Search:

Type: Posts; User: Desleywr

Page 1 of 11 1 2 3 4

Search: Search took 0.01 seconds.

  1. Thread: Long vent

    by Desleywr
    Replies
    9
    Views
    600

    This is something I wrote for an Australian...

    This is something I wrote for an Australian @Lupus group and how I cope with many friends and family do the same taking and never giving.
    This is a comment I posted on Lupus Facebook and I think it...
  2. Replies
    13
    Views
    1,278

    I went from being flat out and quite physical to...

    I went from being flat out and quite physical to not being able to hold a cup of coffee in a matter of three weeks. Left arm now five yrs later is still weak and weaker than the right. I have spent...
  3. Replies
    16
    Views
    1,074

    Exactly Mari Normal procedures most Drs can take...

    Exactly Mari
    Normal procedures most Drs can take the precautions for Lupus but my warning is for this extremely rare condition of Lupus - mesenteric panniculitis, which when first identified by a...
  4. Thread: Heat vs Sun

    by Desleywr
    Replies
    33
    Views
    6,057

    Poll: Just a question. This thread has had over...

    Just a question.
    This thread has had over 3,000 viewers and only 30 people answer the poll. Does this mean that most people on here don't have lupus or what?
  5. Replies
    16
    Views
    1,074

    I have been given a lot more info on mesenteric...

    I have been given a lot more info on mesenteric panniculitis. Well apparently there are only 400 people in the world with mesenteric panniculitis which is linked with lupus. It has flares and I have...
  6. Replies
    16
    Views
    1,074

    Well saw the surgeon for the second time after he...

    Well saw the surgeon for the second time after he got my file up re the two previous ops for hiatus hernia. Also saw the gastro. Well they would have to be an open up operation and they would have to...
  7. Replies
    16
    Views
    1,074

    Hi Marla The drug is Colchicine it is mainly...

    Hi Marla
    The drug is Colchicine it is mainly used for gout but it is also used for mesenteric panniculitis. This also links with the fat necrosis. I see the surgeon today so will let you know what...
  8. Replies
    16
    Views
    1,074

    Well sitting hear after being on the new drug...

    Well sitting hear after being on the new drug c.... For the past six weeks. Had to half it as I was getting toxic and now I have had extremely sore throat for over a months and now head and chest...
  9. Replies
    4
    Views
    563

    Hello! I also have the problem of turning bright...

    Hello! I also have the problem of turning bright red in the face as you described when I am active. I sometimes also go red in the neck and front of the chest also. I don't feel to tired when this...
  10. Replies
    12
    Views
    1,454

    Ahhh yes Labour pains! Well I don't get labour...

    Ahhh yes Labour pains! Well I don't get labour pain. I have delivered 4babies and on one occasion and felt pressure for 20min and on another I felt one contraction. Sorry Ladies! But I suppose that...
  11. Replies
    12
    Views
    1,454

    On bad pain days I have learnt to rest, take two...

    On bad pain days I have learnt to rest, take two panadol and one tramadol. I find that and I got this from the nurses in hospital, that if I use only one tramadol and take it with two panadol it...
  12. Replies
    16
    Views
    1,074

    Yes Marla It is an auto immune thing. I posted...

    Yes Marla
    It is an auto immune thing. I posted a paper to read under the thread in Lauris lounge under the title of c.... Treatment for mesinteric panniculitis. It has a good outcome so the risk of...
  13. Replies
    16
    Views
    1,074

    Thanks Saysusie Yes it is a lump but diag as...

    Thanks Saysusie
    Yes it is a lump but diag as Mesenteric panniculitis see thread on this the drug they are using is pretty dangerous for me so I am having bloods every two weeks and will be on it for...
  14. Replies
    61
    Views
    2,371

    I am so sorry for you and your family!

    I am so sorry for you and your family!
  15. colchicine in the treatment of mesenteric panniculitis

    I have cut and pasted my last two entries from my thread lupus profundis which would explain my nacrosis, but since then I have been given the above title diag. This includes my symptoms of dings in...
  16. Replies
    25
    Views
    2,713

    I feel that I should put this up under a new...

    I feel that I should put this up under a new thread as the diag has a different name for others who may have the same. So starting new thread colchicine in the treatment of mesenteric panniculitis....
  17. Replies
    25
    Views
    2,713

    Next morning, I feel some what eased as this new...

    Next morning, I feel some what eased as this new drug has sent me to the toilet 9 times in past 24 hrs which has givenme much relief at least. Stomach still swollen but not so much discomfort. The...
  18. Replies
    25
    Views
    2,713

    Well endoscopy done no further changes which is...

    Well endoscopy done no further changes which is good, stomach still very swolen, found a new fat necrosis in the breast, lump in the stomach, saw dermatologist she not sure, gastr Dr has put me on...
  19. Replies
    6
    Views
    221

    Happy post birthday! It could still be your...

    Happy post birthday! It could still be your birthday somewhere in the world.
  20. Replies
    25
    Views
    2,713

    Just about to leave for hospital but had to...

    Just about to leave for hospital but had to share. Last night my husband bought home for me a box of special Turkish delight and as I only have about 5% taste and smell I was delighted as I get most...
  21. Replies
    25
    Views
    2,713

    Thanks Carli My gastro dr who is very...

    Thanks Carli
    My gastro dr who is very knowledgeable says some gout drugs are used for profundis? Thank you for your support I do very much appreciate your comments. Off in 12 hrs for op so will put...
  22. Replies
    25
    Views
    2,713

    Thanks Derrie I really appreciate your support...

    Thanks Derrie
    I really appreciate your support thank you.very much! I have my own iPad not so lucky for the hospital to supply. I am also very lucky with the team of drs who are looking after me,...
  23. Replies
    9
    Views
    695

    I have found that I have to listen to my body and...

    I have found that I have to listen to my body and ask it what I am capable of that day! After assessing what my capabilities are for the day then I can work out what is a priority and what can be put...
  24. Replies
    25
    Views
    2,713

    Ok latest update. I go into hospital in 30hrs I...

    Ok latest update. I go into hospital in 30hrs I had to wait as I am onplavix - anticoagulant. I have had massive problems in getting food down and digesting it and then passing it over the past few...
  25. Replies
    14
    Views
    2,073

    I had the same but after taking it with food it...

    I had the same but after taking it with food it gradually eased the sickness and this took under two weeks. Hope it gets better. Another thing I take is peppermint tea to settle my stomach. Good luck...
Results 1 to 25 of 270
Page 1 of 11 1 2 3 4