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Type: Posts; User: girlsquirrel71

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    Rheumy appt

    I went to see the rheumy today. I am down to 15 mg of prednisone and will "hopefully" be completely off in another month. Things look good and he seems pleased with my progress. still taking...
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    Billie- first let me say welcome to the group. ...

    Billie- first let me say welcome to the group. There is alot of useful information on this page that should make you feel not so alone. I was diagnosed with lupus in October, and don't share the...
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    I know prednisone is a great drug, I think at...

    I know prednisone is a great drug, I think at this point though my body is telling me by my sugars running high, (they weren't this bad when I was having a flare) that its time to come off, I am so...
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    feeling off balance

    Thanks for the info, I know prednisone is a great drug, but it does come with consequences. I think my vertigo is kicking in as well, usually right before christmas, so I will check with the doc...
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    Having an off day

    Maybe its me, or maybe I am coming down with something. I have been weaning myself down on prednisone, I am down to 15mg a day. and I noticed yesterday and today I feel off balance, and not quite...
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    Support

    WD-
    Welcoome to the message board, I think you will find the information here very helpful. I too was diagnosed with Subcutenous cutenous Lupus in November and was out of work for several weeks...
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    Cellcept

    Ok- at my last rheumy appt the doctor prescribed Cellcept. After a week of phone tag with the insurance companies it was finally approved for me. Has anyone taken this for Cutaneous lupus?? I am on...
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    Call Now!!

    you should absolutely call your doctor. My rash started small and wound up encompassing my entire body (EVERYWHERE!!!) If it wasn't for the prednisone and antimalerial I would have gone crazy. I...
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    Thanks!!

    Thanks for all your info :D I went to my second rheumy visit today. He thinks I look much better than I did two weeks ago and can finally go back to work tomorrow!!! He is decreasing my prednisone ...
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    Some new questions!!!

    Hi everyone-
    I am back with more questions. My rash is FINALLY under control, no more massive uncontrollable itching. HOWEVER every where my rash was ( as I like to call it my "winter" tan) I am...
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    Thanks for info

    I just wanted to say thank you to all of you who have given me some recommendations to get through this "itchy" period. The Sarna is a god send!!! I also love the kiss my face products, when i go...
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    Medications answered

    Jothebrit- I take both medications you are speaking of right now. I have been on them for a month. HOPEFULLY your rheumy told you that you need to see an opthamologist, to get some baseline...
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    Miserable (day to whine)

    I am absolutely miserable today. :evil: The rash is now under my boobs and arm pits!!! :twisted: my fingers feel tight, the only new thing is the rash isn't raised any more, I am on alot of...
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    finally good news!!

    I had my rheumotology appt this afternoon. He confirms the other tow doc's that I have subcuteanous lupus, non scarring. I am back on a heavy dose of prednisone and plequenil, and I am off from...
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    appt

    I have my rheumatologist appt tomorrow at 330. I cant wait to hit him with all my questions. I am looking particularily attrative right now with this rash on my face. I am so depressed this...
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    ok yet another question

    Ok does this rash ever end, it started on my back and is now everywhere. I am taking the oatmeal baths, creams, and steroids, does it ever end???
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    Kiss my face

    Where can I find that line of product??? I decided not to try the hot tub until my rash is under control, and I guess I will stock up on the fake tanners!!! thanks for the info!!!!! :wink:
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    Reply to TracyDawn

    Thank you so much for the words of wisdom, I was off the prednisone for 5 days and the rash seems to have a mind of its own now. This may seem silly but you may know, if I have to stay out of the...
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    Newly diagnosed and angry

    I recently developed a rash on my back that looked like ring worm, I was tested for lyme titer, came back negative, was sent to a dermatologist that took a biopsy and blood work came back + for...
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