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Type: Posts; User: kelibeli

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  1. Replies
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    I've not taken Neurontin. My dad takes it for...

    I've not taken Neurontin. My dad takes it for nerve pain. He said it helps him, but only with nerve pain...not muscle or joint pain.

    I have tried Lyrica for nerve pain and hated the way it made me...
  2. Thread: fevers

    by kelibeli
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    984

    I have been running a low grade fever on and off...

    I have been running a low grade fever on and off for a while. I don't have cold symptoms either or swollen glands that I can tell. Just the fever. It generally runs between 100 and 101. It comes and...
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    Thanks, I decided not to go. I am feeling a...

    Thanks,
    I decided not to go. I am feeling a little better today. Tomorrow I'll figure out if I need to go see the doc.
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    Opinion Needed

    So I need an opinion on whether I should go to the doctor or ride this out for a few more days:

    Two nights ago I went to bed with a sore throat. I get a really dry mouth/throat from Sjogren's so I...
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    Solesinger has a good point. The...

    Solesinger has a good point. The numbness/tingling etc varies with me as well. I have certain points on my body where it happens more often than others but it is random and varied. If she is always...
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    yxhewc, If your g/f is in pain during the day,...

    yxhewc,
    If your g/f is in pain during the day, there is a good chance it doesn't magically disappear when she goes to sleep. Have you ever pulled a muscle really bad? If you have, you know the pain...
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    I agree that there are a lot of little things...

    I agree that there are a lot of little things that can make a big difference. The difficult part is that those "little things" are going to be different for everybody. We all need to experiment and...
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    From everything I have learned from people on...

    From everything I have learned from people on this site it's not too uncommon. I have also read a lot of articles that indicate many women experience flares with PMS.

    Like you, my symptoms worsen...
  9. PattyLatty, This is one of the most difficult...

    PattyLatty,
    This is one of the most difficult things to deal with. Like Saysusie said, there is no "Lupus diet". However I have found that I am very sensitive to certain foods and some foods will...
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    Before I was diagnosed my family doctor also had...

    Before I was diagnosed my family doctor also had me try Effexor. He said it's a "cure-all". I was skeptical but desperate and agreed to try it. The stuff is just aweful. I had every side effect...
  11. Tracy, Here is a thought about the visual...

    Tracy,
    Here is a thought about the visual disturbances:

    Do you think it could be painless migraines? I get migraines with pain, but before the pain hits I get an aura. My vision is severly...
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    Oh yeah, the teeth thing. Sometimes I get which...

    Oh yeah, the teeth thing. Sometimes I get which symptoms belong to which disease confused. I have Sjogren's in addition to Lupus and this is a Sjogren's thing. A very dry mouth can breed bacteria...
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    Nessie, You are in the most difficult spot right...

    Nessie,
    You are in the most difficult spot right now. It's very hard to be feeling so sick and not know for sure why. It took six years for me to be diagnosed properly. I went through a couple of...
  14. I have been in a flare for 6 months now. It is...

    I have been in a flare for 6 months now. It is very frustrating that despite taking my meds and doing what the doctor says I still feel so tired and achy. Every doctor visit seems to go well though....
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    Michele, Saysusie is right. You do need to find...

    Michele,
    Saysusie is right. You do need to find a rheumatologist. My rheumy told me that some people are mild enough that they don't need any treatment except making some lifestyle changes. However,...
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    This sounds like something I have gotten. I have...

    This sounds like something I have gotten. I have scalp pain but this is different. It feels like my skull is hurting, under the skin. I have gotten it in my temple region. I couldn't tell if it was...
  17. Thread: Scalp pain???

    by kelibeli
    Replies
    8
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    4,852

    Re: itchy scalp

    My problems with the sulfates came on pretty suddenly after using normal shampoo all of my life. Every body is different. Rather suddenly I became very sensitive to a huge variety of chemicals in...
  18. Thread: Scalp pain???

    by kelibeli
    Replies
    8
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    4,852

    My scalp often hurts. I get scaly lesions that...

    My scalp often hurts. I get scaly lesions that cause soreness but don't itch. I wish I could say what I have is dandruff but it's not really flaky, it more like small pencil eraser sized scabs. It...
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    Thank you very much. Your replies are always so...

    Thank you very much. Your replies are always so thorough and helpful. I saw a reply you posted to Wingless about going to Paris. Wow! You are a wonderful resource and very appreciated!
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    Symptoms and PMS

    A few books I have read mention that it's possible to have a worsening of symptoms, monthly, based on your menstrual cycle. This seems to be the case for me and I wonder if any of the other ladies...
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    Thank you Saysusie. This is helpful. I guess I...

    Thank you Saysusie. This is helpful. I guess I didn't realize a person could have both DLE and SLE.
    -Kelli
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    Skin Lesions with SLE

    I am hoping somebody has some insight on this. I keep forgetting to ask my rheumatologist about it:

    I have SLE and for the past 5 or 6 months I have been getting skin lesions on my upper arms....
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    A very wise woman said to me once that God only...

    A very wise woman said to me once that God only puts on us what we can handle. Therefore, I choose to believe that we Lupies, who tend to get little sympathy from the general public, are stronger...
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    Hi ema1976, Welcome to the forum. Glad to hear...

    Hi ema1976,
    Welcome to the forum. Glad to hear you finally had a doctor listen to you. I went through a lot of doctors over the years that blew me off as well or that would only treat my present...
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    Re: Veganism and Lupus??

    I have done a lot of diet research. I have spoken with many doctors about it and a holistic nutritionist. Here is what I come up with:

    The reason a vegan diet could be helping you so much is that...
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