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Type: Posts; User: justdave

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    This is going to be interesting.

    I have to take a pile of calcium because of the steriods don't eat my bones...

    Because I do this, Now I have a kidney stone stuck and I am a world of hurt.

    Lupus + Kidney stone = Bad.
    ...
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    Singing the prednisone blues...unhhh

    Well I am weaning slowly, I am now half of what I was as I make my way down to
    0. For months and months I was 30 to 40mg daily. but it looks like the cellcept is helping.. I think..

    So I...
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    zinc in the sunscreen, now that makes sense,...

    zinc in the sunscreen, now that makes sense, thanks. who would figure...
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    Hmmm mabe others don't get this.... maybe it's...

    Hmmm mabe others don't get this.... maybe it's the cellcept after all... hmmm
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    Odd effects of sunlight...

    As crazy as this sounds.. I will say it anyway...

    Can sunlight cause pimples on people who have lupus. The bridge of my nose and cheeks get red when I get in the sunlight. Have since i was a boy....
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    Lupus and the skin ? growths..

    I have heard of the mylar rash, acutally I am fairly certain I had these. I used to think my eyeglasses caused them from the sun, I was always thinking sunburn.

    But... I have a new crisiss.
    ...
  7. Thread: Pollen

    by justdave
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    Pollen

    Call Pollen set off a flair.

    I have problems with my lungs anyway from the disease, but pollen is high and I find myself in a full flare. is it just bad timing, or can pollen set off a flair?
  8. Thread: UNNNH fpm

    by justdave
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    Just an update... Today is a better day, feel...

    Just an update...

    Today is a better day, feel more myself on 30mg pred. it is amazing how much 10mg of pred can make. It's almost like a threshold.

    Much of the discomfort is gone, more...
  9. Thread: UNNNH fpm

    by justdave
    Replies
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    UNNNH fpm

    We have been trying to wean me off the Prednisone and just go with the cellcept. I have gotten down to 20mg a day down from 40 over a period of three weeks.

    I really want off the Pred.

    When...
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    Mouth sores, this is new..Great...

    Stupid flair. I am in a rather nasty one the last few weeks that I have been beating back with some new meds. Cellcept is my new med, trying to find one so i can get off the Prednisone. (all puffy) ...
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    Lupus and speech

    When I flair I have significant Speech issues, mostly stuttering but other times I say the wrong word in a sentence or I get stuck with pronunciation or It just plain gets stuck on my tongue and I...
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    I called my Rhuemy, He did not want me to stop...

    I called my Rhuemy,

    He did not want me to stop my prednisone but did have me halt my antiimune med until the fevor broke as he put it, then start it right back up again. I guess there is a stage...
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    Lupus and the flu

    Yep, my son came home with it about a week ago, i tried to stay away fromm it but alas now I am sick.

    Now I am sitting here at 102.4 at two thirty in the morning groaning. Actually that is not so...
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    Burning Eyes anyone, odd symptom

    Been noticing this more and more of late, not sure if it is related.

    My eyes suddenly start to burn and itch, sometimes it feels like I have sand in them. My vision blurs and they hurt. Sometimes...
  15. I a thinking of changing my sleep paterns...

    does anyone know if lupus has a direct effect on sleeping soundly.

    I have severe sleep apnea and I use a cpap machine. All night long I wake, random physical pains in the chest or legs or arms...
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    Left arm, right arm?

    I have always been right handed. My right arm has always been stronger, I write with it, shoot a basket ball with it, ect....

    But lately I have found my right arm weaker than my left. as well as...
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    I woke this morning feeling okay but within an...

    I woke this morning feeling okay but within an hour of gettting up it returned.

    Called Doc, he said we needed to reset the dose, back up to 40mg for the next three days. This resolved the...
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    I hate the breathing issues...

    I can handle the sore joints, being cold, fevers, aches, beign tired and the sunlight sensitivity.

    But the breathing is such a show stopper.

    All weekend I knew I was in for it. felt out of...
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    eyes and sunlight

    I have come to the conclusion using sunscreen each day, whether being in the sun or not is a good thing. I feel better by the end of the day, even though the only light exposure is fluresent
    ...
  20. Thread: Stress and me

    by justdave
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    Stress and me

    Under terrible stress of late with Job and home, It seems there is no escape from it, it is depressing me. What's worse if that wasn't bad enough all my symptoms decided to flair all at once.

    My...
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    Let's call it lupus...

    Just a rant, sorry. I rethought the post.
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    nope no protection screen, (I have seen these...

    nope no protection screen, (I have seen these before) actually has reflective material around it to focus more light down.

    I use floresents in my home, I wonder if it would be smarter to go back...
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    Sunscreen indoors

    Just curious how many wear Sunscreen when they are indoors.

    I learnt that floresent bulbs can almost act like the sun and can make you sick. Odd. I was just wondering who actually wears...
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    Hi Kathy, Yes my Rhuematologist is...

    Hi Kathy,

    Yes my Rhuematologist is thinking Lupus, but like i mentioned the tests are a bit fuzzy. he has done some more, I hear more on the 16th. He hasn't commited, and has warned me it may...
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    Bloodwork levels vs Symptoms..

    Just a quick questions.


    My pulmanry doctor ( who is usually quite good) seems puzzled that my Possitive ANA isn't in the 300's and 400's to equate to my symptoms. I am on 160, a lightweight...
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