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  1. Hello Musick- You will find nothing but pure...

    Hello Musick-
    You will find nothing but pure understanding here at WHL. The people here are like a life support system. I have had sle for 8 years and been diagnosed about 5. I have never had a...
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    Donna- Welcome, hope you will find all you need...

    Donna-
    Welcome, hope you will find all you need here. Hope you get to feeling better soon.
    Hugs-Heather
  3. Thread: Newbie

    by xani's mom
    Replies
    7
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    782

    Hello Lablover- You have found a haven that is...

    Hello Lablover-
    You have found a haven that is the only way to put it. The people here are angels, they will give you advice, or just say hey I get it. The ability to do the same for others with...
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    tgal- Don't worry it will be ok eventually. ...

    tgal-
    Don't worry it will be ok eventually. They always deny the first time. It could take awhile though. My first reply was that I needed to get a job where I wouldn't need to use my hands and...
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    Nonna- Your job is like my dream job! I have...

    Nonna-
    Your job is like my dream job! I have always wanted to work in advertising, it must be so much fun!
    Hugs-Heather
  6. Hi Terri- All these wonderful ladies have given...

    Hi Terri-
    All these wonderful ladies have given you a lot of good advice. I sometimes feel a lot like you, but recently I thought " the side effects of theses meds have to be worse than the actual...
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    over Medicated

    I was wondering about how you guys take meds. Here is my problem I get up and take 1 oxy then I am supposed to take 1 zanaflex, 2 plaquanal, 2 immuran, 1 375 aspirin, 1 docyclomine, 20 meq...
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    Linda- I have been out of the loop for awhile,...

    Linda- I have been out of the loop for awhile, didn't realize you were having surgery. I hope everything went well, and you have a strong recovery. Thinking of you-Heather
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    Terry- I am so happy for you that you finally...

    Terry-
    I am so happy for you that you finally got to talk to somebody who wants to help you. I'm sorry you had such a bad day though, I've been through those biopsis more than once and I know they...
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    Marla- This is exactly what is so loving about...

    Marla-
    This is exactly what is so loving about you. You fall down in one of the most embarassing situations possible and then have a good laugh about it. I am glad you didn't hurt yourself to...
  11. I don't know about sushi, never had it. But I...

    I don't know about sushi, never had it. But I know caffeine and beer flare me up. The caffeine I think is a no no for most of us. I used to have a beer once in a while and I would almost...
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    Tgal- Social security disability is a straight...

    Tgal-
    Social security disability is a straight pain, and I am fairly sure they have to deny you the first try. I am very lucky I have a great job and I draw disability from my retirement. But my...
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    Sticky: These are all hilarious. You know you have brain...

    These are all hilarious.
    You know you have brain fog when you can't find your cell phone, so you pick up your cell phone and call your cell phone to find it by ring and it's in your hand. What's...
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    Terri- Well they have to do something about the...

    Terri-
    Well they have to do something about the bleeding now! They can't continue to let you go like this if you are already anemic. Good luck at the Gyno tomorrow, but if they don't at least...
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    I think I read that you take 5 mg of the dreaded...

    I think I read that you take 5 mg of the dreaded prednisone a day. That is not going to help you much, especially if you take it regularly. I am so sorry about your insurance. Could a lawyer or...
  16. Hi Cynde- I am Heather and I have SLE, UC,FMS I...

    Hi Cynde-
    I am Heather and I have SLE, UC,FMS I live in Illinois though. Welcome to the site you will meet lots of great people here.
    Truly-Heather
  17. I to think your positive thinking is great, and I...

    I to think your positive thinking is great, and I know a friend who has scleraderma and tested pos for lupus and has never had a single symptom. I hope the best for everyone in this situation. I...
  18. I am sure this is very true. I know I miss...

    I am sure this is very true. I know I miss dosages, but I take 26 pills a day. I have to take most with food if I don't eat I don't take the meds. Don't take the meds don't feel well don't eat. ...
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    I was kind of wondering about this myself, you...

    I was kind of wondering about this myself, you guys all seem to know all your numbers. I like my rheum real well but he never gives me any numbers. He just says your sed is way to high or your ada...
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    Oh my, I am just like that with the red face. I...

    Oh my, I am just like that with the red face. I mean I have a pretty prodominent red butterfly rash on my face anyway, but if I get the least bit over heated My entire face is cherry red. I...
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    tgal- Good luck! I'm five years in and still...

    tgal-
    Good luck! I'm five years in and still can not recognize when I might flare or why, so at least you are one up on that. Can you call your doc and get started on a dose of the dreaded...
  22. Thread: Remission

    by xani's mom
    Replies
    9
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    775

    I also have a bit of "flavor of the month" I...

    I also have a bit of "flavor of the month" I think. I hadn't had a headache in a long time, and then for the last two weeks I have had a constant headache. It's not a throbbing migraine or anything...
  23. Thread: Remission

    by xani's mom
    Replies
    9
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    775

    O.K. I thought maybe a lot of people got to...

    O.K. I thought maybe a lot of people got to experience a remission, because I have never been that lucky. Honestly my doctors never even mentioned it was possible, which kind of upsets me. On...
  24. Thread: Remission

    by xani's mom
    Replies
    9
    Views
    775

    Remission

    I have read through a lot of the posts on here, and I am still kind of confused about something. Do some of you guys go into remission? Or I guess what I am asking is what are you calling remission...
  25. Thread: Kia Ora

    by xani's mom
    Replies
    4
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    697

    Welcome Mrs. Pony I hope you find what you are...

    Welcome Mrs. Pony I hope you find what you are looking for right here. I know I have.
    Truly-Heather
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