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  1. The Day After

    See -- I survived! Agree that we've over commercialized what it is and I work very hard to love myself -- doing an OK job I think -- all things considered. It's just that Valentine's Day (which I...
  2. Why I Hate Valentines Day ... Not to be negative but....

    Valentines is the day that even when I'm doing well I most resent this disease.

    It's not just that I haven't had anyone (romantically) in my life since the decade ago Lupus manifested itself and...
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    My guess is brain fog

    I have the same issue -- I just think my hand is moving faster than my mind...
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    I tend to get the nose ulcers

    Which is of course such a joy when combined with a runny nose. Already on plaquenil -- any other suggestions for when the they flare?
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    Concerta really helped my brain fog

    Concerta really helped my brain fog -- you may want to look into it or one of the other ADD meds -- they apparently often work for this...
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    Too many meds

    I've been feeling better (except for the weight gains) but on the few days I've missed my meds and been somewhere without them -- I feel so worn down like I'm not really actually any better. And...
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    Great places to live

    I would weigh the following factors (as relative for you)
    * UV
    * Good Rheumies
    * Local Clinical Trials
    * Lots of opportunities to do "what you love most" -- e.g. more choices as to "when" to...
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    Lupus, Weight Gain, Diabetes

    Over the course of my Lupus I have been putting on weight -- to the point where it concerned me enought to look into bariatric surgery. Something called a gastric sleeve which is more than a lapband...
  9. How Do I Look Details

    I believe its on the style network and sometimes E. It's sort of similiar to What not to wear. Host is Finola Hughes.
  10. Did anyone see the "Lupus Episode" on How Do I Loo

    It featured a woman from CA who had lost 50 pounds when going off Prednisone and still wore her old clothes. She was nominated by her sister -- who also has Lupus, but is very slender.

    It gave us...
  11. Really Embarassing question for Women Only

    I'm 44 and have really noticed a proliferation of commercials relating to bladder control issues.

    I rarely have the problem but more often seem to excessively sweat "down there. " So the result...
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    Fellow FM sufferer

    My understanding is that there are actually consistent pain points on obscure points in the body that when touched or poked will hurt far more than the touch would elsewhere. That's how mine was...
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    Me too - re not on predisone but have sleepless nights

    Sometimes I think I'm on a European clock. Have tried
    - Sleep Center Test -- inconclusive
    - Memory Foam Pillow and Mattress Topper - took my waking bedtime hours from uncomfortable to much more...
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    Reaction to color

    No -- I don't have that problem, although my stylist tells me that the color she usually easily wipes off the skin (around the edges of the scalp) had been difficult to get out since I've been on the...
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    My dr recommended physical therapy and an orthodic

    Ironically though -- after months of suffering -- it mysteriously went away on its own right before I was to start PT.

    It can be Lupus related, although people without lupus get heel pains too....
  16. Thread: B12?

    by GlassHalfFull
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    B-12 makes a difference

    At least for me. It took them years to diagnose the lupus -- but when I first got sick the only thing they did know for sure was that my body could not absorb B-12 thru food...

    I know I can tell...
  17. Brief Scare with Feet (but not diabetic)

    Like everyone (even non-lupies) I occasionally experience issues with my feet or legs if they sit for a period of time -- but I had a little scare tonight and I wonder if anyone else has experienced...
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    Yes - it's the disease - from a fellow Lupie (and sjogren's)

    I had issues with lupus fog too -- which was hard for someone with a formerly photographic memories and a great ability focus.

    They put me on an ADD medication, Concerta, that seems to help with...
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    If you're in Manhattan

    I can give you the name of a really good specialist
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    You may want to try Lyrica

    I'm finding it helps with the pain
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    Sounds like Sjogrens/Shogrens Syndrome to me - I have it

    There's also a medication called Evoxac (I think I'm spelling it right) that they can give you to increase your saliva. I have similar issues and they have me on the med mentioned as well as the...
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    ADA question

    I got into a discussion earlier this week with a friend who has fibromyalgia. I also have fibromyalgia along with Lupus and Shogrens. She was aghast at the hours I work. At least 70/week sometimes...
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    Best wishes from a fellow librarian

    MLS - rutgers
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    Yes -- it took about three days

    And it stopped very suddenly. I assumed that symptoms would gradually get better, but it just stopped hurting, which was great, given how bad -- almost debilitating, they were before.

    I gather...
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    Here's what scary

    I think it varies state to state, and company to company -- but you will see on many job applications (paper and/or online) some sort of question re whether you have any "chronic" conditions, of...
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