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    I rang my hospital yesterday and they told me...

    I rang my hospital yesterday and they told me there is no way of me being seen before jan as this rhemy wants to meet me with another rhemy together.
    Me personally i want rid of her the chap i had...
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    I definatly will be asking for another person in...

    I definatly will be asking for another person in january i think that is the next time i will see her with someone else about my joints hurting.
    I feel like i am the only person who is taking it...
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    Hi kathy it was a rheamy doc i saw i have also...

    Hi kathy
    it was a rheamy doc i saw i have also read that same bit about the lupus but have also read that[lupus anticoagulant is normally found in people who have another autoimmune disease such as...
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    Antiphospholipid syndrome.

    Hi all i saw my blood doc again on tuseday who told me i definatly have
    antiphospholipid sydrome an that they no want to put me on warfrin theropy.
    When i asked what about my sle she told me yes i...
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    I really do feel for you i no how hard it can be...

    I really do feel for you i no how hard it can be i have been told repetadly i am deppresed then turs out i have sle and sticky blood.
    I no it a pain in the ass waiting for blood test results i am...
  6. Thread: hard time

    by cherie
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    The only thing i could say would be sit them down...

    The only thing i could say would be sit them down in front of the computer and make them read pages of info explaining symtoms flares etc so they can see how it affects us lupy lot and how porly it...
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    Lol what you like!!! Id get yourself a bag of...

    Lol what you like!!!
    Id get yourself a bag of lollypops to suck on apparently its the holding of something like that in your hand that takes your mind of it .
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    Bless your hart i feel for you but do see you doc...

    Bless your hart i feel for you but do see you doc about it i had simillar kind of pains but mine has turned out to be a virus which i have now had for about nine months they told me they wanted to...
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    Hugs to you i do hope things get better for you...

    Hugs to you i do hope things get better for you soon.
  10. Thread: losing hair

    by cherie
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    I am not taking any meds at the moo as i just...

    I am not taking any meds at the moo as i just found out i have sle and lac but my hair is definatly getting thinner i use clip in hair extentions to make look a bit better .
    Sorry cant help.
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    Thank you for your thoughts and kind words its is...

    Thank you for your thoughts and kind words its is so nice to now there are people out there who really do care.
    I do feel a little better today for having a vent to i ound out last night my sister...
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    I feel sad today.

    On saturday just gone i went out in to the garden and cut the grass with a strimer just to tidy things up, since then my coller bones shoulders elbows bottom of my arms middle of my back and bottom...
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    I shall keep my fingers crossed for you i still...

    I shall keep my fingers crossed for you i still feel like i want a cig but then i think well its been this long so why turn bak now
    good luck x
  14. Thread: Teeth?

    by cherie
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    I am not sure why mine have come out mine have...

    I am not sure why mine have come out mine have been breacking away for the last 3 years.
    It started with just littel bits to half or full teeth on the 6 of september just gone i had a operation to...
  15. Thread: lumps

    by cherie
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    Its the same with me now you see it now you dont...

    Its the same with me now you see it now you dont lol!!
    But i will let you no if i find out why.
  16. Thread: lumps

    by cherie
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    lumps

    I am just wondering if anyone else has every had a lump apear on there lip before?
    Quiet a few times in the last year every now and again a lump will start to develop on my lower lip and becomes...
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    Thank you i will keep strong each day gets easier...

    Thank you i will keep strong each day gets easier thankfully.
    My hubby was convinced i would start smokeing again but i think because he said that it made me more determent to stop.
  18. Thread: I fell again...

    by cherie
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    I really seem to do the same thing a couple of...

    I really seem to do the same thing a couple of months ago i fell down the stairs had a bruise from shoulder to wrist ive had dizzy moments and cracked my head of the toliet seat or door frames...
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    My god it really sounds like you are getting no...

    My god it really sounds like you are getting no were fast.
    People either want to un diagnoise you or tell you its all in the mind i no personally i am sick of heraing that .
    Hope you have more luck...
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    Thank you i hope so to and if there not good i...

    Thank you i hope so to and if there not good i dont mind as long as i am given the help.
    Headaches for so long you really get used to i must of had them for three years plus.
  21. I feel really sorry for you ive been through the...

    I feel really sorry for you ive been through the same my headaches have been permient for years now last year it was so bad i was in hospital as a in patient for days they an tests and told me it was...
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    I was a smoker for ten years and i quit three...

    I was a smoker for ten years and i quit three weeks ago ive not smoked at all i just stopped dead.
    It helped because i had a op on the 6of sep so i had no choice to stop but its been really hard cus...
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    I feel so sorry for all of you how i feel and my...

    I feel so sorry for all of you how i feel and my symptoms seem nothing comperad to what you all go throw.
    I have perminant headaches back ache my elbows hurt my fingers are numb and visual darking...
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    Hi , I have just recently had the same problem....

    Hi ,
    I have just recently had the same problem.
    After two years of fighting to see a nerologist i finally saw one 3 months ago who told me i was depressed and i needed councelling and to start...
  25. Thread: hi everyone.!!

    by cherie
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    Hi yes i did i discharged myself from the...

    Hi yes i did i discharged myself from the nerologist who told me this.
    I am still not happy as she sent a letter to everyone i see at the hospital suggesting i was going mad!!!!!
    Wish i could see...
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