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    I am glad there is still a small chance I don't...

    I am glad there is still a small chance I don't have MS and I don't want to start on meds if it's not. I'm actually glad for the first time not to know what's happening because I think it's better...
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    I haven't been diagnosed with MS. My MRI test...

    I haven't been diagnosed with MS. My MRI test results indicated I could have it but the demylination was not extensive enough to prove it. I have to do more neuro tests and a repeat MRI in 6 months...
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    Thanks for that. I am still on my lupus meds as I...

    Thanks for that. I am still on my lupus meds as I hadn't seen the neuro to take me off them and my gp couldn't advise me whether I could stop taking them suddenly. :wideeyed:
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    Oh dear... back to the start

    Hey Sandy, Thanks for sharing that with me. Well I'm back.. literally... to the start. I saw the neurologist yesterday and despite the fact that my MRI shows a lesion of demylination that is...
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    I got my MRI results back yesterday. It was just...

    I got my MRI results back yesterday. It was just a day turnaround which is good because I had to wait three weeks to have the MRI. It may be quicker in Australia than America I'm not sure....
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    Hi All- Just to update I am having my MRI...

    Hi All- Just to update I am having my MRI tomorrow to test for MS. I should get the results on Friday. I have started to see a new rheumatologist who seems more helpful. I have reduced my predisolone...
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    I am from Melbourne, Australia. You can just PM...

    I am from Melbourne, Australia. You can just PM me if you like. :yes:
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    Can anyone please explain to me the difference...

    Can anyone please explain to me the difference between Lupus and other connective tissue diseases? Also what are these other connective tissue diseases. If the doctor says you test negative for lupus...
  9. Hi. Sorry to hear you are having such a crap...

    Hi. Sorry to hear you are having such a crap time! Very frustrating to not have any answers. I agree with what others have said here that if your doctor/ rheumatologist/ phsyio etc are not shaping...
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    Maria's post was inspirational. How tiring the...

    Maria's post was inspirational. How tiring the pain can be. I have just screamed and sworn at times. But humour definitely helps things. It's just hard to laugh when you are prevented from doing...
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    Thanks I will follow this up.

    Thanks I will follow this up.
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    When you get tested for Fibromyalgia isn't it...

    When you get tested for Fibromyalgia isn't it usually painful to touch? Mine is not. I hope they find out soon. I'm so bored of being @ home. Anyone come up with good ways to keep themselves...
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    Ok Thankyou. I don't think I have Fibromyalgia....

    Ok Thankyou. I don't think I have Fibromyalgia. My neck is not that sore to touch. The pain seems like it's deeper inside if that makes sense. I can withstand full strength massage and all that stuff...
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    Does anyone know how this is tested for? I have...

    Does anyone know how this is tested for? I have tested negative to Lupus but still no real explanation of what's happening. Would this show up in an mri as I scheduled for one next week... My dr goes...
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    Just wondering if everyone has moments of wtf is...

    Just wondering if everyone has moments of wtf is my body doing? I have had pain in my neck for a few days but last night my neck completely locked up and I got this paralysed pain from the bottom of...
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    Thanks for your responses Jim and Phyllis. My MRI...

    Thanks for your responses Jim and Phyllis. My MRI is of my brain, spinal cord and left knee because that keeps collapsing... I have spoken again to the specialist and am able to increase the...
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    I am too sick to be at work at the moment. Not...

    I am too sick to be at work at the moment. Not able to have a shower without a chair and can't get to the shops. :unsure: And I cannot up predisonone before my MRI .... June 11th. I also have vertigo...
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    These responses make a lot of sense. It's amazing...

    These responses make a lot of sense. It's amazing that I have paid a lot of money to Osteos, Gps, physio, specialist but I've got most of the useful information on this forum.
    I am having a lot of...
  19. Well you had more right to be angry than her 1/...

    Well you had more right to be angry than her
    1/ She was being paid to be there and you weren't. In fact you were paying to be there.
    2/ You were sick and she wasn't. You had a serious health...
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    Thanks for your reply guys. Just wondering why...

    Thanks for your reply guys. Just wondering why the diagnosis took so long in each case. Is it because the test results didn't show things up or other reasons???
    I have a new symptom to throw out...
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    Thanks for the tips re. sleeping. The fibro test...

    Thanks for the tips re. sleeping. The fibro test is something she did I'm pretty sure and I didn't seem to have it?? If I knew what I had I think it would be easier to come to peace with the fact...
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    Also some problems with my elbows and trouble...

    Also some problems with my elbows and trouble sleeping at night. I cannot find a comfortable position in bed and I end up swapping sides with my partner several times a night. This only started with...
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    Thanks for the reply. I am not sure if I have...

    Thanks for the reply. I am not sure if I have been tested for fibromyalgia. I will have to ask my doctor tomorrow. I'm not sure about MS because my symptoms are more pain (back, neck, shoulders,...
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    I went to the rheumatologist today but I don't...

    I went to the rheumatologist today but I don't really seem to be getting anywhere. I am unwell and have positive ANA but she has ruled out Lupus and Rheumatoid Arthritis because apparently my blood...
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    Thanks for the detailed response all of that...

    Thanks for the detailed response all of that seems to make sense and I did some additional tests including some of those you mentioned for which I will get results tomorrow. This forum is so good ......
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