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    Sorry everybody, I'm not sure what the problem...

    Sorry everybody, I'm not sure what the problem with the link is but if you go to the main page and click support services, and then Information and referral services it's ont that page...se Right...
  2. out of shape, heart issues or breathing problems?

    Hi evryone, hope everybodyis doing ok...I have a question about ,,,,Lupus I guess!
    I have been getting really, really tired lately, in the past year or so things are just not settleing down, I have...
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    Actually I have found somthing I am going to try,...

    Actually I have found somthing I am going to try, it is a video that was made just for us by experts that know us...I found it at the Lupus Foundatation of America, Piedmont Chapter
    it is a long...
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    the slow-mo blues

    I am so miserabley tired. It doesn't matter what i do or don't do. I feel fat and out of shape and i hurt. I wnt to be able to do an exercise program but my hip joints are on fire and will only get...
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    I kind of would really like to have a collection...

    I kind of would really like to have a collection of a day in the life, detailed of coarse, from everyone,...it helps... funny I googled just that, "a day in the life Lupus" sure enough somebody has...
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    Describing a day in the life.

    Hi, I have been trying to figure this new illness that has been added to my life. I find that there is so much formal information out there, as there is with most illnesses. But I just get so tired...
  7. Thread: Bloating

    by Sandra
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    Just another thought...I have been told I have...

    Just another thought...I have been told I have Lupus and Sjogren's....I kind of thought that the blaoting and constipation issues were due to the dryness of sjogren's....do any of you have sjogren's...
  8. Thread: Bloating

    by Sandra
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    This post makes me feel better....well not alone...

    This post makes me feel better....well not alone anyway....I also have to use lactulose sometimes and sometimes it takes takes a couple of days for even that to work....but speaking of the gas and...
  9. Thread: Bloating

    by Sandra
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    Bloating

    Hi everyone hope all is going ok, I have a problem that arrises now and again, I'm going to call it bloating as I don't know what it could be....I have just a miserable time eating. My stomach always...
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    Itching and Burning

    Hi all hope evryone is doing ok. I have a question that i hope someone can help answer.
    I have been feeling pretty bad lately, I am being investigated for nervous system issues. When I am in one of...
  11. Thread: neuropathy

    by Sandra
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    neuropathy

    Hi all hope everyone is doing ok and forging onward without to much pain and difficulty. Thought I might confide a bit. I have really been dealing with things the last couple of years. It has only...
  12. Thread: Here I go again

    by Sandra
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    Hi Drassar RN, you mentioned in your post that...

    Hi Drassar RN, you mentioned in your post that you had a terrible week last week...did you mean pain wise or work and stress wise? I too have been in bed for much of last week and this week....and I...
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    The more I read the more I am the same... I have...

    The more I read the more I am the same... I have even stopped going out to dinner as I hate to pay for a plate and eat three bites and I'm done! Feel so full like I ate the whole world. That pain is...
  14. Thread: EMG Test today

    by Sandra
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    EMG Test today

    Ouch! Do you know they did that shock thing in my neck! And once wasn't enough they had to repeat the test as they weren't getting something they wnated the first go round...any way seems much like...
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    frustrating for sure, and of coarse it all...

    frustrating for sure, and of coarse it all becomes a big cirlce as I need sleep to keep my lupus and other issues under control.....I too take amitriptyline 10 mgs at night and it does work for the...
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    My Kingdom for some sleep

    Oh Gosh, I am so tired but do you think I can fall asleep and stay asleep! It's 2:30 am again and here I am....I fall asleep fairly well when I go to bed and then boom I'm awake again, never to fall...
  17. Thread: EMG Test

    by Sandra
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    Hi, no not yet, I go on Tuesday, I am a bit...

    Hi, no not yet, I go on Tuesday, I am a bit disappointed about the lack of rsults everybody has mentioned....I do so wish and hope for some help with the strange symptoms I'm dealing with. i was just...
  18. Thread: Hydroxiquine

    by Sandra
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    Hydroxiquine

    Hi started on Plaqu June 26/09, 200mg. I have tried before at 400mg and 200mg and failed to be able to handle it. My rheumy is very concerned and needs me to try again. I think this latest issue,...
  19. Thread: All Locked UP

    by Sandra
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    All Locked UP

    Hi everybody, feeling pretty bad today....and confused as per usual with this disease.
    I had a very rough week last week, one of those where no matter how much I wanted to stop this world so i could...
  20. Thread: EMG Test

    by Sandra
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    Hmmm, thanks for the heads-up re pain but now I...

    Hmmm, thanks for the heads-up re pain but now I am wondering why they bother to do it?
    I have numb hands in the morning, and weird jolts of electricity that shakes my body and sometimes my brain,...
  21. Thread: EMG Test

    by Sandra
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    EMG Test

    Hi guys, hope everyone is doing ok. I was wondering if anyone has had an EMG test. It is done by a neuro and is a test that tells how the muscle responds to stimulus. My muscles are weak and from...
  22. Thread: Sun effects ???

    by Sandra
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    There is no escaping the sun for me, I'm in...

    There is no escaping the sun for me, I'm in Canada and we all wait for months for the snow to melt and the cold to leave just to enjoy the nice weather and then I can't go out into it!
    I use 6o...
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    Wow, so hope everyone is doing ok with this...

    Wow, so hope everyone is doing ok with this miserable symptom/issue. Emotionally I mean. It is particularly cruel. For me it is the cruelest when others who are not apprised of lupus let alone it's...
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    Anyone with CNS issues?

    Hi, I knew I was dealing with "something" horrible for a long time, years in fact. I had seen so many physicians to try figure it all out. I was treated by so many on a symptoms only basis. It has...
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    Me too, headaches I mean. for the past 2 weeks...

    Me too, headaches I mean. for the past 2 weeks I've been battleing pain and inflammation in my neck and head, so much so that i can't seem to lay down, have to try sleep sitting up. One night I was...
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