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  1. In January while recovering from surgery I taught...

    In January while recovering from surgery I taught myself to knit.....and I'm off and running. It's opened up a whole new world for me. Beautiful colors and textures and patterns!!!!! Now I'm waiting...
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    Have a question about lungs

    I recently had a chest x-ray and it showed lung calcifications. The doc said they had been there a while and didn't seem too much bigger. I asked if it could be from smoking ( I quit almost 20 years...
  3. Oh sweetie, I read your post and almost cried....

    Oh sweetie,
    I read your post and almost cried. I've been there, I think most of us have. You've gotten some good advice so I won't add to it. I'll send some hugs instead.
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    Good news; funny and frustrating

    Hi everyone,
    I've been gone a while because I was plotting and planning my next medical adventure. I've had a bunion on my right foot for years and my doctor told me to come back and see him when I...
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    Oh jeez, this is a revelation. My nose gets real...

    Oh jeez, this is a revelation. My nose gets real cold too and it sometimes stings. Also, the tip gets real red. I never thought about Raynaud's before. But it makes sense. When my hands get cold at...
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    There are several companies (the names escape me...

    There are several companies (the names escape me at the moment, sorry) that make a parrafin bath for hands or feet. You heat it up about an hour or so before you want to use it. The wax (some of it...
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    Benlysta questions

    Hi guys,
    I had my rheumy visit last week and he suggested (strongly) that I start Benlysta. He gave me a folder and just some basic information. He told me to go on the web and get information. He...
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    Oh yes...I sometimes refer to it as the Lupus...

    Oh yes...I sometimes refer to it as the Lupus Lottery of Pain. It's like my meatloaf...never the same way twice. My hands are always hurting to some degree. Some days I can't even take dishes out of...
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    I have one big plus and one big minus. The plus...

    I have one big plus and one big minus. The plus is that Lupus forced me to slow my life way down...in what can be the rat race of life the rats were winning...in doing so I rediscovered my love of...
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    You have my sympathy sweety. I'm a member of this...

    You have my sympathy sweety. I'm a member of this club too. The worst thing I think I do is misjudge where the opening to the door is and slam into the doorway. I try to race through the house with...
  11. Thread: warts

    by BarbaraB
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    It's odd you should bring this up. I'm 54 and...

    It's odd you should bring this up. I'm 54 and never had warts but now I have 5 on my hands and one small one on my foot. All have cropped up within the last few months. I thought it was strange but...
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    I'm originally from the burbs of Philly but I've...

    I'm originally from the burbs of Philly but I've lived in Folsom, Broomall, Bryn Mawr, Conshohocken, Hatfield and Warminster. Right now I'm living in the north central part of PA....Mansfield right...
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    I'm celebrating today

    I have just taken my last dose of prednisone for a flare. Tomorrow I go back to my usual 5 mg. This flare has been especially long and hard.....with a loooonnnnngggg taper. I was on Prednisone 60 mg....
  14. Thread: Sun exposure

    by BarbaraB
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    I'm about halfway between Wellsboro and...

    I'm about halfway between Wellsboro and Mansfield; two pretty small towns just south of Corning New York. Strangely enough last summer was the first year that I had issues with the sun. I thought...
  15. Thread: Sun exposure

    by BarbaraB
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    Sun exposure

    Here's a quick question for anyone. Do we need to watch our sun exposure in the winter? I live in the Northeastern part of the US and never considered this until now. Just don't know. I have a very...
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    Hi all, forum is a new thing

    I've had Lupus for about 10 years; I have some kidney, liver, lung and heart damage, but life is pretty good. I got laid off a little over 2 years ago and couldn't find another job...so I consider...
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