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    found this too...howie dorough from Backstreet...

    found this too...howie dorough from Backstreet Boys...his sister died from lupus

    http://www.doroughlupusfoundation.org/about.html
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    this is what i found from a google... My own...

    this is what i found from a google...

    My own disability, Lupus, has an honor roll all its own. We include the
    writers Jack London and Flannery O'Connor. Our entertainers include Mary
    McDonough,...
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    Had a great doctor visit

    Hi everyone,
    I posted before asking if anyone had any ideas on what to expect on first Lupus rheumy appt. Well, I have gone to that appt. and I really really like the doctor!!! She is...
  4. Lanacane max works and Sarna lotion!!!! I...

    Lanacane max works and Sarna lotion!!!!

    I defer to an expert, but if one organ is involved i believe others can be too.
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    Welcome! Sarna lotion works for me on the rash....

    Welcome! Sarna lotion works for me on the rash. Believe me it was so bad i couldnt sleep for days. tried all the creams and steroids, finally pred works and Sarna (available at CVS or most drug...
  6. thanks for posting all of you... I have tried...

    thanks for posting all of you...
    I have tried benedryl yes, havent tried cetaphil, I am currently on pred it is helping and atarax
  7. Thread: HEADACHE!!!

    by Colleens
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    Hello there, Yes, i have headaches too. my gp...

    Hello there,
    Yes, i have headaches too. my gp wants to put me on Topomax to prevent them...they are of the migraine variety, back of my head style, with vision changes and light sensitivity,...
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    Jodi, Sorry you are so down. I was dx last week...

    Jodi,
    Sorry you are so down. I was dx last week myself so we are in same boat almost. I havent started plaquenil yet...I have had Fibro for 15 years and don't know whether to be madder about the new...
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    First Rheumy appt on 18th, any ideas?

    Hi , my 1st rheumy appt is on 11-18, any ideas on what to expect? I have been to rheumy's before, but this is the first time for this one and the first time for Lupus. All other times was for FMS...
  10. Anyone found any otc products for severe itch and rash?

    I have tried everything I think OTC for this, my first rheumy appt (for the Lupus) is on the 18th. Do you think she will put me on Plaquenil and Pred? My gp put me on pred, seems to help some, but...
  11. :oops: Sorry...I was in middle of a...

    :oops: Sorry...I was in middle of a flare...thought it was Fibro flare but was Lupus. How to cope with all the itching...i have SLE and discoid.???
    If anyone should know about trying to be patient...
  12. thanks

    Thanks momof2 !! It helps. I have appt with new rheum next week, so I was wondering what I'm in for.
  13. Thanks

    Thanks for your reply hatlady!
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    trying new sig

    trying new sig
  15. Ok so anybody read my post and have a thought?

    ???
  16. What's your best advice to newly dx Lupus patient?

    Post your best advice to me as a newly diagnosed Lupus patient.
  17. Whats the medicinal line of defense for Lupus?

    Whats the first thing docs medicate you with for Lupus. I dont mean Ibuprofen or such, I mean the actual Lupus.

    Prednisone>Antimalarials>Immunosuppressives>Chemotherapy

    Is this pretty much how...
  18. Told someone you have Lupus and they just don't get it?

    I told one of my friends today that I have Lupus. I knew she didnt know what it was...nor did I expect her to. But she got into some big religious discussion with me instead of asking me about...
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    Colleen...new diagnosis is the pits

    :shock: Shock;disbelief...how can this be happening? Tested for SLE at 28, found to be "false" positive...now I realize I had Lupus all these years!!! Dx in 1990 instead with Fibromyalgia, endured...
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    Colleen here...new to Lupus

    :shock: Shock;disbelief...how can this be happening? Tested for SLE at 28, found to be "false" positive...now I realize I had Lupus all these years!!! Dx in 1990 instead with Fibromyalgia, endured...
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