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  1. I, too, have Lupus with IBS. However, my IBS is...

    I, too, have Lupus with IBS. However, my IBS is with constipation. I often think that constipation is easier to handle and deal with than diarrhea. I take a medication that I find at my health...
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    Hi Sweetie!!! I've missed you too and also...

    Hi Sweetie!!! I've missed you too and also think of you often. Please let me know how you are and how life is treating you. This board has been painfully slow, so I am giving serious thought to...
  3. Higher titres of anti-dsDNA antibodies are more...

    Higher titres of anti-dsDNA antibodies are more suggestive of SLE and lower titres can be found in people without the disease. Your values are still quite low. In contrast to the high specificity,...
  4. Thread: New job

    by Saysusie
    Replies
    6
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    726

    I'm glad that it is still working for you and...

    I'm glad that it is still working for you and that your co-workers are so awesome. I hope that the fatigue is manageable and that things continue to go well. Sending you warm hugs of support!!
    ...
  5. Thread: New job

    by Saysusie
    Replies
    6
    Views
    726

    Hey..just checking on you. Are you still...

    Hey..just checking on you. Are you still managing well at your new job? I imagine that it has become routine now and easier for you to deal with. Hoping that all is well!


    Peace and Blessings...
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    I am so sorry that no one responded to you. I've...

    I am so sorry that no one responded to you. I've been down for several weeks due to a really bad lupus flare up. Please accept my apologies. Do you still need information or were you able to find...
  7. Thread: Happy easter

    by Saysusie
    Replies
    0
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    161

    Happy easter

    HAPPY EASTER TO EACH AND EVERY ONE OF YOU!!

    I hope that this day finds you with renewed strength and hope. May your day be filled with love and may you enjoy it pain-free!

    Peace and Blessings...
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    I cannot believe that I totally missed your post...

    I cannot believe that I totally missed your post over a year ago and that no one ever responded to you. For that, I truly apologize. I don't know if you still need an answer to your question, if...
  9. I tried several different ways and could not get...

    I tried several different ways and could not get your photos to open up :-(. However, you said that they looked like plaques? If so, then they could very well be one form of Lupus rash. Since I...
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    Sticky: I've heard the same thing. But, I have some kind...

    I've heard the same thing. But, I have some kind of compulsive disorder about showering and I shower AT LEAST THREE TIMES PER DAY!! I know that I'm probably doing a lot of damage, but I do use...
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    Hey There Friend...Welcome Back to WHL; As you...

    Hey There Friend...Welcome Back to WHL;
    As you can see, we are not nearly as active as we once were. With all of the new forms of social media, sites like this are dinosaurs (lol). I've been on...
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    He Ridethebeast; You are not alone in feeling...

    He Ridethebeast;
    You are not alone in feeling that the generic form of Plaquenil is not as effective as the name brand. In fact, some have said that the side-effects of the generic brand are...
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    Hello and Welcome Norra.. I'm glad that you found...

    Hello and Welcome Norra.. I'm glad that you found us and decided to join us. I've been on vacation, so I apologize for the delay in responding to your post. Please do take some time to tell us a...
  14. I'm glad to hear that the Plaquenil is working...

    I'm glad to hear that the Plaquenil is working for you. It is a cumulative drug and does take some time before you see real results. Since it is working for you, have they decided against...
  15. Thread: Help...urgent

    by Saysusie
    Replies
    3
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    339

    Yes, it is quite common for a bad Lupus Flare to...

    Yes, it is quite common for a bad Lupus Flare to knock us out of the game entirely. Often, we are completely unable to even get out of our beds or off of the couch. We think that, if we push...
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    Thank You So Much!!

    Thank You So Much!!
  17. I just want to reiterate everything that Steve...

    I just want to reiterate everything that Steve said, because it was very important information that you should know. Also, a neurologist is not a specialist on auto-immune/connective tissue...
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    I, too, had every common childhood disease that...

    I, too, had every common childhood disease that was out there :-( Not sure if having them or not having them correlates to our disease!!

    Peace and Blessings
    Namaste
    Saysusie
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    You are ABSOLUTELY NOT going crazy. Lupus,...

    You are ABSOLUTELY NOT going crazy. Lupus, itself, causes depression due to chemical imbalance that it causes. Having a chronic disease causes depression due to the former life that we've lost, the...
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    Whilst the original post is almost four years...

    Whilst the original post is almost four years old, Steve's information is still spot on. I do hope that you find a diet regimen that works for you and helps you to manage your disease. I wish you...
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    Welcome to our little family :-) The...

    Welcome to our little family :-)

    The Plaquenil side effects should subside after a while. Steve's advice about taking it with food might also help you. Remember that Plaquenil is a cumulative...
  22. Thread: Hello...

    by Saysusie
    Replies
    2
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    249

    Wow, I've been battling this disease since...

    Wow, I've been battling this disease since 1985..so I'm not too far behind you. I imagine that you are pretty adept at managing your disease, for the most part. I know that there are still times...
  23. Many of us have discovered, after being...

    Many of us have discovered, after being diagnosed, that many of the ailments that we suffered from for years were probably due to this disease. When we think back on our symptoms, we realize that...
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    I'm a grandmom!!

    Hello WHL FAMILY!!
    On January 1, 2017, My grand daughter was born to my Son and his wife. Out of love for his sister, he named his daughter Amber Rose Diggs. I haven't been this happy is such a...
  25. Thread: New job

    by Saysusie
    Replies
    6
    Views
    726

    Congratulations Ruziska: so, it's been a couple...

    Congratulations Ruziska:
    so, it's been a couple of weeks now. How are you liking your new job? Are you managing the fatigue? I hope that it is still going well!

    Peace and Blessings
    Namaste...
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