Search:

Type: Posts; User: SwirlyGirly

Page 1 of 2 1 2

Search: Search took 0.01 seconds.

  1. Replies
    38
    Views
    6,556

    Hi there, I've had lupus since I was 13, that...

    Hi there,

    I've had lupus since I was 13, that is a total of 22 years now. I also have fibromyalgia. I completed my BA and my MS. Honestly, my BA took a long time. I had some semesters I could...
  2. Replies
    7
    Views
    1,097

    I remember that feeling! Shingles are not fun! I...

    I remember that feeling! Shingles are not fun! I had a roommate, so it really cut into my nakid time. LOL I just remember it hurt to sit or lay or anything. I recall actually falling asleep on...
  3. I have had lupus for 22 years and have NEVER...

    I have had lupus for 22 years and have NEVER tested positive for an ANA. For the first 5 years they had it listed as a severe mixed connective tissue disorder, because I was sick so young I think...
  4. Replies
    7
    Views
    1,097

    Chicken Pox?

    Hello all,

    I'm curious how many people have had bad reactions to chicken pox in their lives? I first got chicken pox when I was 2. My mom says it was rather mild. I got it again when I was 10. ...
  5. Replies
    5
    Views
    1,385

    I'm down to 400 mg a day *YAY* I was a bit...

    I'm down to 400 mg a day *YAY* I was a bit nervous but followed the docs orders. It seemed like it was a fast taper down to me. I'm actually feeling um okay. lol Not quite good, but not exactly...
  6. Thread: Dry Mouth

    by SwirlyGirly
    Replies
    3
    Views
    885

    Thank you so much! I have never heard of such a...

    Thank you so much! I have never heard of such a thing. I'm going out to find it now! woohoo Thanks!
  7. Thread: Dry Mouth

    by SwirlyGirly
    Replies
    3
    Views
    885

    Dry Mouth

    Hello all,

    I've recently been sporting a very dry mouth. It is more like my tongue is dry. I can feel saliva under my tongue, but my tongue gets stuck on the roof of my mouth. I know that...
  8. Replies
    85
    Views
    17,862

    I have been keeping a log on my temps and some...

    I have been keeping a log on my temps and some symptoms for several years. I'm also a low temp person. Mine averages 96.3. When my lupus flares I get fevers, high fevers. I hallucinate when it...
  9. Thread: Hair Loss?

    by SwirlyGirly
    Replies
    15
    Views
    2,344

    In having lupus for 22 years now, I have lost my...

    In having lupus for 22 years now, I have lost my hair 3 times. The first time it began growing in while it was still coming out. I believe it had started to come out at the root, then as the meds...
  10. Replies
    5
    Views
    1,385

    Prednisone and steriods in general

    Hello all,

    I've been on prednisone for almost 22 years straight. I've had small periods in the past 4 years where I actually got all the way off... then would have to get put back on. I've had...
  11. Replies
    39
    Views
    6,507

    Susan I love your pamper yourself idea! I'm...

    Susan I love your pamper yourself idea! I'm definitely going to try that one!

    Jody, Have you ever looked into voice recognition software? Last time I tried one (over 5 years ago) they were still...
  12. Replies
    39
    Views
    6,507

    Ohhh I thought of another. I use masking tape to...

    Ohhh I thought of another. I use masking tape to wrap my toothbrush and any other smallish thing that I have a hard time holding on to. They do make grips you can buy that help, but I find they...
  13. Replies
    10
    Views
    1,814

    All these wonderful people have given great...

    All these wonderful people have given great advice, I don't have much to add. I just wanted to welcome you!

    Take it one day at a time.
  14. Replies
    39
    Views
    6,507

    Tips and Tricks

    Hello all,

    I'm curious what tips and tricks do you have to get through your daily life on your "bad" days?

    For me I live alone so I've gotten creative over the years.

    I have a tow strap...
  15. Replies
    7
    Views
    1,187

    I know you feel like you are in a very weird...

    I know you feel like you are in a very weird place right now. I would just go with the flow and be honest with the doctors about your symptoms, even the ones you don't think are a big deal. It...
  16. Replies
    8
    Views
    1,266

    Awwww I know that feeling. Let the gates open...

    Awwww I know that feeling. Let the gates open and get all the tears out! I always feel a bit better after a good cry. Heck, I'll cry with you!! Maybe we will both feel better.

    I would double...
  17. Want It Gone: I'm sorry you are feeling so...

    Want It Gone: I'm sorry you are feeling so crappy! For me there is so much cross over between the lupus and the FM I don't know what causes what most of the time. Since both lupus and FM can cause...
  18. Thread: CA members

    by SwirlyGirly
    Replies
    17
    Views
    8,768

    Which is exactly why I'm so glad I found this...

    Which is exactly why I'm so glad I found this place! **group hugs**
  19. Hey sick n tired, do you know you can get a note...

    Hey sick n tired, do you know you can get a note from your doctor saying you have lupus, you can get a front of the line pass at disneyworld and disneyland? I would recommend getting the wheel...
  20. Replies
    24
    Views
    3,443

    Yeah, I shoulda calmed down a bit before...

    Yeah, I shoulda calmed down a bit before responding. Just brought up some memories for me. I usually ask the doctor how long it should take for medication to begin to be effective. Then I double...
  21. Replies
    24
    Views
    3,443

    So not fair I take my meds very accurately and I...

    So not fair I take my meds very accurately and I haven't missed a pill in over 6 months, and my tests are all screwy all the time! :?

    SITC, you really need a diffferent doctor! I give new meds...
  22. Hey Faith, I'm in Manteca. Where abouts are you?...

    Hey Faith, I'm in Manteca. Where abouts are you? Are you handling the heat okay? I've already had heat exhaustion! Sheesh!
  23. Thread: CA members

    by SwirlyGirly
    Replies
    17
    Views
    8,768

    Hello all Cali members! I'm further north... I...

    Hello all Cali members!

    I'm further north... I am an hour south of Sacramento, an hour east of San Fran. Little town called Manteca. I have gone to two local support groups and was asked to...
  24. Replies
    17
    Views
    2,337

    Awww great! I'm so glad that there are some...

    Awww great! I'm so glad that there are some smart allecks here! I don't know why, but that just makes me happy. :lol:

    Oh and Bugs, usually try to hid from the rain, going into overhangs, under...
  25. I think that is interesting that sleeping...

    I think that is interesting that sleeping problems may have an impact. I actually had a doctor mention FM to me several years before my Rheumy. I was at a sleep clinic. I have several sleep...
Results 1 to 25 of 35
Page 1 of 2 1 2