I've...

    Mary:

    As far as what to drink, the best I've found is plain old water. The diet soda has aspartame in it, which is actually pretty nasty stuff. The Cyrstal Light is still going to have sugar or...
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    Polly: My heart is out to you. I had to go off...

    Polly:

    My heart is out to you. I had to go off work about 13 years ago. Now each sate is different so you would have to check in your state. In California it's the Employment Development...
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    Mary: Yes, the raw fruits and veges diet is a...

    Mary:

    Yes, the raw fruits and veges diet is a chore to follow. What I do now is try to eat as many fruits and vegetables as possible and limit my animal protein. I never really paid much attention...
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    Suzyq and Mary: Yes, I have had 2 biopsy's....

    Suzyq and Mary:

    Yes, I have had 2 biopsy's. One about 5 years ago and 1 about a week ago. The tissue was membraneous, which is the better of the kidney problems to have. I am already on prednisone...
  11. Devotedmom: Absolutely. I would love to talk...

    Devotedmom:

    Absolutely. I would love to talk to you further about this subject.

    Andyman
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    Interesting. My eyes are the worst in the...

    Interesting. My eyes are the worst in the morning.

    One thing my opthalmologist told me is that the biggest mistake people make when they are on the computer is not blinking enough. Just wanted to...
  13. devotedmom: That's great about your symptoms!...

    devotedmom:

    That's great about your symptoms!

    I'd be interested in hearing what herbs you take and in what quantities. Also, what sort of a diet are you on?

    Thanks,

    Andyman
  14. Hi! I can only tellyou what I have gone...

    Hi!

    I can only tellyou what I have gone through. This first got ill 14 years ago but they weren't quite sure it was Lupus. After being on prednisone for a year and then having my spleen taken out...
  15. Thread: New

    by andyman
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    Hi Malinda! Yes, this a very cool site. Even...

    Hi Malinda!

    Yes, this a very cool site. Even with family support it's nice to be able to comminicate with others that have reality on what you are going through.

    Welcome!

    Andyman
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    Mitch: The plugs are evidently little plugs...

    Mitch:

    The plugs are evidently little plugs they put into the corner of your eyes (closest to the nose) and they plug up the ducts that drain your tears. This leaves the tears in your eyes longer....
  17. Thread: New Here

    by andyman
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    Joann: Yes, you do have people here that...

    Joann:

    Yes, you do have people here that understand what you are going through. I think the beginning is the scariest as you really don't know what is going on.

    One of the things that has...
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    Catlady4520: Thanks for the info! I really...

    Catlady4520:

    Thanks for the info! I really appreciate it.

    My best wishes to you!

    Andyman
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    Restasis or plugs for dry eyes??

    Howdy all!

    I wanted to find out if anyone has had experience with using Restaisis (prescription eye drops) or plugs for the eye ducts to prevent dry eyes. I have had my eyes checked and I am...
  20. Sharon: I agree with mommymc. Get data but be...

    Sharon:

    I agree with mommymc. Get data but be careful of "cures" etc.

    I hope your boyfriend comes around. I do understand. It took me months to go to see the doctor. I went and then ended up...
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    Saysusie: Again, thanks for the great data! ...

    Saysusie:

    Again, thanks for the great data!

    I didn't know all of the stuff you mentioned about headaches.

    I have a question for you on one thing. Have you ever heard of any relationship...
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    Saysusie: That's great data. Thanks! Andyman

    Saysusie:

    That's great data. Thanks!

    Andyman
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    Amanda109: Thanks! That's helpful! Andyman

    Amanda109:

    Thanks! That's helpful!

    Andyman
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    Amanda109: Thanks! Did you tolerate it...

    Amanda109:

    Thanks!

    Did you tolerate it okay, other than the hairloss?

    Andyman
  25. mommymc: Do you think her teachers might have...

    mommymc:

    Do you think her teachers might have some input as to what might be easier for her physically?

    I do understand what she is going through. Been there, done that, got the tee-shirt!
    ...
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