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Type: Posts; User: Gizmo

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  1. Replies
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    Kim, I am glad this is finally on the schedule...

    Kim, I am glad this is finally on the schedule for Stephen, but I am still baffled by how slowly everything has moved. I can't imagine how much stress this has caused you.

    Can the family postpone...
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    Oh Mari, I am sorry! I know you have been...

    Oh Mari, I am sorry! I know you have been counting the days, hoping to get insured. It blows my mind that they would deny you, and then tell you to go get a menial type job. I'm glad you are going to...
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    This is great, thank you Mari! Hope things are...

    This is great, thank you Mari! Hope things are improving for you.
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    Rob, how wonderful that you and your dad have the...

    Rob, how wonderful that you and your dad have the car project to focus on while you wait, and he recovers from the chemo and radiation. I hope you are trying to recover, too, so you are ready for the...
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    Happy Birthday Kim! I know things are really...

    Happy Birthday Kim! I know things are really tough right now, but I wish you a day of peace, if only for a few moments. I hope you are able to share some laughter with your family and that you get to...
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    Chicki, I have no sage advise, just know that...

    Chicki, I have no sage advise, just know that there are many people who care about you. What terrible choices we have to make sometimes, but you do have to take care of yourself. Wishing you good...
  7. Thread: MIA - Sorry

    by Gizmo
    Replies
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    473

    I really do like my job, and it is wonderful to...

    I really do like my job, and it is wonderful to have an identity that doesn't revolve around illness, being a caretaker or housework. I just hope I can keep the wolf away from the the job. Thanks for...
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    I've been on Imuran for about 8 years without...

    I've been on Imuran for about 8 years without hair loss, so it doesn't happen to everyone. And I am on 250mg, a pretty high dose. I don't have any other side effects, either. Good luck! It worked...
  9. Mari is right, don't mess around with chest pain!...

    Mari is right, don't mess around with chest pain! Lupus increases your risk of several heart problems, including pericarditis, heart attack and pulmonary hypertension. Get thee to the MD or ER
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    Leaann, it is good to hear that your life is on...

    Leaann, it is good to hear that your life is on the upswing. As you have already learned, with lupus, as with life, there are going to be struggles. It sounds like you have a lot of people supporting...
  11. Thread: MIA - Sorry

    by Gizmo
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    MIA - Sorry

    Hello Everyone! As much as I love this group of people, I don't seem to have the time to read and post anymore, and that makes me sad. I started a job 3 weeks ago, as a volunteer coordinator at a...
  12. Ya, not surprising, I guess. You'll have to be...

    Ya, not surprising, I guess. You'll have to be even more specific in the future - 5 hour limit per DAY LOL
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    Oh Kim! How do these people sleep at night? Is...

    Oh Kim! How do these people sleep at night? Is this typical of healthcare where you live? I am so sorry that you are having to deal with so much stress. How difficult for your whole family.
  14. Thread: Hello again!

    by Gizmo
    Replies
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    747

    Congratulations! Our daughter got married this...

    Congratulations! Our daughter got married this past summer, so I know how crazy things can get with a wedding, but you need to find a way to remember your meds from this moment on so the "in sickness...
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    Marla, I'm in worry mode for the holidays, too....

    Marla, I'm in worry mode for the holidays, too. My daughter and her new husband are traveling to Lapland (above the Arctic Circle) for Christmas. They are in Germany for a year, and have some warm...
  16. Thread: I am lost.

    by Gizmo
    Replies
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    26,170

    [QUOTE=Oluwa;99843] It has been a hard year. My...

    [QUOTE=Oluwa;99843]
    It has been a hard year. My father had a heart attack, his kidneys failed and is on dialysis. Bola was killed. Four days later my dearest, closest Aunt died. Pookie died in...
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    Unfortunately, I have had to find most of our...

    Unfortunately, I have had to find most of our doctors by doing online searches. If your insurance doesn't require a referral, you should just be able to call a urologist or uro-gynecolosist and make...
  18. Thread: Nose Sores?

    by Gizmo
    Replies
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    When I get nasal sores, they are like a blister...

    When I get nasal sores, they are like a blister that the skin has rubbed off on. I have had a few that were low enough to see LOL. They are usually sore in a specific spot and don't bleed or make my...
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    Maybe try a different gyn, or ask to be put on a...

    Maybe try a different gyn, or ask to be put on a cancellation list with the one you are scheduled to see. Do they have a nurse practitioner who could see you sooner? There is a specialty called...
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    That's a question to ask your OB/GYN, even if I...

    That's a question to ask your OB/GYN, even if I did venture an answer - you shouldn't trust it LOL. I believe there are progesterone-only birth control pills, but it's definitely a topic to have a...
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    I'm with Marla - don't hesitate to call for the...

    I'm with Marla - don't hesitate to call for the paramedics. It might actually be a merrier Christmas if he is under the watchful eyes of hospital staff.
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    Nat, clotting problems really do cut down your...

    Nat, clotting problems really do cut down your options. My daughter had an IUD with progesterone and it worked it's way out twice on it's own. Now she has a progesterone implant in her arm (don't...
  23. Hi Sarah. Lupus can affect your heart, so if you...

    Hi Sarah. Lupus can affect your heart, so if you are able to self-refer to a cardiologist, you might want to do that. Maybe your PCP can help you find someone who is knowledgeable about lupus heart...
  24. Welcome Chowell! Things are unusually quiet...

    Welcome Chowell! Things are unusually quiet around here, and I'm sorry there aren't more responses to your post. Please don't take it personally. Everyone just has a lot going on. I don't have lupus...
  25. Well, poo! I wish I could help you out, Ritz....

    Well, poo! I wish I could help you out, Ritz. Maybe your family will give you money for Christmas instead of gifts, if you ask?
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