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    exhausted today and the malar rash has popped up...

    exhausted today and the malar rash has popped up again. i'm reading that the fasciculations can be related to CNS lupus and this could also explain my dizzy spells and some other symptoms such as odd...
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    what were the stressors in your case and how did...

    what were the stressors in your case and how did the disease present itself? i was under extreme stress due to a reaction to the teeth and these 2 factors probably caused it for me. there's a lot of...
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    did there seem to be a trigger for lupus in you...

    did there seem to be a trigger for lupus in you guys? for me it was an allergy or sensitivity to a dental material, i'd shown no signs or symptoms for 21 years but my immune system was hyperactive...
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    sorry to hear your appointment went so badly. i...

    sorry to hear your appointment went so badly. i can imagine that being really frustrating when you wait so patiently for time with a rheum. my doctors have said they'll retest in a few months but...
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    sorry, i appreciate the advice and support. i...

    sorry, i appreciate the advice and support. i just don't see what else can cause a malar rash and migratory joint and muscle pains with fatigue. i know people go years looking for answers but it's...
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    they;ve settled down now. i'm feeling really...

    they;ve settled down now. i'm feeling really suicidal today. i can't keep going on with no answers in this much pain and so tired 24/7. i know it's lupus i'm just waiting around in agony to have it...
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    i literally don't see what this can be except...

    i literally don't see what this can be except lupus. i have aches and pains fleeting all over my body and i've had the malar rash before. the twitching doesn't seem typical of lupus but maybe it's...
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    i'm just wondering if all over muscle twitching...

    i'm just wondering if all over muscle twitching is a symptom people experience?
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    yeah i've had ANA 3 times, ENA, and every other...

    yeah i've had ANA 3 times, ENA, and every other test all negative. Sed rate doesn't seem very reliable for inflammation. I've took a picture each time and they said it doesn't look like the malar...
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    have you had any testing done yet? my symptoms...

    have you had any testing done yet? my symptoms all began following root canal treatment and i think i was sensitive to the materials but this is known to trigger an autoimmune response. i get that a...
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    thanks for the reply. my pain isn't like that but...

    thanks for the reply. my pain isn't like that but some nights it just jumps about all over my body. lupus seems to be the only thing that fits the description along with the fatigue and facial rash....
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    I see migrating joint pain as a symptom but I...

    I see migrating joint pain as a symptom but I don't really understand what it means. With my extreme fatigue and joint/muscle pains as well as the face rash I really thought it was lupus. The rash...
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    thanks for replying. i just don't understand what...

    thanks for replying. i just don't understand what lupus pain is like and what else could cause such a similar blotchy facial rash. my pain literally moves around the joints and muscles in my body and...
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    still no answers

    my doctors are now at the point where they wont order any further testing and they have completely ruled out lupus as a diagnosis. since getting ill in November with aches and pains, fatigue and a...
  15. Thread: so frustrated

    by mikey101
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    when you say your bloodworks fine what do you...

    when you say your bloodworks fine what do you mean? ANA negative? no antibodies or inflammatory markers?
  16. Thread: so frustrated

    by mikey101
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    the thing is i've only had a bad reaction to the...

    the thing is i've only had a bad reaction to the sun once and i was out far too long and hadn't been out in it for many months. It caused an outbreak of eczema that was itchy for about 30 minutes and...
  17. Thread: so frustrated

    by mikey101
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    just looked through old pictures and realised how...

    just looked through old pictures and realised how bad and blatant my malar rash is, it's not seborrheic dermatitis at all. the dermatologist didn't use a flourescent stain test on my biopsy and i got...
  18. Thread: so frustrated

    by mikey101
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    i went out in the sun the other day for hours and...

    i went out in the sun the other day for hours and was absolutely fine. i'm starting to think i may not have lupus for the first time in a long while and that it could be the toxic dental work causing...
  19. Thread: so frustrated

    by mikey101
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    as my tests have all returned normal and my skin...

    as my tests have all returned normal and my skin biopsy wasn't useful in showing lupus i have decided to pursue all avenues available to me and i'm seeking consultation with a biological dentist....
  20. Thread: so frustrated

    by mikey101
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    http://i61.tinypic.com/2wrhs1u.jpg...

    http://i61.tinypic.com/2wrhs1u.jpg
    http://i58.tinypic.com/4j86c2.jpg
    there are some photos of my rash when it flares up. it just seems so obvious that Lupus is my problem, not having any kind of...
  21. Thread: so frustrated

    by mikey101
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    it's so frustrating as although the biopsy showed...

    it's so frustrating as although the biopsy showed seborrheic dermatitis the rash takes a malar shape when it flushes and perfectly matches up to other photos i have seen of SLE rashes. My illness...
  22. Thread: so frustrated

    by mikey101
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    I saw a Rheumatologist privately after hassling...

    I saw a Rheumatologist privately after hassling my GP for a referral and he explained that my symptoms and bloodwork sound more suggestive of Post Viral Fatigue or CFS syndrome than SLE but referred...
  23. Thread: so frustrated

    by mikey101
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    It's so frustrating as I think I have NPSLE as...

    It's so frustrating as I think I have NPSLE as well and CNS involvement with my neuropathy. One of my first symptoms was overwhelming anxiety leading to panic attacks and I knew something was not...
  24. Thread: so frustrated

    by mikey101
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    so frustrated

    i had a biopsy done of my rash however on the day it wasn't flaring too badly. The results have shown seborrhoeic dermatitis which isn't what i have! my rash flares when my joint pains are at their...
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    Hi Steve, Thanks for the reply and advice. I'm...

    Hi Steve,

    Thanks for the reply and advice. I'm really struggling at the moment and constantly feeling ill and tired is sending me into a deep depression, I have sought psychiatric help as this...
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