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Type: Posts; User: Merrilyn OZ

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  1. Merry Christmas to all the WHL family world wide....

    Merry Christmas to all the WHL family world wide.
    May your day be a happy relaxing day
    be it in the snowy Northern hemisphere
    or in the very warm southern hemisphere
    Best wishes to all
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    Dr Langlands and we saw him at Midlands, but he...

    Dr Langlands and we saw him at Midlands, but he possible has clinics elsewhere.
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    Belated HAPPY BIRTHDAY Steve Glad it was a...

    Belated HAPPY BIRTHDAY Steve

    Glad it was a great day.

    Sorry I never got a chance to met you while I was in Perth.
    But so glad you've been there for Linda.
    Think you're big brother to all...
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    Hi Desley, I've been on Steroids for over 40...

    Hi Desley,

    I've been on Steroids for over 40 years, luckily for me weight has not been a problem.
    My original diagnosis was because of pericarditis ( swollen heart) and over ensuing years i...
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    Happy belated Birthday Linda May this next...

    Happy belated Birthday Linda

    May this next year befull of happy new memories
    Keep smiling

    Lots of love
    Merrilyn
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    Pity I did'nt know you'd be at Harbour Town I'm...

    Pity I did'nt know you'd be at Harbour Town I'm not far from there.
    Will definately make it a date next Sept.
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    Hi, I've had 3 Operations 1 major. I've had no...

    Hi,
    I've had 3 Operations 1 major. I've had no problems with healing. The Docs boost my prednisone before the operations.
    Like you I suffer from GERD and reflux and I'm having a Halo 90 sugery in...
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    Really envious I could'nt join you all guess I'll...

    Really envious I could'nt join you all guess I'll always feel connected to the WA Lupies. Hope to be over in the New Year so cross fingers might catch up with some of you then
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    Hi giggle Let me know when you're down next ...

    Hi giggle

    Let me know when you're down next
    Can perhaps met up
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    Hi Desley, Would love to catch up when you're...

    Hi Desley,

    Would love to catch up when you're here next, maybe by that time a few of us can get together for a coffee.
    I'm guessing you fly into Brisbane. We'll organise closer to you're next...
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    Hi Giggle, Will look forward to catching up...

    Hi Giggle,

    Will look forward to catching up with you when you shift down.
    Amazing we both go to Greenslopes maybe well cross paths there.
    Linda and I seemed to manage to get appointments on the...
  12. I agree with every thing Giggle says and I...

    I agree with every thing Giggle says and I could'nt agree more about the Greenslopes Specialist Centre.
    I have a cancer problem as well as Lupus and I can't speak highly enough of the specialists...
  13. Hi Shine, You mention moving interstate -...

    Hi Shine,

    You mention moving interstate - which state?
    Maybe one of our WHL family here in Australia can suggest a good rheumy.
    All the best with the shift, know it can be very exhausting.
    I...
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    Met up Gold Coast/Brisbane

    Any one interested in meeting up.
    I'm originally from Perth been on Gold coast since June.
    Interested in making contact with any other WHL members over here
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    Hi everyone As Mari mentioned I've had an...

    Hi everyone

    As Mari mentioned I've had an idea and am sending Linda flowers from all the WHL family

    I spoke to her husband last night and all though they have no diagnosis at all Linda is...
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    I have to agree with everyones comments,...

    I have to agree with everyones comments, especially that of the difference between country and country.

    Aussies are inclined to be abit irreverent in their sense of humour, but as all of you who...
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    Hi Sonmak, As Steve says Centrelink are very...

    Hi Sonmak,

    As Steve says Centrelink are very helpful in just talk to them.

    I was rather nervous at the interview but found as Steve said they just need to dot the i's and cross the t"s...
  18. Good one Linda Made my morning - watch out...

    Good one Linda

    Made my morning - watch out kids
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    Hi Steve, So sorry to hear of your daughters...

    Hi Steve,
    So sorry to hear of your daughters diagnosis but glad that it is contained and operable. I'm sure having her mother there will be a great support. I full well know that feeling of dread...
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    O my gosh Linda I leave the State and you're...

    O my gosh Linda I leave the State and you're falling apart.
    Sorry I have'nt been on the site for so long but what with packing and shifting across Australia I hav'nt had time to check in. Linda...
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    Definitely stick with your Rheumy's...

    Definitely stick with your Rheumy's recomendations.
    I have been on Prednisolone for 40 years and my Rheumy has put my on Methotrexate so I can reduce the Pred levels I'm on 10mg and he has me...
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    Great news, waiting on those pics too. Perhaps we...

    Great news, waiting on those pics too. Perhaps we West Aussies need a cold break every now and then.
  23. Linda, I hope you have some relief from the...

    Linda,
    I hope you have some relief from the Prednisolone, I've been on it 40 years with no serious side effects.
    5mg is a low dose and should not give you any major problems infact I'm sure it...
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    Rob Vegemite is an acquired taste. It's...

    Rob
    Vegemite is an acquired taste.
    It's actually a Yeast extract spread, quite a sharp taste - one you either like or detest.
    Very Australian and a common spread for children on toast.
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    Great news about the Bulk billing. When and to...

    Great news about the Bulk billing.
    When and to where are you shifting in Brisbane? I'm shifting to the Gold Coast next month to be closer to our daughter. Linda and I see avery good...
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