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Type: Posts; User: Nonna

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    Happy Easter to all!

    Just watched the kids of the complex run and hunt Easter Eggs. It was wonderful to see them having so much fun. Easter is a rebirth time of year. So everyone Christian or not, hope for a year of...
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    I think that I have heard of some such research,...

    I think that I have heard of some such research, but I don't think that there are any significant results. As for the trials, I've read that there are not enough patients participating to give...
  3. Thread: so frustrated

    by Nonna
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    Just remember a lot of us live and have lived...

    Just remember a lot of us live and have lived inthat no-man's land for a long time. I had lupus for 30 years before I got a diagnosis. Keep on trucking, believe me I know it's hard. I am there...
  4. Thread: so frustrated

    by Nonna
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    What type of doctor are you seeing? Maybe you...

    What type of doctor are you seeing? Maybe you need to see a different one.
  5. Thread: Hi I'm new here!

    by Nonna
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    Welcome Andrea, The hardest thing any of us...

    Welcome Andrea,
    The hardest thing any of us comes across is having to make changes in out lifestyle. My most favorite thing was going to my granddaughters softball tournament, spending the day at...
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    Hi, welcome, First let me saying that in my...

    Hi, welcome,
    First let me saying that in my experience one or two rounds of tests are never conclusive. In one of the stickies you should find a list of common symptoms. Are you currently seeing...
  7. Thread: Hello and help

    by Nonna
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    Hi Grandma and welcome. I too am a grandmother. ...

    Hi Grandma and welcome. I too am a grandmother. I used lotions, but for the genital area, I would speak with the doctor in order to avoid infections.
  8. See the PM I send you don't want to post names.

    See the PM I send you don't want to post names.
  9. Thread: Zoo Time

    by Nonna
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    SOX!!!!!!!! All the way!!!!!!!!!!!!!!! LOL

    SOX!!!!!!!! All the way!!!!!!!!!!!!!!! LOL
  10. Thread: so frustrated

    by Nonna
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    Tests never occur on flare days, test results...

    Tests never occur on flare days, test results never show conclusive results. It takes months and years to establish the pattern that gives you a history. Rest easy and please give yourself a chance...
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    My parents are kicking off the annual Easter Egg...

    My parents are kicking off the annual Easter Egg Hunt this year. They get a bullhorn to say GO
  12. Thread: Chatbox

    by Nonna
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    Sticky: Try enter on your keyboard, when I do chat box my...

    Try enter on your keyboard, when I do chat box my return/enter key says go. Try it
  13. Thread: Zoo Time

    by Nonna
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    Brookfield or Lincoln Park. I loved Brookfield...

    Brookfield or Lincoln Park. I loved Brookfield when I lived there.
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    Saw the neurologist yesterday, MRI is good. He...

    Saw the neurologist yesterday, MRI is good. He said we caught it so fast that my control should come back. This morning I had a full smile. Woooo Whhhoooo
  15. Thread: Swollen eyelids.

    by Nonna
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    When do you go? You eye sight is not something to...

    When do you go? You eye sight is not something to wait on.
    Hugs
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    The doctor gave me a suggestion, that I will pass...

    The doctor gave me a suggestion, that I will pass on. But first you should talk to your doctor about this. Mine suggested wearing a wrist brace at night while I sleep. It helped me. But check with...
  17. Get yourself to the doctor girl! Or at least...

    Get yourself to the doctor girl! Or at least call, lupus throws our internal thermostat out of whack; hot to cold and back with fatigue sounds like your body telling you something is wrong. Listen...
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    You can do this, we all do. I've been dealing...

    You can do this, we all do. I've been dealing with Lupus for almost fifty years. You have bad times and good times. Right now you're in a bad time, it will get better. You need to give yourself a...
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    Yes, my rheumy in Atlanta did that, changed her...

    Yes, my rheumy in Atlanta did that, changed her mind I did not have Lupus. I then pointed out my medical history and she started to waver. But after treating me for 2 years, she decided that I was a...
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    A new experience has me wondering.

    Over the past few days, I have experienced Bell's Palsey. This has stroke like symptoms but is not a stroke. The ER doctor said that the nerve that controls facial muscles becomes inflamed. Had...
  21. Thread: Life Update!

    by Nonna
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    What wonderful news, congratulations and huge...

    What wonderful news, congratulations and huge cyber hugs for you! I would have loved to have seen your musical.

    Welcome back
  22. Thread: Zoo Time

    by Nonna
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    Chikitikalinda, they also have electric motor...

    Chikitikalinda, they also have electric motor carts that you can drive yourself around . Never give up a joy if at all possible
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    I am so jealous. To have such an extraordinary...

    I am so jealous. To have such an extraordinary animal to care for you. You are so lucky and blessed.
  24. Thread: Zoo Time

    by Nonna
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    I love going to the zoo with my grand kids. This...

    I love going to the zoo with my grand kids. This last time though, my son got me a wheelchair, he pushed and the boys took turns riding on my lap. Sometimes they were both there, that was a nice...
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    Brain Fog and being a caretaker

    As some of you know, I am caregiver for my parents. Today I remember all but one thing that I was supposed to pick up. My father has complained in the past about my faulty memory. I explain about...
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