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Type: Posts; User: Saysusie

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  1. Replies
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    Hi Ramfinsassy; Cynda Rae has not been active...

    Hi Ramfinsassy;
    Cynda Rae has not been active here since 2009. We have many members who do read the posts here regularly, however, they do not submit posts of their own. But, hopefully, one from...
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    First off, let me say that I am sooooo happy to...

    First off, let me say that I am sooooo happy to hear that you've finally had a doctor who is a) knowledgeable b) concerned c) pro-active!!
    It is such a relief to have a doctor understand and want...
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    Hello Ruziska; Glad to see/hear you again. I...

    Hello Ruziska;
    Glad to see/hear you again. I remember when you first got Karma and felt it was such a blessings. I'm glad to hear that she is still a blessing and, alerting to your blood...
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    Hello Jessica and welcome to WHL. We've been...

    Hello Jessica and welcome to WHL. We've been asked, previously, about support groups in Orange County. My search was not very successful then and was still not very successful today. Below is all...
  5. Thread: Kombucha

    by Saysusie
    Replies
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    1,827

    Hey Ruziska: It's been a while!! I'm so glad...

    Hey Ruziska:
    It's been a while!! I'm so glad to hear that it is working for you and that is has made great improvements in your digestive system. I do hope that every thing else is going that...
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    Hello Trisha; Welcome to our family. I am...

    Hello Trisha;
    Welcome to our family. I am glad that you found us and that you decided to join us. I do hope that we are able to help you as we are here to do just that! Again....welcome!!
    ...
  7. Just checking in on you to see how you are doing....

    Just checking in on you to see how you are doing. I'm sorry to hear that the Benlysta is not working for you. There are alternatives to Benlysta that you and your doctors might want to consider. ...
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    HAPPY 4th OF JULY!!

    WISHING EACH AND EVERY ONE OF YOU A VERY HAPPY HOLIDAY. BE SAFE, BE HAPPY, AND MOST OF ALL, BE HEALTHY!!


    Peace and Blessings
    Namaste
    Saysusie
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    Survey Request

    Hello WHL family;
    Conrad received the following request for a survey and passed it on to me. We don't usually participate in these things, but I hate to hamper anyone who is trying to further...
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    In many cases, drug-induced Lupus eventually goes...

    In many cases, drug-induced Lupus eventually goes away when the drug is discontinued.
    Here are some studies and articles related to drug-induced Lupus with Acneccutan:
    ...
  11. I'm glad to hear that. Please continue to talk...

    I'm glad to hear that. Please continue to talk to one another and to educate youreselve, together, about this disease. Warm hugs to you both!

    Peace and Blessings
    Namaste
    Saysusie
  12. Replies
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    Sticky: How about: You telephone your son and for a full...

    How about: You telephone your son and for a full 5 minutes...you cannot remember HIS name!!!
  13. Replies
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    132

    Hello and Welcome; I'm sorry that you have...

    Hello and Welcome;
    I'm sorry that you have this disease. But, I am happy that you found us and that you decided to join us. It is good knowing that you are not losing your mind and that there...
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    You should NEVER feel guilty Brenda! Your...

    You should NEVER feel guilty Brenda! Your symptoms are real and sun exposure is one of our worst enemies. So, going outside to sit in the sun on a lovely day is like going outside and shooting...
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    I can only ad "DITTO" to what Steve has said! I...

    I can only ad "DITTO" to what Steve has said! I am one of those patients who have Lupus AND Fibromyalgia. And please believe me...Fibromyalgia is only too real and its pain and symptoms can be...
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    First; let me welcome you here to WHL. I am glad...

    First; let me welcome you here to WHL. I am glad that you decided to join us and please know that we are here to help you and support you as much as we can.
    As Steve mentioned, it is very...
  17. Hello and Welcome! Steve is absolutely right;...

    Hello and Welcome!
    Steve is absolutely right; reading and learning are the best things that you can do for both you and for her. If you both learn as much about this disease as you can, it will...
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    No one is ever a burden here. One of the main...

    No one is ever a burden here. One of the main reasons why WHL exists is to allow everyone to vent their frustrations duriing this scary and lonely journey. I would still encourage you to try to...
  19. Hi Bakedtater: Thank you for sharing this. It...

    Hi Bakedtater:
    Thank you for sharing this. It was inspirational. Yes, you are allowed to share links such as these. Take a quick look at our rules for restrictions on what can be posted or...
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    Goodness; I totally agree, this was something...

    Goodness; I totally agree, this was something that they should have discussed with you prior to releasing you. I'm glad that you are following up with your doctor on Friday and make sure that he...
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    Sticky: Hey Sairz: You are so right...this is now such...

    Hey Sairz:
    You are so right...this is now such a part of us and I'm glad that you, too, can find humor in it knowing that you Are Not Alone!!!

    Peace and Blessings
    Namaste
    Saysusie
  22. Replies
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    Hello and Welcome Sairz: You've already met...

    Hello and Welcome Sairz:
    You've already met Steve, a fellow Aussie and, as he said, there are several other members here from Australia. Hopefully some of them will drop by and say hello to you. ...
  23. Thread: New girl

    by Saysusie
    Replies
    2
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    117

    Hello Bell666; Welcome to our family. I am...

    Hello Bell666;
    Welcome to our family. I am happy to hear that you have no major issues with your Lupus. I hope that this also means that you are able to enjoy your life..your Hawaiian life...
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    There is no such thing as "rambling" here. These...

    There is no such thing as "rambling" here. These are very serious issues that you are dealing with and the potential dangers are not to be taken lightly. You are fighting a hard battle my friend...
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    This has to be such a very frightening ordeal for...

    This has to be such a very frightening ordeal for you. Especially given the fact that no one can give you any definitive answers or treatment! It is an unfortunate fact that blood clots are more...
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