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  1. hi amy, and welcome. it is very hard to try...

    hi amy,
    and welcome.

    it is very hard to try to diagnose any auto immune disorder.
    it sounds like your symptoms do lead to something auto immune.

    can I suggest you chat to your doctor about...
  2. Thread: new members

    by steve.b
    Replies
    2
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    59

    hi lupiegirl67. welcome, please tell us a...

    hi lupiegirl67.

    welcome, please tell us a little more about yourself.
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    Jaynie .. there are a few medications that are...

    Jaynie ..
    there are a few medications that are suitable.

    I take Panadol osteo, I use it as a constant daily medication.
    I have friends who found lyrica works well for them, but it did nothing...
  4. a good side effect ... :)

    a good side effect ... :)
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    it is an unfortunate fact ...... many of us have...

    it is an unfortunate fact ...... many of us have fibro as well.

    it is my belief ... people who live with there nerves switched on all the time, sometime will have nerve overload.
    to have our skin...
  6. I use a telescopic walking cane, when I get...

    I use a telescopic walking cane, when I get tired.

    it is no good for helping me up.

    a friend from on here has a "service dog"
    it is there so she can use the dog to help her up ....
    amongst...
  7. lupus effects about 3 % of the population .........

    lupus effects about 3 % of the population ......
    so there is millions of us with it.

    unfortunately it is often miss diagnosed, or not diagnosed at all.
    also it is miss understood by most of the...
  8. unfortunately for some .... fatigue can be a...

    unfortunately for some .... fatigue can be a constant side effect.
    but others of us learn to accept medication, and the fatigue lessens or diminishes.

    everyone reacts differently, so there is no...
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    hi mrs daprato, and welcome. unfortunately...

    hi mrs daprato,
    and welcome.

    unfortunately there is no test to positively confirm that you have lupus.
    as one of the many auto immune disorders ....
    many of our symptoms are the same as or...
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    hugs to both of you

    hugs to both of you
  11. Replies
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    hi kat and welcome. the skin discolouration is...

    hi kat and welcome.

    the skin discolouration is from the skin pigment being altered.
    any psoriasis can cause this.

    I have it on my ankles and feet also.
    it will become vivid and fade as the...
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    sorry you are still having problems with this. ...

    sorry you are still having problems with this.

    glad you are still around here, and doing ok on the pred.

    hugs
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    the reason we have lupus,(or any other auto...

    the reason we have lupus,(or any other auto immune disorder) ...
    is because our immune system is in overdrive.

    to me,.... anything that is designed to boost the immune system is not right for us.
  14. Thread: New Member

    by steve.b
    Replies
    3
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    122

    hi Robert, and welcome unfortunately tinnitus...

    hi Robert, and welcome

    unfortunately tinnitus is a known side effect from lupus.
    I am undergoing a retraining therapy to try to get me used to mine.

    it is also common for us to have good...
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    heron, what you post on here will NOT be seen...

    heron,
    what you post on here will NOT be seen there.
    they are 2 different systems, and we are keeping them separate.....


    I have a facebook account ...
    anyone can find me ....
    but they can...
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    getting properly diagnosed can be very confusing...

    getting properly diagnosed can be very confusing ....
    remember there is no test for what we have.
    and there is over 60 different auto immune disorders,
    all with overlapping symptoms.

    so it...
  17. we had this information last week. but thank you...

    we had this information last week.
    but thank you for sharing it again.

    there appears to be some good promise with this ......
    but unfortunately more money is needed to take the testing further.
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    hi sage hen, there is quite a few of us that...

    hi sage hen,
    there is quite a few of us that have the same combination of fibro and lupus. ....
    so you are not alone.

    please tell us a little more about yourself.
  19. Thread: New here

    by steve.b
    Replies
    6
    Views
    162

    hi britt, and welcome. please tell us a...

    hi britt,
    and welcome.

    please tell us a little about yourself,
    and what brought you here.
  20. Thread: Sooo confused

    by steve.b
    Replies
    2
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    70

    hi Sheryl, and welcome. sorry there are no...

    hi Sheryl,
    and welcome.

    sorry there are no doctors as members on this forum .....
    so we cannot diagnose you.
    we can comment on our own experiences ...

    yes all of these symptoms may come from...
  21. there is 4 types of lupus. there is details...

    there is 4 types of lupus.
    there is details about each in our site ...

    one of the best descriptions for discord is ......
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    thank you for the update :) glad he has...

    thank you for the update :)

    glad he has maintained his improved health ...
    I am very happy !!!!

    btw .. who ever goes well in trig ???
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    hi and welcome, I am a male, and do not know...

    hi and welcome,

    I am a male, and do not know about your concerns ......
    but I did want to say hi and welcome.

    someone else will hopefully be able to give you some more information.
  24. Thread: Lumps on scalp

    by steve.b
    Replies
    8
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    977

    it is never a problem with asking questions of...

    it is never a problem with asking questions of your rheumatologist.

    if you are unsure of what is causing your problem .......
    ask.
    knowledge is power.
    not knowing can be scary.
  25. the amount of plaquenil we take is usually not...

    the amount of plaquenil we take is usually not enough to lead to eye problems ......
    but in stronger doses it is a well known side effect.

    so .......
    for safety we also have our vision checked...
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