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Type: Posts; User: Redhead

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  1. Replies
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    More questions about Nephritis and Cellcept

    Hi, I had posted a couple months ago that I have Class Three Nephritis. They have started me on Cellcept and Prednisone.

    If anyone has had nephritis and was put on Cellcept/pred, I would...
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    Help, I have Class Three Nephritis!

    I just got the biopsy results. I see my doctor Monday.

    So seriously ...

    I have three small children. Should I assume I won't live to see them into adulthood?

    How likely is it that I'll need...
  3. Life Alterations while on Cellcept, Cytoxan, etc for kidneys

    I am having a kidney biopsy in two weeks. Drugs like Cellcept and Cytoxan have been suggested based on the results.

    How horrible is it to be on those? I guess my two main concerns are:

    1)...
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    Do you tell other people about it?

    I was diagnosed about a year and a half ago after several lengthy hospital visits. So a lot of people in my church, etc, know all about my health problems.

    But ... I'm so tired of being known as...
  5. Need support and info from people with kidney involvement

    I have had 3-4 grams of protein in my urine for some time now, and am scheduled to have a kidney biopsy in two weeks.

    Here are some of my questions:

    What was your actual diagnosis?

    What meds...
  6. I DID lose my hair to the point that I had bald...

    I DID lose my hair to the point that I had bald spots and looked painfully bad. I wore a wig for nine months, which was WONDERFUL! It was very comfortable and made me feel pretty instead of like an...
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    Interesting, because I was 37 when I was...

    Interesting, because I was 37 when I was diagnosed and the doctor said I unusually old to be getting Lupus!
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    What sunblock do you use and like?

    The dermatologist told me I need to use "physical sunblock" (instead of sunscreen, while I'm still a little confused about) SPF 60, with zinc oxide and/or titanium dioxide.

    She suggested called...
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    What is the difference between Mild and Severe...

    What is the difference between Mild and Severe Lupus?
    Are there concrete distinctions or definitions?
    Would my doctor be able to tell me which one I have?


    When someone has Severe Lupus,...
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    Yeah, okay ... it's making more sense now ... the...

    Yeah, okay ... it's making more sense now ... the rheumatologist said that Membranous Nephropathy IS caused by Lupus, while the nephrologist said no, so I didn't know who to believe.

    But the...
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    How much have lifestyle changes helped you?

    Just curious how much effect, if any, lifestyle has on your symptoms.

    I guess what I'm asking is, do you feel sick and crummy no matter what you do? Or do you see a direct relation between things...
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    Anyone else have kidney problems?

    Just curious what others' experiences have been. I was diagnosed with a kidney disease called Membranous Nephropathy about 10 months before it was discovered that I also had Lupus.

    My nephrologist...
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    How can you avoid the sun?

    Fortunately, I've never been one to lie on the beach for hours ... but I have several small children. Do I need to stay indoors for 6 months and never take them on walks, Easter egg hunts, the park,...
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    What is your "new normal"?

    I keep reading people saying that their life will never be the same again, that things have never gone back to "normal" once they've been diganosed, they'll never be the same person again, etc. I...
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    Questions about flares and remission

    I've had Lupus for about five months now. I'm still confused and scared about a lot of things.

    What exactly is a flare?

    When you're not having a flare, do you feel fine, or just a little less...
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    Does it get better or worse from here?

    I'm 37 and was diagnosed about four months ago. I have started Plaquenil but not noticed any obvious changes yet.

    In a way I'm glad I found this forum, but unfortunately reading here is making me...
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    New with a bunch of questions

    Hello, I'm 37 and was diagnosed with Lupus about four months ago.

    Other than already knowing I had a kidney disease (not nephritis) , I didn't really think anything was wrong with me. I had a...
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