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Type: Posts; User: Sheryl

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    I get the Nioxin at a store in the mall called...

    I get the Nioxin at a store in the mall called Trade Secrets - its sort of a Beauty Supply store. It's about $14 each for shampoo ("cleanser") and conditioner ("scalp therapy")
  2. I have that too. My mom also had it. I thought...

    I have that too. My mom also had it. I thought it was Restless Leg Syndrome.

    Now that I've been diagnosed with an autoimmune problem, I've started to see many signs that my mom might have...
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    Hi everybody - I haven't bee posting too much...

    Hi everybody - I haven't bee posting too much lately - I was on vacation in August, and when I came back, couldn't access the board for a week or so. :(

    I am going to ask for a thyroid test...
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    Yeah, arch. can be creative, it's just my...

    Yeah, arch. can be creative, it's just my particular job that is more administrative than creative.

    There are some beautiful old brick buildings in Spokane! I always enjoy visiting the...
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    Wow! What a bunch of talented people! I'm...

    Wow! What a bunch of talented people! I'm really impressed. I have very little artistic skill other than practicing architecture, which is really more about paperwork than designing buildings. ...
  6. Thread: Adventure!

    by Sheryl
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    Thanks Suzie! The funny thing was while I was...

    Thanks Suzie!

    The funny thing was while I was gone I realized I was not constantly thinking of my symptoms every minute, like it seems I am at home or at work. It felt great!
  7. Thread: Adventure!

    by Sheryl
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    Hi! I am back! Thanks for all the supportive...

    Hi! I am back!

    Thanks for all the supportive comments...

    We had a really nice trip, and everything went fine. I don't know now why I was so stressed out about it. :roll:

    The weather...
  8. Thread: Adventure!

    by Sheryl
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    Adventure!

    Hi all!

    I am heading out tomorrow on a three-day, two-night kayaking trip with my significant other.

    Before I got lupus this would have been just one more simiple activity. Now I'm really...
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    Sorry to hear the bad news, Butterfly! These...

    Sorry to hear the bad news, Butterfly! These setbacks get so depressing. I hope it is just a bump in the road and the WBC count comes back up for you.

    Keep us up to date on how it goes. Here's...
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    I can only say, it sounds serious and you should...

    I can only say, it sounds serious and you should see your doctor. It sounds like it could be a stroke, or mini-stroke (called TIA).

    Let us know what they say!
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    Peach, that is absolutely appalling that anyone...

    Peach, that is absolutely appalling that anyone could act that way. She should get an official reprimand for discrimination, in my opinion!
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    That was a very powerful poem - thank you so much...

    That was a very powerful poem - thank you so much for sharing it.
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    I am SOOO happy to hear this Buddha - Even horns...

    I am SOOO happy to hear this Buddha - Even horns are a good sign. :evil: :lol: :lol:

    I think that my drain clog was a little smaller today too. I have been using the Nioxin about the same...
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    Rach - I'm glad you went and had fun! That...

    Rach - I'm glad you went and had fun! That stinks about the pool water - when we went to mexico a few years ago it was that way - even in the water it wasn't cool! Weird.
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    Hi Julie - Sorry for all your terrible...

    Hi Julie -
    Sorry for all your terrible frustration! It can be hard finding a good doctor, it seems. Do you have a PCP (primary care provider) who is making recommendations or referrals?

    I found...
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    Hi Browneyedgirl - (Love that Van Morrison...

    Hi Browneyedgirl - (Love that Van Morrison song!)

    Welcome to the site... I hope you will find as much friendship and support here as I have. I have CNS lupus too. So far it is only affecting...
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    I was interested in your post, John, so I did a...

    I was interested in your post, John, so I did a little more Googling. It seems that LDN is also being tried out (not official trials yet) for people with MS who are getting some good results in the...
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    I'm glad it's going well for you two... I thought...

    I'm glad it's going well for you two... I thought the Nioxin was helping for a day or so, but it seems to be falling out faster than ever now. I've been using the Nioxin for only ten days.. and...
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    Welcome Ester - That is the CUTEST little...

    Welcome Ester -

    That is the CUTEST little smiley - I haven't browsed the extended selection before!
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    Hi - No I don't have a tremor (yet), but I've...

    Hi -
    No I don't have a tremor (yet), but I've heard a lot of people with APS do... interesting about the mono. I had a really bad tooth abscess about a month before I got sick. I think that...
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    Hi! That's a really good question - and...

    Hi!
    That's a really good question - and something I went through when I was diagnosed a few months ago - I just wrote a long post about it here this morning:
    ...
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    Long boring reply - sorry!

    Yeah, me too! I feel like a freak some days. :?

    The first indication that I had any problems was the end of March - I had a sudden attack of transverse myelitis - which is where your immune...
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    That is interesting - why did the area on your...

    That is interesting - why did the area on your leg go numb? Is it related to lupus?

    I have demyelation in my spine, which makes everything from the chest down numb. This happened in March, but...
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    All I know is that SSA (also called Anti-Ro) and...

    All I know is that SSA (also called Anti-Ro) and SSB (anti-La) are two of the many antibodies that people with lupus or sjogens may have. They seem to correlate with Sjogens specifically - which you...
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    Well, my sypmtoms are a little different - ...

    Well, my sypmtoms are a little different - numbness, and reduced feeling below the waist, so here are my "you know whens:"

    You know you have lupus when your shoe falls off and you don't notice...
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