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  1. Thread: so frustrated

    by mikey101
    Replies
    25
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    802

    when you say your bloodworks fine what do you...

    when you say your bloodworks fine what do you mean? ANA negative? no antibodies or inflammatory markers?
  2. Thread: so frustrated

    by mikey101
    Replies
    25
    Views
    802

    the thing is i've only had a bad reaction to the...

    the thing is i've only had a bad reaction to the sun once and i was out far too long and hadn't been out in it for many months. It caused an outbreak of eczema that was itchy for about 30 minutes and...
  3. Thread: so frustrated

    by mikey101
    Replies
    25
    Views
    802

    just looked through old pictures and realised how...

    just looked through old pictures and realised how bad and blatant my malar rash is, it's not seborrheic dermatitis at all. the dermatologist didn't use a flourescent stain test on my biopsy and i got...
  4. Thread: so frustrated

    by mikey101
    Replies
    25
    Views
    802

    i went out in the sun the other day for hours and...

    i went out in the sun the other day for hours and was absolutely fine. i'm starting to think i may not have lupus for the first time in a long while and that it could be the toxic dental work causing...
  5. Thread: so frustrated

    by mikey101
    Replies
    25
    Views
    802

    as my tests have all returned normal and my skin...

    as my tests have all returned normal and my skin biopsy wasn't useful in showing lupus i have decided to pursue all avenues available to me and i'm seeking consultation with a biological dentist....
  6. Thread: so frustrated

    by mikey101
    Replies
    25
    Views
    802

    http://i61.tinypic.com/2wrhs1u.jpg...

    http://i61.tinypic.com/2wrhs1u.jpg
    http://i58.tinypic.com/4j86c2.jpg
    there are some photos of my rash when it flares up. it just seems so obvious that Lupus is my problem, not having any kind of...
  7. Thread: so frustrated

    by mikey101
    Replies
    25
    Views
    802

    it's so frustrating as although the biopsy showed...

    it's so frustrating as although the biopsy showed seborrheic dermatitis the rash takes a malar shape when it flushes and perfectly matches up to other photos i have seen of SLE rashes. My illness...
  8. Thread: so frustrated

    by mikey101
    Replies
    25
    Views
    802

    I saw a Rheumatologist privately after hassling...

    I saw a Rheumatologist privately after hassling my GP for a referral and he explained that my symptoms and bloodwork sound more suggestive of Post Viral Fatigue or CFS syndrome than SLE but referred...
  9. Thread: so frustrated

    by mikey101
    Replies
    25
    Views
    802

    It's so frustrating as I think I have NPSLE as...

    It's so frustrating as I think I have NPSLE as well and CNS involvement with my neuropathy. One of my first symptoms was overwhelming anxiety leading to panic attacks and I knew something was not...
  10. Thread: so frustrated

    by mikey101
    Replies
    25
    Views
    802

    so frustrated

    i had a biopsy done of my rash however on the day it wasn't flaring too badly. The results have shown seborrhoeic dermatitis which isn't what i have! my rash flares when my joint pains are at their...
  11. Replies
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    225

    Hi Steve, Thanks for the reply and advice. I'm...

    Hi Steve,

    Thanks for the reply and advice. I'm really struggling at the moment and constantly feeling ill and tired is sending me into a deep depression, I have sought psychiatric help as this...
  12. Replies
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    225

    Sick, tired and frustrated

    Hi everyone,

    I'm a 22 year old male and I began feeling ill in October with malaise and overwhelming anxiety and depression, this progressed to awful joint and muscle pains, fatigue and the...
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