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Type: Posts; User: angiern

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    Thanks Sunshine 101!

    I have never been to the Mayo Clinic, but Dr. Fessler who I refer to in the previous post is at UAB which is a teachung hospital in Birmingham. I really had high hopes for that consultation, but as...
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    Sorry I have not posted a reply before now Bama

    The letter I referenced was actually written to my new Rheumatologist in Pensacola. Her name is Diana Harris. I had not heard from her since I wrote the letter until I called her to advise her that I...
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    Glad to have you here!

    Welcome to the neighborhood!

    Angie
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    Thank you sooo much!

    I too have resolved myself finally that I belong here no matter what the doctors say. It is nice to have someone who understands what it is like to doubt yourself and feel like you have lost your...
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    Me too!!!

    Every time I get under flourescent lights without covers I feel sick and my Malar rash is ten times worse. I go home feeling like someone has run me over with a truck and then backed over me for good...
  6. Thread: I NEED PRAYER

    by angiern
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    Is there anyone who could possibly help you?

    I know it is hard for us to admit we need help sometimes, but in order to keep ourselves well we have to swallow our pride and ask our friends and family for some help. Is there anyone that could...
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    Thanks Saysusie!

    I really feel like God sent me here for a reason! It may take me awhile to figure things out, but I am not going anywhere until someone makes me.


    Angie
  8. I wish I could help you

    I wish I could give some advice about burning and pain in feet. Recently I have been experiencing severe burning in my hands and feet that comes on very quickly and sometimes lasts for hours. My...
  9. Thread: Hi to everyone

    by angiern
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    Glad to have you here!

    I am pretty new here myself, but everyone here has welcomed me with open arms. I really believe God sent me here for a reason. You will find everyone here is more than willing to help in any way they...
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    Question about Meds and Negative Labs

    I am having a problem with the doctors and negative labs. My question is this. I remember reading somewhere that it is possible for labs to return to normal after being on certain meds for a long...
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    Welcome BrendaV

    I am by no means an expert on Lupus, But I did want to give you some information that I have learned over the last few years. I, like you, am a nurse and when all this started I knew very little...
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    Wow Thanks St James!

    I had no idea you all would be sooooo supportive of me and my trials and tribulations.This is exactly why I came to this place. I might have misrepresented what my doctor said though. She did not...
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    I know I am taking this too hard

    Thanks Tracy Dawn! I know I am taking this too hard, but I get so tired of trying to make the doctors believe me. Sometimes I just want to stop all the meds and just forget about the whole thing....
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    You're the best!

    Thank you so much for your words of encouragement! You all are the best there is. I am grateful that you still want to include me because Lord knows I need someone there for me who has and is going...
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    Guess I won't be posting anymore

    I got a call from the Rheumatologist today. All my tests came back as she put it "essentially normal". She said she ran tests for Sjogen's, Lupus and Connective Tissue Disease and they were all...
  16. I have come to the conclusion that doctors stink!

    Called my rheumy today to give her a report because she told me last Wed. to call her and she would start me on Imuran today. I told her that the BP was better, edema and headaches were gone. Also...
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    Thanks for The Support

    Thanks for all the well wishes. I am actually feelinga bit better today. I have lost 5 pounds of fluid since Tuesday and I can breathe better. I guess the Prednisone increase was the right thing to...
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    Kind of Depressed Need Some Encouragement

    I went to Rheumy Monday. Happy because she finally committed to a diagnosis of SLE, but depressed because it is because I now have Kidney and CNS involvement. She seemed very worried about the CNS...
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    Saw my Rheumy yesterday

    Well I went to my Rheumy in Pensacola yesterday. I am glad I decided to give her another try. She really listened to me and looked at all the labs from my hospitalization . She said my Lupus must be...
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    Lupus Is Our Own Fault Phooey!

    I was just reading an older post about how some people think Lupus is our own fault and often say very insensitive things. I recently had something similar happen to me. I walked into work with a...
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    What a coincidence!

    I saw Dr Fessler at UAB back in 2001 or 02 I can't remember exactly. The first time she saw me she saw my butterfly rash and said "That is a malar rash if I have ever seen one" and was convinced with...
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    you know you have lupus when

    Those are sooo funny and true for me!

    You know you have lupus when....you call your son to tell him something VERY important and by the time he picks up the phone you can't for the life of you...
  23. BP Meds

    Thanks for the replies. I am on Lopressor 50mg in am and 25mg in PM and my doc started me on low dose of ACE inhibitor yesterday. He also increased my lasix from 20mg to 40mg. Low salt diet too! Yuk!...
  24. Going to Rheumy Monday Please Help Kidney Question

    I am pretty new here and have only posted once. To catch everyone up I was in the hospital last week for a week because of Vasculitis and Probable Lupus Nephritis. While in the hospital I was given...
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    Thanks for the Encouragement

    Thanks for the reply. When I did my post last night I had the fatigue monster sitting on me and brain fog like you would not believe, so I did not make a few things clear. My dr friend moved to...
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