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Type: Posts; User: Gurkinbabies

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    UGH Doctors

    So I was at my rheumy's for the first time on Monday. I got the dreaded "yes I want to say it's Lupus but I can't be difinitive." I left his office feeling beter but also discouraged. Monday happened...
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    i promise

    I promise it gets better. I'm not on meds yet, i see the rheumy for the first time since my daughter was born today (yay finally). I have sen people on the meds and yes they feel horrible at first...
  3. Mine came in about 4 buisness days but i lived...

    Mine came in about 4 buisness days but i lived like 4 hours from the guys house where he makes them. I would think yours woul get to you within 2 weeks. I hapy to hear people are checking them...
  4. You dotn even need thier names. Paperwork will...

    You dotn even need thier names. Paperwork will tell them who responded to the call and that Paraamedic was way out of his scope of practice "diagnosing" you. He can lose his license.

    Just like...
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    Wow I am overwhelmed by the outpouring of...

    Wow I am overwhelmed by the outpouring of support. Thank you to everyone.

    And in answer to the question about my husband going to the doctor with me... Your right he has never gone. But I can...
  6. More ideas

    I have a rare blood type and have in the past taken several different meds. On EbAY you can find Red dogtags that ill be custom engraved for you. As an EMT i am trined to not only look for a Medical...
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    Sticky: some info I found

    I was reading the post and noticed that they do talk about the lupus affecting the brain but I recently found that type of Lupus I have does just that and it has a name
    CFS Lupus or Cerebral Lupus ...
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    I was told I wouldnt live to see 18. I'm 24 have...

    I was told I wouldnt live to see 18. I'm 24 have been marries for almost 7 years and have 2 beautiful daughters. Life is what you make of it and when people ask me why i took such a leap having...
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    My flareups

    Well I have been in a flare up for about 6 months now after 9 months (well 8 she was preemie) of pregnancy.

    My symptoms have been:
    Severe headache
    Rash on my inner thighs
    unexplained bruises...
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    Actually...

    I know I'm new here but I have both CFS Lupus and antiphospholipid antibodies both diagnosed by a rheumatologist backed up by my OBGYN during pregnancy so from personal experience It is possible to...
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    Frustrated

    I am new here and recently found this site after finding that my family denies the seriousness of my diagnosis. I feel the need to vent to someone who undertsands so here it goes.

    I was diagnosed...
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    Newbie Here

    Hi everyone, My name is Brittany and I am 24 years old. I was diagnosed with Cerebral or CFS Lupus in June of 2007 after a broken leg would not heal. Shortly after the diagnosis I found out I was...
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