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  1. hi... usually a fair amount of snow...

    hi...

    usually a fair amount of snow here...however, usually have to go a bit up north to go snow mobiling...

    thanks for your comments about my son...the aliens will bring the real one back one...
  2. Oluwa...wow nice to hear from you....and how very...

    Oluwa...wow nice to hear from you....and how very thoughtful you are! Great imagery of being outdoors...I live near Chicago so its not too far from the UP! I'll be right up! :)

    Anyway, I agree...
  3. Hi Karen: Nice to hear from you. Its...

    Hi Karen:

    Nice to hear from you. Its Barrett's is what they are thinking. I've been on nexium for a long time so not sure what the treatment would be....I don't know anything about this...
  4. hi ss....nice to hear from you...! thanks for...

    hi ss....nice to hear from you...! thanks for your support...i'm fairly nervous about it as time goes on...waiting for the medication...i'm praying i don't get super sick...i am really not good...
  5. hi....thanks much...i'll take all the hugs i can...

    hi....thanks much...i'll take all the hugs i can get! i'll let you know...pharmacy doesn't have all my medication...i'm going to be taking folic acid too so we'll see how that goes.....thanks much...
  6. Hi: Ok - I got the injection stuff today...so...

    Hi:

    Ok - I got the injection stuff today...so stay tuned...sigh, my flipping doctor is annoying me - I'm going to try this but if it doesn't work- I can't believe I'm going to say this but I want...
  7. Replies
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    AB: Glad to hear you are doing better in some...

    AB:

    Glad to hear you are doing better in some ways. I understand there are many challenges along the way and hope things improve in your quality of life. I completely understand being too tired...
  8. Hi ALL! Holy Cow! I have missed you guys -...

    Hi ALL!

    Holy Cow! I have missed you guys - nice to hear from you Jody and Susie - long time no talk.

    Ok, I'm going to 'think' about this injection stuff. It makes sense it it bybass' my...
  9. At a loss..What next? Any ideas..at the end of road.

    Hi.

    Its been a bit since I've been around - sorry. I've gotten out of the hospital recently from my second round of Imuran - both times trying this medication have put me in the hospital -...
  10. Replies
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    2,188

    hi. i hope things will improve for you. i did...

    hi. i hope things will improve for you. i did try working from home myself and it was 'ok'. in the end i went on full disability, no lawyer and everything went really smooth - perhaps i am lucky...
  11. thanks j...

    Hi!

    Thanks...duly noted about the med's and yes your correct about the discussion. I'm going to go back on Imuran and pray.....one of my doc's is calling this expert at Mayo Clinic so maybe they...
  12. oh boy...

    Hi.

    I have really tried to keep my spirits up - but am not doing a good job - ok I guess - no one knows how bad I really feel. Honestly I feel like death - I have so many problems I don't know...
  13. oluwa

    Thanks for your heartfelt reply. I could feel it in your note. I'm sorry you have had to go through so much as I know its not easy going through the things you discussed.

    A long time ago I was...
  14. susie - oh what a day...

    wow - i've had one of those days that everything is just very challenging and though i don't drink - i think i could use one!

    So, Lupus - my doc wants me on Plaquenil - off from Imuran which made...
  15. Treatment and symptoms. What do I do? Need advice please.

    Hi.

    At this point I am feeling very uncomfortable with my Lupus treatment and feel very alone in regards as to what to do. I haven't been having any Lupus treatment over the last few weeks...
  16. therapy....

    hi mary...wow. great information. we are a motly mix here that is for sure. my kidneys aren't as bad as yours at the moment..which i'm thankful for..I would have to check with medicare about the...
  17. ter...

    hey...

    good to hear from you...you can pm anytime i'll send you my email...i'd post it here but think that might be a problem..anyone in this thread for that matter can do the same - no problem to...
  18. thank you....

    hi...

    t - i live near chicago....i've looked up the support group and will call them...there's a few around here...not overly close and not being able to drive makes it a bit of a challenge, but...
  19. train wreck.in need of all the help i can get to b honest

    hi.

    holy cow...i have been in the hospital...i wish i could flag this post everywhere because i feel in such need of help and so alone and so uneducated as what in the heck is going on...

    i now...
  20. thank you...yes it helps

    hi...

    sorry i lost internet connection..and pc for a good day and a half...likely to down again tomorrow due to recent switch..SIGH...I hate being without internet as i don't like tv too much...
    ...
  21. Imuran - help. questions. problems. what 2 do.

    Hi everyone:

    Sigh - I've been on Imuran all week and have the following questions or comments. LOL - Questions first:

    1. What time of day to take this medication?
    I was taking...
  22. imuran....

    Hi..

    Wow - what a note. I'm running for the hills as we speak! Yeah I carry around my own bag, but I see you have yours as well. That is alot of medication. I've heard of folks taking many of...
  23. imuran..kids..a bit nervous

    Hi. Thanks for such a nice note! I am so sorry its taken so long for me to get back.

    On Friday the doc put me on 60mg of prednisone a day - which is good I guess. Its brought my heart rate...
  24. brian mary missy = thank you....

    Hi.

    I go to the doc tomorrow so I think I will find out a good amount of information - other than the stuff I can't because I have to wait for test results. Jeez - can I just say that it takes a...
  25. prednisone...mary

    Hi.

    Thanks for such a well thought out reply with sincerity and honesty. I really appreciated it and have spent time re-reading it to digest it.

    Most of my doctor's are pretty understanding...
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