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    I start Cytoxan today

    I stard Cytoxan today. I am very nervous. Everything that I have read tells me that it can be very halpful in slowing down the progression of SLE, but I am still afraid. I would like to hear...
  2. I am so happy to hear that things are getting...

    I am so happy to hear that things are getting better for you St James. Thank you for your encouraging words. I start Cytoxan today. I am nervous, but you are right, I have too much to fight for.
    ...
  3. Things are Ok. My biopsy earlier this month...

    Things are Ok. My biopsy earlier this month showed that the nephritis has pogressed to stage 4. I had an MRI/MRA today looking for CNS vasculitis. I should get the results tomorrow. I see my...
  4. You guys are all amazing. Reading your stories...

    You guys are all amazing. Reading your stories gives me strength to continue to fight this. I pray for all of you. Thank you for being such warriors in the face of this cowardly invader.
    ...
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    I live in Fl and over 4 you do not legally need...

    I live in Fl and over 4 you do not legally need to have your child in any restraint other than a seatbelt. All states are different, and the booster seat is always safer. Hope this helps.
  6. Thanks for all the info.

    Thanks for all the info.
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    Thanks for taking the time to explain how to post...

    Thanks for taking the time to explain how to post the pictures. Like I said earlier, my sister just did it for me. You explination will help me do it and hopefully help others. Thanks again.
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    Thanks. That picture was taken February 18 on my...

    Thanks. That picture was taken February 18 on my daughters second birthday and my son just turned 8 this week. They are everything to me. They keep me fighing every single day. My biggest prayer...
  9. I got my kidney biopsy results Wednesday. I am...

    I got my kidney biopsy results Wednesday. I am at stage four now. They want to start treating with Cytoxin now. All of this is scary. All the meds that I am currently on have done nothing. It...
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    I have been on Cellcept scince October, and it...

    I have been on Cellcept scince October, and it dosn't seem to be helping me at all. Lupus has flared bad despite the med.

    I have one question. Were you guys told to take it on an empty stomach?...
  11. Thank you for your response. I did a goggle...

    Thank you for your response. I did a goggle search where I typed "plasma exchange lupus" and there were several arcticles about it. It may be promising in the future for people with very high...
  12. Dandoon, thank you for your reply. I...

    Dandoon, thank you for your reply.

    I mentioned the plasma exchange to my rhematologist on Friday and she said that she had never heard of it being used for lupus. I asked her about the Cytoxin...
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    My sister showed me how to do it, actually she...

    My sister showed me how to do it, actually she did it for me.
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    How do you add pictures?

    I have seen pictures added to some of the posts. Can anyone tell me how to do this? Thank you. Betsy
  15. Thanks for your reply Dina. Can you give me any...

    Thanks for your reply Dina. Can you give me any more info on plasma exchange? I am not familiar with it, but it seems to make sense. If the antibodies are what is causing the damage to my organs,...
  16. Angela and Jody Thanks for your kind words and...

    Angela and Jody

    Thanks for your kind words and prayers.

    "Mysterious" I like that. :P

    Betsy
  17. My life with SLE, Nephritis + and in bad flare

    Hello everybody. It is 5:38 AM here and I've been up scince 3. Can't sleep, I think it's the 55mg of prenisone I've been on for a few weeks now. I have sleeping pills, but I try not taking them...
  18. My rheumatologist and nephrologist were going to...

    My rheumatologist and nephrologist were going to talk a week ago and agree on a treatment. :shock: I still haven't gotten any answers from my Doctors? I called back Friday and still nothing. This...
  19. :D

    :D
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    I get kidney pain too. My doc says that it...

    I get kidney pain too. My doc says that it shouldn't hurt??? BUT IT DOES!
  21. Hello all. OK, I am more confussed now. I saw...

    Hello all. OK, I am more confussed now. I saw my rheumatologist at first he said that I didn't need to be treated any further. I then showed him my Lupus Book and he said that he didn't know but...
  22. If the organs aren't affected or only mildly...

    If the organs aren't affected or only mildly affected, antimalarials are usually used first. If there is a lot of inflamation steroids are also prescribed. Innunosuppresents and chemotheropy are...
  23. Missy and Solesinger Thank you for replying My...

    Missy and Solesinger
    Thank you for replying
    My dr explained things better today. She said that right now the lupus is attacking my kidneys, but that the damage was not bad yet scince all my...
  24. HELP confussed about focal proliferative lupus nephritis

    Hi, I am so confussed. I went to mt nephrologist today to get the results from my kidney biopsy. He told me that I have focal proliferative lupus glomerulonephitis. He said that it meant that the...
  25. Thanks for your reply. I felt better today after...

    Thanks for your reply. I felt better today after resting most of the morning. We played Cranium (a board game) today as a family.

    Have you ever had numbness? It started a few days ago in my...
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