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Type: Posts; User: janefrances

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    I was on plaquenil for quite a while, then off,...

    I was on plaquenil for quite a while, then off, now back on again. Maybe that has something to do with it, thank you for the info. I am no longer feeling like I am going crazy!
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    Thank you for your reassuring answers! I often do...

    Thank you for your reassuring answers! I often do run a slight temperature, and it it good to know that these diseases can affect sleep, I was not aware of that. I will be sure to mention it to my...
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    No, I am not, and I have been having some...

    No, I am not, and I have been having some problems with my stomach and am having endoscopy and colonoscopy soon.
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    constant dreaming

    I have never seen this subject addressed. Lately I have been dreaming constantly. I have a lot of fatigue, and when I might nod off watching TV or reading, I immediately start dreaming. I dream all...
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    Try looking for a doc at one of the hospitals...

    Try looking for a doc at one of the hospitals associated with a medical school, such as Columbia Presbyterian, NYU Medical Center, and I think Mt. Sinai. I believe these medical centers give a high...
  6. Thread: winrho

    by janefrances
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    Thanks for the info on Winrho. I have read a few...

    Thanks for the info on Winrho. I have read a few of the articles on the website link. I know drug companies have to give you all the information about side effects, but I found these alarming, even...
  7. Thread: winrho

    by janefrances
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    winrho

    Has anyone out there taken the drug Winrho for low platelets? Rheumy sent me to the hemotoligist, and this is the drug he suggested. It is administered by infusion that lasts 30 minutes. It is...
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    I looooove my sleep number bed. I have lupus, bad...

    I looooove my sleep number bed. I have lupus, bad osteoarthritis, scoliosis and fibormyalgia. After 30 years of marriage, my husband and I were faced with separate beds, because he needed a much...
  9. I was so happy to find this discussion! Ever...

    I was so happy to find this discussion! Ever since I went off decadron (I had been on it over 2 months) I started having GI problems - diarrhea, nausea, abdominal pain, cramping. At first doc...
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    Just went to new rheumatologist; I came to...

    Just went to new rheumatologist; I came to conclusion the other one was NOT GOOD and changed immediately. New doc has ordered tons of blood work that she says was never done by first doc. She has...
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    I always tell my husband that there is a very...

    I always tell my husband that there is a very short list in my head that consists of one constantly changing item
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    decadron and muscle spasm

    I am unable to take prednisone/medrol, and so am stuck with 2nd choice drug decadron. I experience SEVERE muscle spasms when on this drug. I take Baclofen 10 mg, which should be a dose for 8 hours...
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    I only drink caffeine when I have a migraine, no...

    I only drink caffeine when I have a migraine, no other time. It works perfectly for me. I get flashing lights, colored lights, and something called a fortification effect that blocks my vision in...
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    Thanks for the words of encouragement! It sounds...

    Thanks for the words of encouragement! It sounds like you have really been through the mill, as my Mom used to say. My counts were up today to 124,000, so they will try once again to wean me off the...
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    Thanks for all the info on Imuran. I still have...

    Thanks for all the info on Imuran. I still have a hard time understanding why they want to give me a drug that suppresses platelet counts, when my problem is low platelet counts. I will talk to my...
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    I would be looking for a new doctor! In order to...

    I would be looking for a new doctor! In order to help yourself, get copies of all your medical records, in addition to having them sent to the new doc. (find one first, before you do this; try the...
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    Imuran chemo drug

    Has anyone had an experience with the chemo drug Imuran - I believe that is the spelling. I am having trouble with low platelet counts, and Decadron does not seem to be working. I have had some...
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    I have a history of bleeding ulcers, and I still...

    I have a history of bleeding ulcers, and I still take anti inflammatory drugs and steroids. There are drugs your doc can give you along with these drugs to protect your stomach, and there are ways...
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    I am having the same problem with platelets. I ...

    I am having the same problem with platelets. I am newly diagnosed, though I suspect I have had lupus for yrs. I also have severe degernerative arthritis, with joint repalcements, and DX of...
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