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Type: Posts; User: predcheeks

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  1. Replies
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    wow! you have to be careful! i am so worried...

    wow! you have to be careful! i am so worried about you that something else could happen while you are off the plaquinil that could be worse for you in the long term! i can't believe how hard it is...
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    tgal..thank you! looks like i'll be putting a...

    tgal..thank you! looks like i'll be putting a little more thought into going back to work so soon. i guess all i can do is take it one day at a time for now and have a serious talk with my rheumy. i...
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    i just went up on my prednisone and i'm wide...

    i just went up on my prednisone and i'm wide awake at 4:10 but feel like junk. thinking of you and hopefully it will get better for you soon!
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    thank you for replying. i have been so bummed...

    thank you for replying. i have been so bummed out..i got sick the day after i wrote that and was taken off of disability the same day. yucck!!! so now i have no job and no disability and feel...
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    Back to work?!?

    My doctor has given the ok for me to return to work! This is great news since i've been out on disability for almost a year now. I'm trying to stay positive and think of this as a new beginning but...
  6. hi luka.. just wondering if eating food rich is...

    hi luka..
    just wondering if eating food rich is potassium helped with the bloating? i'm also sick of the prednisone side effects and would love a quick fix:)
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    Thank you! I am very thankful it's just gastro. I...

    Thank you! I am very thankful it's just gastro. I had to get a stomach emptying test also..I had to eat eggs with radioactive dye in them then they watched to see how fast my stomach was...
  8. note my name-predcheeks!!..i just saw pics from a...

    note my name-predcheeks!!..i just saw pics from a friend's wedding and i didn't even look like myself..i look so puffy! it's not fun seeing yourself puffy in pics! i'm recently down to...
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    Hi June, It usually takes about 2-4 weeks from...

    Hi June, It usually takes about 2-4 weeks from the 2nd dose for the Rituxan to start working for me. I was able to wean my steriods 2mg last round of Rituxan. i'm at 6mg now and am aiming to get...
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    Turns out it's gastroperesis. I have to 'drink'...

    Turns out it's gastroperesis. I have to 'drink' my food for a while..i've been feeling a lot better since changing to liquids. I had it before but i had no idea it could cause pain like that! thank...
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    I called the oncall dr again and my doctor is...

    I called the oncall dr again and my doctor is on..so I'm just waiting for a call back--hopefully he'll have some good advice.Thanks for your help!
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    left shoulder pain and left abdimon pain

    i've had sharp left shoulder pain and left abdimon pain for about 5 days now. they both hurt worse when i eat pretty much anything. i called the oncall dr over the weekend and i'm pretty much stuck...
  13. debbie,how are you doing??i'm happy you made it...

    debbie,how are you doing??i'm happy you made it through your first dose. i remember feeling very weak the day after. don't forget to keep yourself hydrated..gatorade was my best friend. i agree with...
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    finally someone else on rituxan! i started out...

    finally someone else on rituxan! i started out with every 6 months but this time i needed it sooner..4 months. what is thyroxine used for? i talked with the infusion nurse last week and she said lots...
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    i started rituxan as a last resort and it has...

    i started rituxan as a last resort and it has been helping but definately scary since it was never approved for lupus. i wish there was something to help the pain and fatigue inbetween treatments!...
  16. hey..don't freak out!!!!..you will be finnnne!! i...

    hey..don't freak out!!!!..you will be finnnne!! i would say eat dinner then take it..something on your stomach is probably a good thing. i took it before bed..so i would say that's also a good...
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    anyone else take rituxan?

    i have had rituxan 3 different times now. it has been working great once it kicks in but when it wears off i'm completely exhausted and my joints hurt so bad! does anyone have any tricks for when it...
  18. first of all you are very strong for having kept...

    first of all you are very strong for having kept that schedule! i don't know how you do it! maybe you should explain to your doctor that you are concerned about the possible side effects and your...
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    i love the wii fit..you can pick your exercies...

    i love the wii fit..you can pick your exercies and you start out at the easiest level so you can see if your joints are effected by it before moving up levels.
  20. I was on methotrexate for about a year. It had to...

    I was on methotrexate for about a year. It had to be taken the same day everyweek but after checking with my dr..it was ok if it was a there were a few hours difference each week. One week I forgot...
  21. Thread: hi everyone

    by predcheeks
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    yes, it's prednisone lovely how it does that?...

    yes, it's prednisone lovely how it does that? good for many things..but puffiness isn't one of them! thanks for the welcome:)
  22. Thread: Head Pain

    by predcheeks
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    mine sound more like the 'lupus headaches'. ouuch...

    mine sound more like the 'lupus headaches'. ouuch yours sound painful..does anything help?
  23. Thread: Head Pain

    by predcheeks
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    I get migraines also but have recently been...

    I get migraines also but have recently been getting headaches like you just described! Mine come every month so i'm assuming it has something to do with pms..anyone else have this and does anything...
  24. Thread: hi everyone

    by predcheeks
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    hi everyone

    I'm new to the group but not to lupus..I've had SLE for about 10 years now. I have my good days and bad days. I hope to find people to chat with to help make the 'bad days' a little better.
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