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Type: Posts; User: AyahsClan

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    Hi Ritzy! For me the most difficult part of...

    Hi Ritzy! For me the most difficult part of chronic illness is that NOBODY truly understands what my body is doing to me because they just can not relate. It is what it is. Sometimes we have to be...
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    Sticky: Why don't our families appreciate our lupus fog...

    Why don't our families appreciate our lupus fog like our friends here lol...
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    Sticky: You know you have lupus fog when you get up to...

    You know you have lupus fog when you get up to get a glass of milk, get the glass, sit down, and have an empty glass in your hands. Then you stare at it for a second to deduce if you already drank it...
  4. Thread: the sun

    by AyahsClan
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    939

    I gave up on sunscreen because of allergies and...

    I gave up on sunscreen because of allergies and it didn't seem to help me much. What helps me is the UV protection clothing. You can buy them at www.coolibar.com or www.solumbra.com Not sure what...
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    Hi Kim, Sorry you are going through such a...

    Hi Kim,

    Sorry you are going through such a terrible time, it is like a knife in your heart when a child betrays a mother's love. I have 3 wonderful children but one of them is the exact opposite...
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    Sticky: You know you have brain fog when; You sneak...

    You know you have brain fog when;

    You sneak some of your husbands Reeses chocolate, it somehow ends up sliding down behind you on the sofa melting along the way finally ending up under your butt....
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    Oh dear Rob, love and hugs to you. Trigamengeal...

    Oh dear Rob, love and hugs to you. Trigamengeal neuralgia (sp) is the absolute worse pain on the planet. When mine flares it is like 30 open root canals and someone is pouring ice water in them. It...
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    Thank you!

    Well looky what the cat dragged in! I think you guys are the only constant in my life that I can never completely run away from when I get in my flighty run and hide phase. Thank you. I appreciate...
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    I woke up this morning fighting back tears and...

    I woke up this morning fighting back tears and sinking into a deep depression. There is more to the story regarding the step daughter I can't say. I had been planning this for so long. It meant so...
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    Thank you everyone for your thoughtful caring...

    Thank you everyone for your thoughtful caring posts. Bonus Mom, sorry you are going through a tough time right now. Relationships take so much work but the rewards should be friendship and emotional...
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    Marital Advice

    Sometimes lupus causes heightened emotions so I am seeking the counseling of a group of people I have grown to trust and care about. Tell me the truth about what you think, no matter what.

    6...
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    Thanks everyone, thank you Abbasgirl I'm going to...

    Thanks everyone, thank you Abbasgirl I'm going to check that site out tonight.
  13. Thread: A Good Song

    by AyahsClan
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    2,069

    Lookit all the girls you made cry Rob You...

    Lookit all the girls you made cry Rob

    You heartbreaker

    : )
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    Thank You Amanda, how is your jaw?

    Thank You Amanda, how is your jaw?
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    Blood Test Results

    Hello Everyone,

    I picked up my blood test to take to my Opthamologist appointment. The doctor GP had not told me anything except that my thyroid was low. Here are the abnormals I'm not so sure...
  16. Thread: A Good Song

    by AyahsClan
    Replies
    9
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    2,069

    http://www.youtube.com/watch?v=tLZAWtdFhio Has...

    http://www.youtube.com/watch?v=tLZAWtdFhio

    Has me crying. I'm going through such a bad time, worst yet. I guess it never gets better does it? I need my Jesus right now. I've been hiding from him...
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    Has she posted anything since the 1st? OMG my...

    Has she posted anything since the 1st?

    OMG my worry gene is amped up. Susie I know you have a family support system but if you need ANYTHING I'm not that far away and I got some great wheels for...
  18. @}-,-'-,-'-- Thinking about you.

    @}-,-'-,-'--

    Thinking about you.
  19. Thread: Apologies

    by AyahsClan
    Replies
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    1,525

    OMG you guys. You mean so much to me. After I...

    OMG you guys. You mean so much to me. After I read your posts all I can do is cry. I don't know what's wrong with me. Overwhelming sadness. Gentle feelings of joy knowing you are here. Seething anger...
  20. Thread: Apologies

    by AyahsClan
    Replies
    16
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    1,525

    Apologies

    Greetings and love to all my lupie friends, and the new members I haven't gotten to know. Please accept my apologies for being such a flake. You were all here for me when I needed a friend, but I...
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    {{Ritzy}}} Fibro is no joke but men often deal...

    {{Ritzy}}} Fibro is no joke but men often deal with pain and problems in this way. Are you in the sun while out swimming?
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    Your all Welcome, thanks to Twitter I get as it...

    Your all Welcome, thanks to Twitter I get as it happens lupus news. I'm a twitter junkie. What I like the most about the research is knowing I did not cause my lupus. It is not from anything I did or...
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    Benadryle is my buddy lol..love the stuff. For...

    Benadryle is my buddy lol..love the stuff. For the most part I am used to it, it doesn't even bother me, my new normal. The odd itching comes around maybe once or twice a year, not that bothersome as...
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    New Discovery in Autoimmune Research

    They are getting closer to

    "Scripps research scientists find key culprits in lupus
    Published: Monday, June 29, 2009 - 17:44 in Biology & Nature

    LA JOLLA, CA, June 29, 2009 The more than 1.5...
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    It is a weird feeling! I never know if there is a...

    It is a weird feeling! I never know if there is a bug crawling on me. Today it was my little fingers and that 1/3rd part of hand. Yesterday there was actually a spider on me but I ignored it thinking...
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