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  1. Thread: TNF treatment

    by Evenstar
    Replies
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    1,138

    TNF treatment

    Hi guys,
    My rhuemy is talking about putting me on TNF treatment, in the form of regular injections. I dont really know a lot about this form of treatment. Please can anyone who is on or has had...
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    Hi, yep I get these twitches too, particularly...

    Hi,

    yep I get these twitches too, particularly in my feet which end up in severe cramps. I have spoken to a couple of my doctors about this and both have dismissed it as not being lupus related. ...
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    Hi Sombras, Good luck in finding a GP with...

    Hi Sombras,

    Good luck in finding a GP with experiance of lupus. My last three have been what i perceived as ignorant to the illness. My current one still cannot beleive that at 25 I have lupus...
  4. Hi LaLondon, Sorry to hear about your...

    Hi LaLondon,

    Sorry to hear about your difficult time with surgery / job loss.
    I have experianced rheumatic problems since early childhood (doc said they were growing pains, makes me so mad now...
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    Trisha, well I would say that it was around the...

    Trisha, well I would say that it was around the time of my diagnosis since I havent felt well since. It is difficult and frustrating, but still I have inly had scares of serious organ involvement. ...
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    Hi Trisha, glad you had a good weekend, I had...

    Hi Trisha,

    glad you had a good weekend, I had a nice one too.

    Hmm, no i cannot say that I feel normal on any days. I just have days where I feel worse than other days or like you say periods...
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    Hi Trisha, Hope you had a nice long weekend...

    Hi Trisha,

    Hope you had a nice long weekend and are feeling better today.

    regarding your question, I was diagnosed with lupus coming up 2 years now and the arthritis about 6 months. There was...
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    Trisha, I can relate, my first doctor was bang...

    Trisha,

    I can relate, my first doctor was bang on for blood tests and when something did show up I was diagnosed. However she couldnt treat me and referred me to a lupus specialist, he looked at...
  9. Thread: Bad day

    by Evenstar
    Replies
    6
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    1,613

    Hi madthumbs, thanks so much for replying to me...

    Hi madthumbs, thanks so much for replying to me and for your very kind suggestion. it appears i have missed out, but thanks again for your offer your too kind. :wink:
    take care
    carly
  10. Replies
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    Hey no worries, it helps me to no end to speak to...

    Hey no worries, it helps me to no end to speak to people whom as you say understand.

    well i live in the UK which as you can imagin is not very hot here. I would say that maybe my symptoms are...
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    Hi Trishab, Firstly you are not a complainer. ...

    Hi Trishab,

    Firstly you are not a complainer. No one wants to be in pain or tired you are just expressing your feelings to people who understand what you are going through. :D And your not lazy,...
  12. Thread: Bad day

    by Evenstar
    Replies
    6
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    1,613

    Thanks Ruvi for your reply. Your so right...

    Thanks Ruvi for your reply.

    Your so right about the hobbies suggestion. I have been looking into this so that instead of getting home from work and collapsing on the sofa and watching tv untill i...
  13. Thread: Bad day

    by Evenstar
    Replies
    6
    Views
    1,613

    Bad day

    Hello you guys,

    I’m having one of those “why me” days – its pathetic I know but I am having trouble snapping out of it. I am so frustrated as the past couple of days have been more what I can...
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    Chest pain, anyone?

    Hello to you all, :D

    I was wondering if anyone else experiences chest pain? I get this pain across the left side of my chest, I can only describe it as a clogging and stabbing pain, and it feels...
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    Hi Deb, I have SLE and sero negative...

    Hi Deb,

    I have SLE and sero negative arthritis. I don't have RA but my docs always check for this in my blood tests, as they told me it is possible. I have had an MRI to check for MS after being...
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    Hi Dency, I have the tingling sensation in the...

    Hi Dency,

    I have the tingling sensation in the head you mention too, sorry that you get this I know how worrying it is. I went through a really bad spell of this a while ago and it has really...
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    Hi Sonia, Poor you, you must be in a lot of...

    Hi Sonia,

    Poor you, you must be in a lot of pain without any meds right now. That must have been some experiance having all those doctors around you.
    My Rheumy always says that my liver is over...
  18. Hi Klaire, Just wanted to say hello, I have...

    Hi Klaire,

    Just wanted to say hello, I have SLE and arthritis too altough I don't have the rheumatoid factor, (nor the X factor either these days. :lol: )
    I'm glad that you are feeling better in...
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    Hi Debbie, I just wanted to reply to you about...

    Hi Debbie,

    I just wanted to reply to you about the steriod shot. I get them from time to time and the doctor warned me that the first 48 or so may result in the pain being worse, particually...
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    Well hello to you two, Just thought I'd add that...

    Well hello to you two,
    Just thought I'd add that I know what the two off you mean. Mine normally just comes from nowhere, and dosen't normally last long, about 5 or so pluses. To me it feels like...
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    That's great that your Mum has been supporting...

    That's great that your Mum has been supporting you. I live in the UK so benefit rules will be different. I am pretty sure you would be entitled to benefits though if you are unable to work, but I...
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    Hi All, Sonya, I just read your last post and...

    Hi All,

    Sonya, I just read your last post and wanted to second what Tracy has said. It's unbeleivable with medical professionals in your family you still get no support. Just wanted to say I...
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    Hi Sonya, Just wanted to say I hear ya! No...

    Hi Sonya,

    Just wanted to say I hear ya! No matter what myself or the docs do I just seem to be getting worse. I force myself to do as much as I can and suffer badly, but I want to get on with my...
  24. Hi Melinda, Thanks for the hot yoga...

    Hi Melinda,

    Thanks for the hot yoga explanation!! About the heat thing, I'm not sure. I do find that heat is a pain relief and comforting for me. I also find that hot tubs/baths increase...
  25. Hi Melinda and Tracy, Hope you are both having...

    Hi Melinda and Tracy,

    Hope you are both having a good day. It's so nice to talk to you both.

    What is this hot yoga then? I haven't heard of it in the UK. Speaking of differences in the UK, I...
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