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  1. Replies
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    Coleen, I am so sorry about your father. Of...

    Coleen,

    I am so sorry about your father. Of course you need not apoligize. :( My tongue felt and stills feels like it's someone else's! I went around asking family and friends if I could look...
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    Coleen, I am so sorry about your father. Of...

    Coleen,

    I am so sorry about your father. Of course you need not apoligize. :( My tongue felt and stills feels like it's someone else's! I went around asking family and friends if I could look...
  3. Thread: sjogrens

    by dlavietes
    Replies
    4
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    974

    sjogrens

    I have a question that I was hoping suzi might be able to help me with. my dr. ranm a auroantibody test and the normal is <100 and mine wa *451 positive. Do you think this is cause for concern? Iv'e...
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    Hi coleen, I have sjogrens also. The same thing...

    Hi coleen, I have sjogrens also. The same thing is happening to tounge. My tonge has actually cracked down the middle and the sides, and like all cracks it has split open. just about everything...
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    Green Lipped Muscle

    has anyone heard of green lipped muscle for osteoarthritis?
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    I am so on that road

    I don't even know where to start. I've had system lupus and discoid lupus for 27 years now. In the last 10 years I have developed fibromyalgia, sjogrens, acid reflux, I.B.S., osteoarthritis, asthma,...
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    When I was diagnosed with both of them, they took...

    When I was diagnosed with both of them, they took biopsies. I have been feeling way over board with the flaring and feeling bad. gotta go
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    discoid and sle

    I was diagnosed with both sle and discoid 26 years ago. Since then, I have had many different symptons with both. It's nerver boring, that's for sure. Hang in there.
    ...
  9. Thread: Mouth Ulcers

    by dlavietes
    Replies
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    3,519

    mouth sores

    Thank you Mackie--I'm gonna give it a try. There's one right in the middle of the roof of my mouth that's been there forever. Thanks--- :P
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    Do you get different types of headaches? I get...

    Do you get different types of headaches? I get the stabbing one on the left upper part, and get the ones for days. Now this new thing is the back of my head. That's where I get the shots. I too...
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    PT for Headaches

    My new neuro dr was having me do physical therapy for these stupid headaches. The last session, he said that they're not helping the headaches, so I have to see him again. He already gave me nerve...
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    cane

    I was going to mention the fold out cane. Now that's a cane! Pretty cool. 8)

    Diana
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    Before my cane became my best friend, I used to...

    Before my cane became my best friend, I used to think it was very much like giving in. Felt stupid for using one at age 47. But since it has helped me so much. I always carry one in my car. I...
  14. Thread: Mouth Ulcers

    by dlavietes
    Replies
    16
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    3,519

    mouth ulcers

    Thank you again Saysusie. I don't think it could be thrush or anything like that because I like to keep my mouth and everything else very clean. I've kind of developed a germ phobia. I haven't...
  15. Thread: Mouth Ulcers

    by dlavietes
    Replies
    16
    Views
    3,519

    mouth ulcers

    Has anyone ever had the ulcers down the throat? I've had this bout of ulcers in my mouth for weeks now, and it feels like they are in my throat. My glands are really swollen too. I don't know! I...
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    cramps

    I get really bad cramps like that. I also have ibs, I'm no Doc, but I don't think the two are related. Heating pad helps. My gyno says that she doesn't see anything that can be causing them. I've...
  17. Thread: Mouth Ulcers

    by dlavietes
    Replies
    16
    Views
    3,519

    mouth sores

    :shock: Moxie
    I really don't know anyone on the site, but I don't remember anyone say that they have been sick for so many years. NOT SAYING IT'S A GOOD THING, but It makes other problems that I've...
  18. Thread: Mouth Ulcers

    by dlavietes
    Replies
    16
    Views
    3,519

    mouth sores

    I too have mouth sores! I was diagnosed with sle and discoid together about twenty five years ago. I have been having mouth sores lately alot. I have also been flaring so much it seems like...
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    oluwa I have ahd this happen to me a couple of...

    oluwa
    I have ahd this happen to me a couple of times. It;s horrable. The gas was so horrable that I started going outside to the garage! I have IBS, but it was deffinitly different. I didn't get...
  20. sick daughter

    Jen
    I also have a daughter, (16) sho has been having headaches for almost three years. Now the doctor says she's got bursitis in her hip. I pray to the gods that she isn't walking down the same...
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    I sure understand about the hair thing. It hurts...

    I sure understand about the hair thing. It hurts so bad, it doesn't even help to lay down because the pillow hurts my head. That is why I try to numb it first. I see a new neuroligist in a few...
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    I too get these headaches. They do feel like...

    I too get these headaches. They do feel like that. great description! I use a frozen ice pack directly on the skin. It numbs it pretty good. :!:
  23. I just had my eyes tested again because...

    I just had my eyes tested again because everything that was happening to them is getting worse. He said it was normal. WOW---Then what else could it be? All he told me was that it isn't the meds...
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    Saysuzie, So many questions

    Saysuzie,
    I have learned so much from your posts. Before i found this site, I was completely in the dark about everything that was happening to me. I read some info about plaquenol (however...
  25. Thread: Thank you

    by dlavietes
    Replies
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    427

    Thank you

    Thank you Saysusie, for helping me get back on line here. I was going crazy trying to remember. I appreciate it. Thank you.

    Diana
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