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  1. Hello I`ve been on prednisone the last 20 years...

    Hello
    I`ve been on prednisone the last 20 years and I can honestly say I HATE IT!! But it does seem to get the lupus under control faster and better than the other meds.I stay on a low dose (5mg)...
  2. Thread: Sjogrens Too

    by Suzyq
    Replies
    6
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    1,533

    Sjogrens Too

    Hi Everyone--A couple of weeks ago I posted about all the neck pain and problems I`ve been having and a couple of you mentioned Sjogren`s Syndrome.After my gp ran a ct scan and found nothing he also...
  3. Thread: Late period

    by Suzyq
    Replies
    2
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    958

    Hi I have had lupus the last 20 years and also...

    Hi
    I have had lupus the last 20 years and also on Prednisone that long.For the last 12 years problems with myperiods have been constant.When it first started happening the docs were quick to start...
  4. Thread: Blood Pressure

    by Suzyq
    Replies
    1
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    960

    Blood Pressure

    I`ve been having a rough time the last few months.Iwas doing fairly well for awhile.I was on 5mg of pred and Imuran.I was noticing that I kept getting neck pain on the sides of my neck and right in...
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    Hey Andy---Thats how I found out I had lupus 20...

    Hey Andy---Thats how I found out I had lupus 20 or so years ago.Got up one morning,looked in the mirror and FREAKED out.I was so swollen.My hands and feet were horriable too.Went to the doctor and...
  6. Thread: New Here

    by Suzyq
    Replies
    9
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    2,002

    Hey Guys---You know,I was wondering about Sjourns...

    Hey Guys---You know,I was wondering about Sjourns too.Well to be truthful the last couple of days I`ve been wondering about a lot of different things.I don`t know whats going on but I DO know its...
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    Hi Andyman--After my kidney biospy they put me on...

    Hi Andyman--After my kidney biospy they put me on cytoxin but I couldn`t tolerate it for very long at all.A lot of nausa and a whole lot of blood in urine so they switched me to Imuran which did very...
  8. Thread: New Here

    by Suzyq
    Replies
    9
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    2,002

    Hi Andyman I don`t really know whats going on...

    Hi Andyman I don`t really know whats going on with these glands either but I sure wish one of my docs would figure it out.And I don`t understand why my rheumy wants to put me on Avara for it. I love...
  9. Thread: New Here

    by Suzyq
    Replies
    9
    Views
    2,002

    New Here

    Hello everyone I just joined and so glad I found you.I`ve had lupus for about 22 years now.I`ve also been on prednisone that long also.Right now I`m on 20 m a day because I`m having some problems(as...
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