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  1. I have a very smart doctor and when I went in...

    I have a very smart doctor and when I went in with tiredness, muslce/joint pain, hairloss, headaches, etc, it was one of the first things he tested.
  2. I am not surprised at all. I am a big proponent...

    I am not surprised at all. I am a big proponent of vitamin d and there are many many studies that draw direct correlations between vitamin d deficiency and auto immune disease.

    I had very low...
  3. Thread: Foot pain

    by CanadianMama
    Replies
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    3,952

    Thanks so much for sharing, everyone. I know...

    Thanks so much for sharing, everyone.

    I know this must sound morbid, but it is comforting to know that i am not the only person who feels like I do.

    I believe I am in a flare. It is the...
  4. Thread: Foot pain

    by CanadianMama
    Replies
    11
    Views
    3,952

    The foot pain I have is worst just after...

    The foot pain I have is worst just after resting... or upon getting up in the morning, but is not the same pain as plantar fasciitis.

    I have just started rubbing arnica gel into them and it seems...
  5. Thread: Foot pain

    by CanadianMama
    Replies
    11
    Views
    3,952

    Foot pain

    The last week or so my foot pain is back.

    My feet, heels and ankles hurt nearly all the time.

    Does anyone else have this awful foot pain??
  6. Chest pain and difficulty breathing was one of...

    Chest pain and difficulty breathing was one of the things that got me in fr testing...turns out I had pericarditis, another common lupus thing.

    Get it checked out asap...it was awful.
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    The maximum therapeutic daily dose is 50000iu do...

    The maximum therapeutic daily dose is 50000iu do NOT do this yourself, only under the supervision of a doctor). Many people have a lot of side effects at this high of a dose and many of their...
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    I had muscle weakness for years before they even...

    I had muscle weakness for years before they even suspected lupus...and in muscles I use all the time for work.

    I wake with numb fingers nearly every night...but have never had numbness out of the...
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    Fever and rash can be lupus. I also have many...

    Fever and rash can be lupus. I also have many symptoms of FMS, but had a slight positive ANA, high sed rate, high c-reactive protein... it is hard to tell.

    Hang in there.
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    There is a demonstrated link between vitamin...

    There is a demonstrated link between vitamin d/mineral deficiency and autoimmune disease. If you haven't had your vitamin d levels checked, I would do that next. There is a very high chance that...
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    From a massage therapy perspective, what you...

    From a massage therapy perspective, what you describe sounds a lot like Thoracic Outlet Syndrome, which is unrelated to Lupus.

    This disorder typically affects large-breasted women, or people who...
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    One thing we've just gotten that was only...

    One thing we've just gotten that was only available by prescription was Naproxen (Aleve). It has been very helpful to me when I have tough days.

    I think the pharmaceutical industry has more...
  13. Thread: Hair ???

    by CanadianMama
    Replies
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    1,583

    One of the things that got me into the doc for...

    One of the things that got me into the doc for testing was hair loss.

    I am not on any medication for Lupus (although occasionally I take Naprosyn).

    I have no idea if it was coincidental or from...
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    I am surprised that your doctors prescribed such...

    I am surprised that your doctors prescribed such a high dose to begin with.

    Mine prescribed D-Drops, available over the counter. Which contain 1000iu per drop. I am taking 4 drops/day.

    I have...
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    I do not have an official diagnosis, but have a...

    I do not have an official diagnosis, but have a faint rash on my cheeks and nose that is becoming more and more noticable... thankfully I have freckles and it is somewhat camoflaged.

    It is...
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    This is going to sound too simple, but it is not....

    This is going to sound too simple, but it is not.

    I use Arnica Gel. It is a herb that reduces swelling, inflammation and bruising.

    I rub it in every time I feel pain or discomfort. It works....
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    I have been taking naproxen sodium for a couple...

    I have been taking naproxen sodium for a couple of weeks.

    Naproxen is more of an anti-inflammatory than a painkiller.

    Keep taking it... the effect will build.
  18. Hi Stacy, I am new to this forum and to Lupus...

    Hi Stacy, I am new to this forum and to Lupus but I am a registered massage therapist with a Kinesiology background. I would avoid the use of heat on your hands and arms to relieve the...
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    Thanks for the all the kind words. I am...

    Thanks for the all the kind words.

    I am feeling a bit better today... still tired.

    I have been taking naproxen for the joint/muscle pain and it has helped a little.

    Looking forward to...
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    Intro and hello.

    My name is Lisa and I am in the process of a lupus diagnosis. It is taking SO long and I have no idea how long to expect...:(

    I have a positive ANA with a low titre (1/320), my sed rate is 35 and...
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