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  1. Thread: Dear Lupus

    by deester
    Replies
    9
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    1,584

    When I first posted I wasn't sure what I wrote...

    When I first posted I wasn't sure what I wrote would be understood. This is what was in my head and the words just roled out and I kept talking to my diseases.

    I am so glad to know I was...
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    Snowing here in PA to and I HATE it! :evil:

    Snowing here in PA to and I HATE it! :evil:
  3. Thread: Dear Lupus

    by deester
    Replies
    9
    Views
    1,584

    Dear Lupus

    Hello dear Lupus, Sjogrens, Raynauds. Are you having a good time? I suppose you all know my news. I am not having a good time. No, been abed for 5 days. And you all know why to. Yes you do, you kept...
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    The results are in

    Ok. The rheumy called back today and there is a mix of good and bad news.

    He confirmed my Lupus SLE (this is only the 5th time it has been confirmed for petes sake) and confirmed Reynauds (again...
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    Oh K. Big hugs hun. I feel your pain and I wish I...

    Oh K. Big hugs hun. I feel your pain and I wish I had words for you. I have miscarried a total of 15 times and yet my heart still dreams and desires another child so much. I can understand where your...
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    Thank you for that Oluwa! VEry helpful. I get...

    Thank you for that Oluwa! VEry helpful. I get sinusitis about 4 times a year for as long as I can remember and walking pnemonia(sp) about twice a year....never thought anything of it. Just chalked it...
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    Feeling about the same. Went to bed early last...

    Feeling about the same. Went to bed early last night and got up at 11 a.m.! Slept right on through everything yet I still feel exhausted. Maybe I overslept this time. I dunno. Still no word from the...
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    I get fevers all the time to. I hate them. they...

    I get fevers all the time to. I hate them. they make my head buzz. I always just take tylenol and motrin on a rotating schedule Motrin the 2 hours take tylenol, after 2 hours take the motrin again....
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    Yes there is. When mine burst they drain out the...

    Yes there is. When mine burst they drain out the fluid from them and they can remove them from the ovary if they haven't burst. This is what I have had done twice now.
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    I have had two emergency surgeries for cysts....

    I have had two emergency surgeries for cysts. They hurt and I am shocked and outraged that they are doing nothing for you! Get in there face and demand they do something!
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    Wow I hate to sound like a whiner here but...I...

    Wow I hate to sound like a whiner here but...I thought that seeing the rheumy finally would bring at least some mental relief or something. But no. Nothing feels diff at all. My heart is still...
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    Thanks everyone! I wasn't on anything because my...

    Thanks everyone! I wasn't on anything because my general practitioner did not know what to give me. I have waited 2 months to see this rheumy. I have always been extremely thirsty but never really...
  13. Thread: SSI questions

    by deester
    Replies
    14
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    4,458

    I got a call from them today. I haven't the work...

    I got a call from them today. I haven't the work history to qualify for SSDI but she said our income limits meet the criteria for SSI. She also told me it would be 2 to 4 months before any decision...
  14. Replies
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    Same here. Hot soaks are all that works. Right...

    Same here. Hot soaks are all that works. Right now we only have a shower, no tub and it is killing me! I was going to my mom's for hot soaks but now that it is getting colder going outside defeats...
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    Hi Saysusie. I am so very tired after spending 2...

    Hi Saysusie. I am so very tired after spending 2 hours at the doctors then another hour to get my new scripts. Blah. I posted in Diagnosis about my day. Thank you for checking in on me!
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    Sjogren syndrome

    Well spent 2 full hours with the rheumy this morning. He was very compassionate and a good listener. He understood I was educated and accepted it. I think it made his job easier. It made the visit...
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    When my hair came out in 2004 i wore scarves. I...

    When my hair came out in 2004 i wore scarves. I was told i was very trendy. I have a bunch of them if you want a couple of them....
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    I am really hoping the rheumy will have some sort...

    I am really hoping the rheumy will have some sort of answer for me Tuesday. This little box wakes me up beeping and then I have to call the number and transmit the data. Of course they tell me...
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    Thank you all so much. I am on a cardiac monitor...

    Thank you all so much. I am on a cardiac monitor 24/7 and I have been recording the pounding heartbeat. I guess if they catch something significant the doctor will call me? She did not tell me to...
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    What do I do now?

    I hate being so new here but needing shoulders to cry on so desperately. I don't know what to do. Every bone joint hurts, the TIA left my left pupil smaller than my right. The heart monitor has...
  21. Thread: eye twitching

    by deester
    Replies
    19
    Views
    3,179

    Wow. my left eye lid twitches all the time!...

    Wow. my left eye lid twitches all the time! Drives me insane! I never thought it could be lupus related! I always feel like donkey on shrek and I use that line all the time!
  22. Thread: Teeth?

    by deester
    Replies
    14
    Views
    2,089

    OO thanks for the info Faith, I am going to check...

    OO thanks for the info Faith, I am going to check it out once I get the other issues figured out!
  23. Thread: TIA's?

    by deester
    Replies
    6
    Views
    2,488

    Hello all. I still have a slight headache and my...

    Hello all. I still have a slight headache and my heart goes through periods of hard pumping with a high pulse rate. As a result I am now wearing a lovely heart monitor for the next 30 days. It has...
  24. Thread: TIA's?

    by deester
    Replies
    6
    Views
    2,488

    TIA's?

    Apparently I had a TIA on Friday. The ER doc said this can be common with people who have Lupus but I don't remember reading anything about it. Anyone have any information on this? I am afraid to...
  25. Thread: SSI questions

    by deester
    Replies
    14
    Views
    4,458

    SSI questions

    The doctor has labeled me disabled. I HATE that. We applied for public assistance and were denied medical coverage, isn't that grand? I am require to apply for SSI now and I did this online...
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