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    Does a Lupus rash blanch?

    I have Lupus and my toddler has a crazy rash all over her body and they are trying to figure out what it is, whether it is a lupus rash, an allergy or due to a viral infection. I have heard that a...
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    http://www.clinmedres.org/cgi/content/full/4/4/310...

    http://www.clinmedres.org/cgi/content/full/4/4/310/T3

    I found this website to be really helpful in making my decisions for Imuran and Plaquenil.

    I know someone who is taking both right now...
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    New fundraising efforts

    Hi everyone,

    I'm SO excited. I went to a local Annual General Meeting for the local Lupus chapter where I live and was blown away by someone who really is fundraising to make some major changes...
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    Sounds quite challenging. Were you being treated...

    Sounds quite challenging. Were you being treated at all throuhgout the pregnancies, probably not if they didn't know about it. I have a negative antiphospholipid antibody so I'm hoping that will...
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    Hi there, I'm reading all these posts as my hubby...

    Hi there, I'm reading all these posts as my hubby and are making the big decision about whether or not to pursue having a baby and we have lots of appointments over the next while

    Would love to...
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    gna716, Hi there, I posted a subject asking...

    gna716,

    Hi there, I posted a subject asking questions about pregnancy and Lupus and haven't had very much in terms of response except for one very supportive response!

    How are you going with...
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    I really appreciate your response and would...

    I really appreciate your response and would appreciate anybody else's opinion and/or experience on this topic.

    It is a huge decision for us and right now we are researching like crazy but all...
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    long term effects of pregnancy

    I really need to hear from people about this as it is an absolute endless struggle for me.

    I am 31 years old, had Lupus for 13 years. I have ALWAYS wanted to be a Mom my whole life. Had a...
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    For sure, you see I don't have skin issues so it...

    For sure, you see I don't have skin issues so it is okay for me, you do, so therefor it wouldn't be okay for you.

    I'm glad you listened to your doctor then! I'll let you know how mine goes...
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    Hi Stardust, I understand your concerns and...

    Hi Stardust,

    I understand your concerns and your doctor's concerns but I did talk to mine and she said I'd probably catch a dangerous infection from swimming in a public pool or going on my...
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    Hi Laura07, I just booked my consultation. ...

    Hi Laura07,

    I just booked my consultation. I'm excited to get mine. I have spoken to my docs and they are okay. They want my blood to be checked before and after, they want me on antibiotics...
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    I have some Lupus sufferers in my local support...

    I have some Lupus sufferers in my local support group and I have forwarded the link on to them, hopefully you get a few more participants.

    Jen
  13. Thread: No remissions?

    by JenHa55
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    Hi there, yes it sounds by the description of...

    Hi there, yes it sounds by the description of others that it is not indeed a true remission and that Stardust's doctor has agreed with this as has mine - in that the disease can go "quiet" but never...
  14. Thread: No remissions?

    by JenHa55
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    No remissions?

    I was recently reading an article from a very reputable Lupus newsletter that shows new research saying that Lupus never goes into "remission" and that remission means dormant and that although Lupus...
  15. That really sucks - times where slang really...

    That really sucks - times where slang really messes a situation up.

    Well, I do thank you very much for the recipe, I do plan to try them out for a bunch of hungry firefighters at an upcoming...
  16. My hubby gives it to me into the muscle, both the...

    My hubby gives it to me into the muscle, both the doctor and pharmacist recommended it, although I don't know why that is. I don't think it's a big difference actually.

    I take Leukovoran 10 hours...
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    What about those of us that cannot have children...

    What about those of us that cannot have children because of Lupus? That was a huge impact for me and still is while my biological clock ticks away. Part of the reason I cannot is because of the...
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    Canada is thinking of all of your country men and...

    Canada is thinking of all of your country men and women!

    Some of you may have read in other threds that my loving and brave husband is a firefighter here in Canada. They risk their lives...
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    I am also getting one this year and my doctor has...

    I am also getting one this year and my doctor has said she would put me on antibiotics for a few days during the tattoo process because I'm on chemo. So, you may want to talk to them first - mine...
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    I understand the hesitation but personally, the...

    I understand the hesitation but personally, the more these doctors learn about Lupus and the finer points of the disease and how it affects us personally, I actually think it's better for all of us...
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    Faith, spirit and mind

    I propose a topic.

    Do you find faith or lack of faith affects your Lupus? Do you find that you are spiritual without being religious and that helps? Do you find all three, faith, spirituality...
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    Browneyedgirl, I too find myself drawn to this...

    Browneyedgirl,

    I too find myself drawn to this particular thred. On days like today that need extra attention and extra reflection, I am thankful for other people's thoughts. I love to see what...
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    I SECOND THAT!!!! In fact, I look for your...

    I SECOND THAT!!!! In fact, I look for your posts!

    Jen
  24. That's very interesting about Seal. I had no...

    That's very interesting about Seal. I had no idea. I do wonder why he is not more outspoken about the disease. I've always enjoyed his music and actually met him once about 8 years ago when he was...
  25. YAY Brown Eyed Girl, Boy did you ever hit the...

    YAY Brown Eyed Girl,

    Boy did you ever hit the nail right on the head. What a great post and I hope everyone reads it beginning to end. I agree completely and am thrilled you wrote that post and...
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