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Type: Posts; User: erinnlee

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    NO NO NO

    OMG. Please don't get the shot. Just, please... don't.

    I got it on the advice of my Primary Care about 5 years ago. It is administered during your period, and by the time I left her office, my...
  2. Thread: swollen hand

    by erinnlee
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    918

    hand swelling

    The swelling in my hands and shoulder joint pain is usually my first sign of a flare. In fact, it just started hapenning again recently, so I am making my appt today...

    I look like I have...
  3. Thread: headaches

    by erinnlee
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    1,041

    thanks

    Thanks Chal,

    I'll check it out. I have spoken to my rheumatologist about it, and he has told me to take 2 tylenol + 2 naprosen. But it doesn't seem to work. I told him it wasn't working and he...
  4. Thread: headaches

    by erinnlee
    Replies
    3
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    1,041

    headaches

    I get the most awful headaches. They can last between just a few hours and 3 days! I talked to my doctor and he said to take Tylenol and Aleve, and to get plenty of rest, but even when I do that, I...
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    Stress and Lupus

    Butterfly,
    Yes stress makes Lupus worse. I've been sooo stressed these past few months with no end in sight. And THEN I started losing my hair, which only started causing more stress, and weight...
  6. if it would help

    MommyMc,

    If you thinkit would help, I have a few extra of the purple band bracelets that benefit lupus, she could pass them out to a few teachers or friends at school to help them be aware and...
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    books about Lupus?

    It was good, It was co-written my my rheumatologist about 15 years ago (I think) but all of the information is pretty up-to-date because not much haschanged in terms of treatment, etc (sadly) in the...
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    i wonder

    Sole singer,
    I wonder if you couldn't find someone to do a cool painting or drawing on your head for shows. Some sort of message or maybe the band loo. Then it will look like you're just making a...
  9. 13 year old things

    Anime is a type of japanese animation. There are a lot of ways to get into it, comic books, movies, drawing styles. It tends to appeal to a lot of kids because it is fun.

    Blythes are kind of a...
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    Books about Lupus?

    Has anyone read a good book about Lupus?

    I just finished In Search of the Sun...
  11. What about something outside of school?

    If she is not feeling well enough to do things inside of class/school. How about something that she can do remotely with people she doesn't have to deal with on a physical level? I did a lot of...
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    Hair loss

    My MIL wears a wig and it looks stunning. She's been wearing one since she was in her early 30's. No one knows, but very close family.

    I've cropped my hair so short that the next step will be to...
  13. Thread: Pets?

    by erinnlee
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    petz

    We have three dogs :)

    Eliza, A mixed breed husky/border collie, age 4 http://i10.photobucket.com/albums/a122/erinnlee/eliza2005_sm.jpg

    Dante, a boston terror (terrier) age 1...
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    i haven't noticed yet..

    LOL. Mine will take a while to grow back. It was kind of apalling though, the stylist cutting it asked why I was cutting my nice, long hair, and when I replied that I was losing it due to Lupus, he...
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    what is DHEA???

    what's DHEA?

    I'm meeting with myspecialist tomorrow to discuss recent stuff (hair loss, weight gain, energy loss, stress and depression).

    Right now I'm only on HQC (hydroxychloroquinine), but...
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    just a newbie saying hi!

    Hey, can I just say I am VERY glad there is an active forum for Lupus? I am 30, female, and currently in remission (fingers crossed). I was diagnosed three years ago when I was fatigues, stressed out...
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    hey pink pixie!

    I'm a newbie here too, and almost 3 years ago I was diagnosed with lupus. The news felt like getting hit across the back of the head by a 2x4!

    Unlike you, I didn't tell anyone for a while. It...
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    sickness

    My doctor put me on an anti-nausea drug for the first few months (cymetidine, i think it was) and I started to get in the habit of eating a banana and a glass of milk or drinking a glass of metamucil...
  19. Thread: Remission?

    by erinnlee
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    1,718

    remission

    I am in remission, but am still required to take hydroxychloroquinine. I still have aches and pains, and a few other syptoms (Raynauds, hair loss, moods, depression) but at least I'm not seriously...
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    my body feels like it is made of lead

    This morning I woke up and my body seriously felty like it was made of lead. My brain was in full speed, but my body was in slow motion. Has anyone else felt like this? Is there anything I can do?
  21. Thread: exercise

    by erinnlee
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    i like yoga

    the thing i like most about yoga is that you get a good workout and a small nap is built in at the end! no one minds if you fall asleep because it is so relaxing!
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    thanks guys!

    I'll definitely look for it! Thanks. I should take a before and after for kicks....

    My husband is kinda excited about it. When he met me my hair was short, red and spiky, it's now halfway down my...
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    Hair loss. I figured it out>

    I have long hair, and have been losing it rapidly over the last few weeks. And it's gotten me down. My husband suggested a haircut might help, something funky, and I figured, sure, why the heck not. ...
  24. Thread: exercise

    by erinnlee
    Replies
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    3,438

    excercise

    I do a little treamill at a mediumpace (20-30 minutes a day) and light weights. I find that stretching really helps, and sometimes I'll just sitdown with a magazione, orin front of the TV and stretch...
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    having the same problem

    I have been having the same problem for the last month. It's a little scary. I'm trying to get more rest, eat well and excercise regularly. I've done a little research, and sometimes as hair loss can...
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