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Type: Posts; User: kirsten

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    Interesting. Is there a certain amount of time or...

    Interesting. Is there a certain amount of time or intensity usually associated with it? I'm asking because I get red across my cheeks and nose from the sun, but I live in Phoenix, AZ where it's...
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    How to tell the difference?

    How do you tell the difference between a malar rash and heat rash?
  3. Thread: I am so upset!

    by kirsten
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    Actually, I've had 3 doctors confirm I have...

    Actually, I've had 3 doctors confirm I have Lupus. That's why it's so frustrating. I found this new rheumy through a doctor rating website. She got fantastic ratings. Maybe she's just used to people...
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    Rob, The fact that you had time during the...

    Rob,

    The fact that you had time during the worst day of your life to respond to my much lesser problem really inspires me.

    Thank you for everything you do on hear. We all appreciate it very...
  5. Thread: I am so upset!

    by kirsten
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    1,752

    What a wonderful compliment! Thank you! I'm a...

    What a wonderful compliment! Thank you! I'm a journalism major, so this is a good sign. :)

    ...and again, thank you for the support and well-wishes, everyone. My mom is very happy I have an outlet...
  6. Thread: I am so upset!

    by kirsten
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    1,752

    God bless you all! You are too wonderful. To...

    God bless you all! You are too wonderful.

    To answer some questions,

    1)I left my last rheumy because every other one of his patients was 70 or older (he had no idea how to deal with a 19 year...
  7. Thread: I am so upset!

    by kirsten
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    18
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    1,752

    I am so upset!

    I could just die right now. I am so frustrated and upset. I just got back from my new rheumy. She's a lovely person. However, she decided, by only feeling my joints, that I might not have Lupus.
    ...
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    Long awaited Rheumy Appt.

    Hi everyone!

    I have my first rheumy appointment in over a year next Tuesday (I know, I know... I went through my "I'm young and if I pretend like it's not there, it won't be there" phase and paid...
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    Ritzbit, Your story sounds far too familiar...

    Ritzbit,

    Your story sounds far too familiar and it seems like that's the case for most of us diagnosed with SLE.

    I found out about my SLE diagnosis my first day of college. It was my first time...
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    Thank you for all that great reading! As odd...

    Thank you for all that great reading!

    As odd as it sounds, the pain has shifted again, to below the left side of my rib cage that gets worse after exercise and at night. So odd. I'm going to try...
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    I cannot explain how lovely I think you all are!...

    I cannot explain how lovely I think you all are! Your help is so wonderful.

    I have considered both Celiac's and Lactose intolerance and I've gone spans of time without both, seeing if I could see...
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    Thank you so much for that information! I...

    Thank you so much for that information! I actually passed some gall stones last summer. That was no fun either. I will definitely have my the doctor check on this!! All the best with your surgery. I...
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    Mystery sickness...again.

    For the past several months, I've been having severe stomach problems. It started out with me being nauseous after eating. That continued for a few months. I'd sometimes have to leave class to be...
  14. Thread: Bruising?

    by kirsten
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    Delphinia, I can definitely relate! People...

    Delphinia,

    I can definitely relate! People always ask me what happened to me because I look like I got beat! I just giggle and tell them I'm a klutz. I actually got a really bad bruise on my shin...
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    Random silly thought :)

    I don't know if you have heard of fmylife.com, the site where people write really depressing, pathetic and most times hilarious anecdotes followed by the acronym 'fml...'

    but it got me thinking....
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    thank you both so much! I'm in the midst of...

    thank you both so much! I'm in the midst of finding a new doctor, preferably one that specializes in Lupus in particular, not just rheumatology. It's hard finding the perfect doctor in the right area...
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    you are all so wonderful and comforting! Thank...

    you are all so wonderful and comforting! Thank you! I'm from the Phoenix area and have to base my decision on where my insurance, United, is taken.

    It's just horrible that I've come to despise...
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    Doctor problems

    I've been looking for a new rheumy for the last year. My previous doctor was good on paper, but he was horrible to relate to. I would say 90% of his patients were over 65 and he had no idea how to...
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    It's so funny, because I'm working on a...

    It's so funny, because I'm working on a presentation for an organization I'm in explaining Lupus (I'm organizing a charity event, and most of my friends don't even know I have the disease,) and I was...
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    I was actually rushed to the hospital last summer...

    I was actually rushed to the hospital last summer after my liver enzymes came back incredibly high (I went to urgent care after having excruciating stomach pains.) It was horrifying that they told...
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    Exciting, Frightening Idea!

    Thank you so much for all of the support. This is truly a wonderful source for people dealing with Lupus!

    I wanted to let you all know about something really exciting and a little frightening for...
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    Thanks for all the advice! This week has been...

    Thanks for all the advice! This week has been really rough. I had the return of my stomach issues (with a vengeance) on Thursday and ended up in the ER all day with 2 of my only friends who know...
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    Lupus = busy college life's worst enemy

    So I'm probably a little old for this forum, but I'm posting anyway!

    I'm currently a sophomore in college. I was diagnosed with Lupus the first day of my freshman year at a university a few hours...
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