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  1. Thread: Hi again!

    by Nat
    Replies
    5
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    254

    Hi again!

    Hi all,
    Just wanted to check in and say a big hello to everyone. I've been awful at checking in here for the past few months so sorry about that, my work has been keeping me ridiculously busy and...
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    Hi! I haven't been around here in a long time but...

    Hi! I haven't been around here in a long time but I got an email the other day that reminded me of your initial post about your stepson and how difficult things had been for your family. The email...
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    2,473

    Hi. While I don't have kids of my own, I work...

    Hi. While I don't have kids of my own, I work with families that have similar problems each day. I work with a lot of kids going through the justice system and I can see the impact that this has on...
  4. Hi! I have some issues with my stomach too but...

    Hi! I have some issues with my stomach too but haven't really found the MTX to effect that. I take 20mg a week and split that dose over 2 days because i found that it was making me more sore on the...
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    I haven't had any issues in the sun. I have olive...

    I haven't had any issues in the sun. I have olive skin and so have only been burnt a handful of times despite multiple hours in the sun. Ive read so much about the photosensitivity in lupus and i was...
  6. Thread: 5 mg prednisolone

    by Nat
    Replies
    11
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    1,579

    Hi There, I spent 6 months on steroids early...

    Hi There,
    I spent 6 months on steroids early last year and tapered down to nothing by early September 2011. I haven't taken any steroids since then and haven't had any problems at all so far. There...
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    thanks for the responses guys. anything with...

    thanks for the responses guys. anything with progesterone is a no go for me unfortunately the rheumatologist doesnt think its a good idea with the clotting disorder and lupus. Red, I am on blood...
  8. Replies
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    528

    bit of a girly questions

    this is one for all the ladies - well ladies that have issues with blood clots....i may have narrowed down my target group now...

    anyway just wondering if any one that has a clotting disorder has...
  9. Thread: Ghost!

    by Nat
    Replies
    2
    Views
    252

    Ghost!

    hi crew,

    sorry i've been a bit of a ghost around here for a while now, things have been a little crazy in my world but I am back and will try and check in more regularly!! I hope everyone is doing...
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    You could try your local lupus group, not sure...

    You could try your local lupus group, not sure whats about in Melb but there is a group in perth. Not that I've had anything to do with the local perth one but im sure people would love to hear from...
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    sounds like a nice venue, unfortunately cant make...

    sounds like a nice venue, unfortunately cant make it as i have a wedding but have fun. maybe see u all next time!
  12. Thread: Sores in mouth

    by Nat
    Replies
    8
    Views
    1,074

    the sores can be a symptom of lupus or side...

    the sores can be a symptom of lupus or side effect methotrexate if you take that. I had horrendous ulcers in my mouth when i had my first/last flare. not everyone gets them but i know my rheumy...
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    I had the same issues. have always been regular...

    I had the same issues. have always been regular even since stopping the pill (due to dvt and PE) but when i started on all the lupus meds last year it threw me out. I freaked out big time just after...
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    Sorry to hear that you're going through this....

    Sorry to hear that you're going through this. From my perspective, and most of us here, we understand what its like to be sick but not many of us understand the other side of what it's like for our...
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    Sticky: This thread is a great idea. I see Dr KC Ng in...

    This thread is a great idea.
    I see Dr KC Ng in Nedlands (Perth, WA) he is amazing!! Breaks every single test down so i can understand what each is looking for and what my results mean.
    I have a...
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    oops...complacency is not my friend

    So I had my regular rheumy visit last Friday and all seems to be going well. Have to get a few more tests updated but good news so far! And I have finished the pred which is the best news for me....
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    hope you all had a great time, will be nice to...

    hope you all had a great time, will be nice to meet up next time maybe!
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    Sorry crew can't make this round got a grand...

    Sorry crew can't make this round got a grand final party on the sat and work during the week. Keen to come along another time tho
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    I have literally just had the same issues over...

    I have literally just had the same issues over the past couple of weeks. never had issues with my skin before, i thought it was because i got a new bottle of moisturiser so i stopped using it for a...
  20. Thread: This is hard

    by Nat
    Replies
    12
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    2,046

    Hi Marv, Welcome!! I am sort of in the same boat...

    Hi Marv,
    Welcome!! I am sort of in the same boat as you, as far as being young and struggling with the reality of a chronic illness. I was diagnosed last year at 24 and one of the hardest things i...
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    Hi Debs, So good to see someone being so...

    Hi Debs,
    So good to see someone being so supportive of a family member with Lupus. I, luckily, am in the same boat as your sister, by having fantastic family members who are so supportive. I also...
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    Good idea! I'd be keen to meet up. Saturday and...

    Good idea! I'd be keen to meet up. Saturday and Sundays are my only days as I work full time. City would be good for me too but I live relatively central so not too fussed where we go
  23. Thread: Good Old Steroids

    by Nat
    Replies
    15
    Views
    2,360

    Apart from the weird, little side effects I...

    Apart from the weird, little side effects I haven't had too bad a deal with the steroids. I lost a whole bunch of kgs last year when i was sick so didnt put on much weight when i started the pred....
  24. Thread: Good Old Steroids

    by Nat
    Replies
    15
    Views
    2,360

    @Ritz - no more other side effects at the moment,...

    @Ritz - no more other side effects at the moment, my lupus symptoms are under control too...i really should just be thankful for that!!
    @Steve - I had a cold about 3 weeks ago and think it turned...
  25. Thread: Good Old Steroids

    by Nat
    Replies
    15
    Views
    2,360

    Good Old Steroids

    Hi crew,
    I've been taking prednisone since I had a bad flare in March this year and I'm nearly completely finished, down to 1mg this week. My rheumy wanted me to stay on them a bit longer this time...
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