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Type: Posts; User: lizzybee

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  1. Replies
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    cell cept

    Hi miss sunshine,

    Im coming off a high dose of steriods was on 60 now down to 25. because of my kidney involvement my doc put me on cellcept, just wondering if you can be on cellcept and be off...
  2. be brave

    Hi Sarapie,

    The thought of lupus is scary for anyone. I rememeber when I first started getting symptoms and everyone told me no it couldn't possibly be lupus. when I was diagnosed it was a shock...
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    PHEW!

    I am going to the docs tomorrow for an ulcer in the gynny region and I am so glad I am not alone. I felt like a freak and felt awful when my partner of 5 years wanted sex and I so wasn't up for it...
  4. Thread: Cell cept

    by lizzybee
    Replies
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    2,663

    prednisone and cellcept

    Does anyone know if you can be on cellcept without being on steriods??
  5. Thread: Cell cept

    by lizzybee
    Replies
    11
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    2,663

    what is IUD??

    I have never heard of that contraceptive, but maybe that because I live in Australia. Is it a pill or injection?? I was on the IMPLANON which is a tiny rod in your arm but it was having bad effects...
  6. meds

    Well after my flare up I have been put on some new meds, cellcept being the major new one. I am also on prednisone (but so is everyone - nothing new their) also on resprim (an anti-biotic) blood...
  7. Thread: Cell cept

    by lizzybee
    Replies
    11
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    2,663

    than you

    thank you both for your response.
    I do want to have children one day and I just wanted to know that the meds i am currently on wil not interfere with that wish, i want to have children at a young...
  8. Replies
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    me too!

    HI miss sunshine,

    I too was diagnosed at a young age, 21 in fact I had just graduated from university and I couldn't accept the fact that my friends and class mates were out living their lives to...
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    it will get better

    i know thats not easy to believe right now but it does get easier. somehow you learn to cope with all the medication, the routine of appointments and the changes your body goes through. my hair has...
  10. quick reply

    Hi Michelle,

    I have never heard of the meds you are on, the thing that gets me about lupus is that it effects everyone so differenlty, i guess thats the frustration with this disease. yeah i try...
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    thanks for replying

    Thanks to those guys who replied to my new zealand query. I am very aware that there are no cures or 'quick fixes' for lupus, believe me I was diagnosed 2 years ago and my fight is far from over. I...
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    new zealand hot springs

    It's lizzy from Australia again! After my recent lupus flare up my family are keen to send me to new zealand to visist the hot springs in rotoura. is this just a myth or does sitting in hot springs...
  13. Thread: Cell cept

    by lizzybee
    Replies
    11
    Views
    2,663

    Cell cept

    After a recent flare up I have been put on cell cept. I am concerned about the lack of research done on women who would like to have children. I have so many questions - will I be able to stop taking...
  14. Finally Admitting I have Lupus - From Australia

    Hi my name is Liz and I hale from the land down under! After a significant lupus flare up (only 8 months since my last) I think I have to admitt I cannot keep living my life as if I don't have lupus....
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