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Type: Posts; User: Shanna

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    Stage 4 Kidney Nephritis...

    Here's what I have been going through.
    I went to my local hospital after having pain in my chest and hard trouble breathing. They said I had fluid around the heart (pericardial effusion). Was...
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    I had that problem with plaquenal too,along with...

    I had that problem with plaquenal too,along with some others. My doc ended up putting me on Cellcept at that time. Good luck with that, hopefully you can figure it out and stay on it.
  3. I just had my first treatment yesterday, so I'll...

    I just had my first treatment yesterday, so I'll be interested in following your posts as well. I'll also be posting soon about my whole experience with this kidney nephritis dx. Looking forward to...
  4. I'm still in the hospital and it is scheduled to...

    I'm still in the hospital and it is scheduled to be done tomorrow afternoon. Up until today the cardiologist seemed certain it needed to be done and he made me feel confident. Today he almost seemed...
  5. hello my lupie friends, I have a question for you......

    Can anyone give personal advice on having pericardial effusion? I finally came and got admitted to hospital Thursday night because my bp was 181/101 and I just couldn't breathe, I thought I had some...
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    I have reduced my Cellcept and I don't think I...

    I have reduced my Cellcept and I don't think I had any problems, but for me it's so hard to tell what is what anymore LOL! I can never tell if the symptoms I'm having are from Lupus or from meds....
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    Your story sounds familiar to mine, I too lead a...

    Your story sounds familiar to mine, I too lead a healthy lifestyle,I also taught spin classes at the gym. Anyways, about the lesions.... I got those too real bad and I was freaking out...went to my...
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    I couldn't keep up, I had to cut way back. I...

    I couldn't keep up, I had to cut way back. I don't have an answer for you but I wanted to encourage you and let you know that I understand how hard it gets and that I think you must be a very strong...
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    Are you on prednisone? That always does it for me?

    Are you on prednisone? That always does it for me?
  10. Thread: Benlysta

    by Shanna
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    Well, If I can be of any help to anyone Please...

    Well, If I can be of any help to anyone Please ask away. All I can give you are answers and opinions based on my experiences. It has been a year come March that I've been getting Benlysta infusions....
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    I think you have to make sure you are seeing a...

    I think you have to make sure you are seeing a doc who really has a good understanding of what our symptoms are and what side effects we suffer with. I have been with my doc seven years, even before...
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    I lost probably 75percent of my hair. Now I have...

    I lost probably 75percent of my hair. Now I have been wearing those clip in hair extensions and they look great, nobody can even tell. I didn't get a bad rash on plaquenal but I got very suicidal....
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    Ask your doc if you could try cellcept,that's...

    Ask your doc if you could try cellcept,that's what I take cause I didn't do well on plaquenal either. The Crockett takes a little while to work,and it might make you feel sick at first but then you...
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    Hi, if this is lupus then maybe it's at an early...

    Hi, if this is lupus then maybe it's at an early stage and treatment can hopefully keep it from flaring into something nasty. I had joint pain in the beginning and was told it was RA, I hate meds so...
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    Lol.....oh, it's all such a catch 22 isn't it!...

    Lol.....oh, it's all such a catch 22 isn't it! Sometimes I find myself over thinking it :(
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    Yes, this seems to be a common problem, I too...

    Yes, this seems to be a common problem, I too have put on about 30 lbs. Lucky I had always been very thin but I'm worried about gaining more. The rhuemy told me he doesn't recommend any "weight loss"...
  17. Thread: Love & Lupus

    by Shanna
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    I'm a firm believer that everything happens for a...

    I'm a firm believer that everything happens for a reason. I met my bf a few months before I got sick. Turns out his stepmom has lupus so he is familiar with it. He is the most caring,loving...
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    something to be GRATEFUL for

    First off, I'd like to wish everyone a very happy and healthy Thanksgiving. I went to my rhuemy the other day and found out that my labs have improved greatly. My double stranded Ana( not sure if...
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    It's a catch 22. I have put on 25lbs(and gaining)...

    It's a catch 22. I have put on 25lbs(and gaining) since being on Benlysta,the Dr. says it's fine cause I'm still in normal range for my heighth, as I've always have been very thin. I'm ok with what I...
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    I've been on Cellcept,at first I had bad...

    I've been on Cellcept,at first I had bad nausea,but it went away. I can't take Plaquenal. I am currently on both, Cellcept and Benlysta, I feel better than I ever have since being diagnosed.
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    Who knows what you have??? Let's hope it's not...

    Who knows what you have??? Let's hope it's not Lupus,but if it is there are ways to live with it. Stressing is not good for you,especially if you have Lupus.Just take it one day at a time. Don't get...
  22. Thread: Hello All!

    by Shanna
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    Toni, Lupus is a tough one to accept, I...

    Toni,
    Lupus is a tough one to accept, I suggest you get your spouse involved as you read up on this. The more he learns the more he can understand and the better support he can be! I am so lucky...
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    I have cysts as well, the pain was so bad, I went...

    I have cysts as well, the pain was so bad, I went to see the gyno and she is putting me on a low dose of progesterone everyday.She says hopefully that will work to reduce the cramping,otherwise we...
  24. Thread: New to Lupus

    by Shanna
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    Tgal, I wasn't suggesting for Jamie4122 to do or...

    Tgal, I wasn't suggesting for Jamie4122 to do or not to do anything holistic, I just wanted to encourage her to educate herself on Lupus. I myself know not to depend on diet alone as treatment.
  25. Thread: New to Lupus

    by Shanna
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    Lucky for us the net has so much info,we can now...

    Lucky for us the net has so much info,we can now inform ourselves,and that's where you should start. Good luck on this journey!
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