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  1. Replies
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    Saysusie I just wanted to thank you. I am so...

    Saysusie

    I just wanted to thank you. I am so nervous because it feels like they will never get me back to normal. Every week they are doing new tests and they do not explain anything. I don't...
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    Peeing all night long

    At this point I am throwing so many symptoms at my doctors I am begining to feel like a fool. It is just that when I flare the whole body goes to pieces. Let me bounce this one off of you to see if...
  3. Thread: Please translate

    by PJ
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    Please translate

    OK got some test results back. My SED rate is 32 and it should be under 20. My white cell count is 17 and should be between 3.5 and 10. My ANA was negative again.

    The swelling is still there as...
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    A kidney / swelling question

    Its looking more and more like the original lupus diagnosis is going to be on target. Not thrilled about it but hey thatís life. Better to know what I am looking at.

    Over the holidays I have...
  5. I think you are right about the hairloss being...

    I think you are right about the hairloss being lupus related. Mine is just thinner all over but I read something about what you are describing and it is common. Hair dye can only effect the dyed...
  6. Thread: Help, need feedback

    by PJ
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    I am still in limbo so they are taking me off the...

    I am still in limbo so they are taking me off the prednisone to run some other tests. The one for crohn's has been run before so I doubt it will come to anything. Believe me, my intestines are the...
  7. Thread: New and ANGRY!

    by PJ
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    Karen, I am so sorry about your son. No amount...

    Karen, I am so sorry about your son. No amount of time heals a hurt like that but you are right doctors seem to forget that hurting from a loss doesn't equal physical collapse. When my second...
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    I just wanted to wish you all well. It was 3...

    I just wanted to wish you all well. It was 3 years ago that I finally had to give in to my illness. I pushed and pushed for so long that my body just went into collapse. If I had it to do over...
  9. Thread: New and ANGRY!

    by PJ
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    Thanks for the welcome y'all. If anyone sees...

    Thanks for the welcome y'all. If anyone sees this who has been here long enough to feel comfortable giving advice I would be really grateful if you could take a look at my post under newly...
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    It sounds like we have been down the same road. ...

    It sounds like we have been down the same road. I hope things go better for you soon.

    PJ
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    Hang in there and keep appealing. As a...

    Hang in there and keep appealing. As a suggestion if you are not seeing a therapist for the depression I would suggest making an appointment. I am not suggesting this because of the depression or...
  12. Thread: Help, need feedback

    by PJ
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    Thanks Jody, The gastro and my GPs partner...

    Thanks Jody,

    The gastro and my GPs partner gave me the impression they were sure and I do think the rhuem is leaning towards lupus because of the photosensitivity. It is just the sitting here...
  13. Thread: Help, need feedback

    by PJ
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    1,278

    Help, need feedback

    I saw a rhuem for the first time yesterday. My gastro had made a preliminary diagnosis of lupus even thought my ANA was negative. My GP's partner agreed even though my GP thought the lack of a...
  14. Thread: Hi I am new too

    by PJ
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    Hi, I'm PJ and I'm new here too. I don't have...

    Hi, I'm PJ and I'm new here too. I don't have anything useful to contribute I just wanted to welcome you.
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    I'm sorry that you are going through this. It is...

    I'm sorry that you are going through this. It is awful to have to face the prospect of serious illness when you have your whole life ahead of you and just want to enjoy it.

    I'm newly diagnosed so...
  16. Thread: New and ANGRY!

    by PJ
    Replies
    7
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    1,363

    New and ANGRY!

    Hi, my name is PJ and I am newly diagnosed. I now realize I have had lupus for at least 15 years or possibly longer. In the beginning I was one of the fortunate ones. Most of the time I was in...
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