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  1. I got disability the first time around. The lady...

    I got disability the first time around. The lady in Settle who was working my case (I live in Alaska) said that I had a great paper trail and that it was a good thing. One suggestion to, is if you...
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    Welcome, I haven't been on for awhile. Today is...

    Welcome, I haven't been on for awhile. Today is the first time I have been on since last fall. I love this forum and the people here. Just reading sometimes posts is a great comfort to me. Sorry to...
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    Sticky: I really needed this one today

    This is soooo relate-able, The pants on I have actually done that and was in public when I realized it. Hubby got a good laugh about that one.

    You know you have a brainfart when:
    You had to buy...
  4. My husband really understands now how bad lupus...

    My husband really understands now how bad lupus can be. I found that one of the best things in the begining was to have him go to my rhuemy and other specialist go with me. That way if he had...
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    Thank you all. I was taking to my dear husband...

    Thank you all. I was taking to my dear husband on the way back from Anchorage and was telling him how I felt. (My dear sister said "God Has a Great sense of humur, she is 37 and found out she is...
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    Thank you Steve.b and Tammy. Shows you how well...

    Thank you Steve.b and Tammy. Shows you how well I was paying attention. Thought I had post this on the faith one. Coming here and reading forums and telling my story in that seems to make me feel...
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    Just 1 week ago I went to my neuro dr. and he...

    Just 1 week ago I went to my neuro dr. and he told me I had Movement Disorder. Said that here isn't much that could be done with it. It caused dizziness and went I would take my blood pressure when...
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    I used to tell myself and friends that there is...

    I used to tell myself and friends that there is ALWAYS someone is worse off then me. And yes, that this too shall pass. But the passing could be worse and that the worse is coming my way. I will...
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    Seems like God has forsaken Me

    Been awhile since I posted here and maybe I should have sooner. But, my computer crashed, got a new one, went on vacation, and that turned into a total nightmare.

    I went through hell trying to...
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    I have been on predisone for years. But now it...

    I have been on predisone for years. But now it is the VERY last resort. I developed Avascular Neurcrosis from the predisone and Lupus. That is what my Neurolagist and Ortho dr said. Because of the...
  11. Blood Pressure and Couple of other questions

    I have had really low blood pressure at times, like 77/46 I get real rummy and incoherent my wonderful husband told me. It comes out of now where and last 15 minutes to a hour. Has anyone else had...
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    I found out the same way. He had me take 10,000...

    I found out the same way. He had me take 10,000 iu dailyfor a month and then put me down to 5,000iu daily. In Alaska we have darkness allot and can't be in the sun in the summer. Also, my Dr. told...
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    Sorry I did respond sooner. Been under the...

    Sorry I did respond sooner. Been under the weather and not on my computer very much. I do 2 injections a week because I was in so much pain, they decided to split it up and take twice a week. ...
  14. Hi Nihao, We learn to adjust and explain better. ...

    Hi Nihao, We learn to adjust and explain better. Was diagnosed 16 years ago. I found the easiest way to explain to people is weird, but, they do understand it better. I ask people if they know...
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    I know how you feel. I have the same pain too. ...

    I know how you feel. I have the same pain too. They started me on methatrexate injection a couple of years ago. Has helped allot. But, still have the finger pain in the a.m. We just tried lowing...
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    I take 1 mg twice a day. But rhumey told me not...

    I take 1 mg twice a day. But rhumey told me not to take the folic acid on the days of my injections. But, I thought I was on the highest amount of folic that I could take. Put a call to Dr. today,...
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    With me, I found that I will start to get the...

    With me, I found that I will start to get the cold or virus and turns quickly into a flare. So, I always tell my friends, "I love you dearly, but, if are sick or if you think you might be, please...
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    I took have all 3, lupus, fibro and RA. I found...

    I took have all 3, lupus, fibro and RA. I found Cymbalta works really well for me. I go to a neurologist (sp), who takes care of the fibro and migraines. My rhuemy says seeing him is great, sense...
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    I do. When I am really low, my GP will have me...

    I do. When I am really low, my GP will have me have a weeklly shot of B12, then go back to my monthly B12. Seems to work pretty well so far.
  20. I was taking 50,000 daily for 2 weeks and then my...

    I was taking 50,000 daily for 2 weeks and then my rhumey Dr. put it to 5,000 i.u. daily. My B12 level was really low too. So, once a month I get a B12 shot.
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    Methatrexate Injections and Ulcers

    I get .6 methatrexate injections twice a week. My husband gives them to me actually. And I have really severe mouth ulcers. Was wondering if anyone else has had this problem with either the...
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    I have to take 15 different meds a day, I set my...

    I have to take 15 different meds a day, I set my alarm on my cell phone and what it is I am taking at the time. When friends are over they hear my phone alarms and say "Time to take your Meds...
  23. What a powerful song. It made me think so much...

    What a powerful song. It made me think so much of what I have been trough with Lupus and I get back up stronger then before. Being depressed seems so much of life with Lupus.
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    It sure can. Another thing to do is get your...

    It sure can. Another thing to do is get your annual flu shot too. I also got the pneumonia short. My family and friends know if they are sick that they can not be around me.
  25. Welcome Lupus Lady, I found this site about a...

    Welcome Lupus Lady, I found this site about a week ago and love the people and information I get here. I was diagnosed with SLE 15 years ago and take Methotrexate. I do the injections twice a week....
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