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Type: Posts; User: derlinda

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    thanks hat lady, thats what i have been doing and...

    thanks hat lady, thats what i have been doing and it's working out ok...
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    hi silverlioness, sounds like you are not...

    hi silverlioness,

    sounds like you are not getting the support you need, i know how that feels. i have been using web sites like these for help and it has done me a world of good. i have gotten...
  3. Thread: new

    by derlinda
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    hello, i get a b12 shot every week, i think it...

    hello, i get a b12 shot every week, i think it really helps in the long run.

    have a great day,
    melinda
  4. Thread: new

    by derlinda
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    power to the guppys! :lol: i'm in much less...

    power to the guppys! :lol:
    i'm in much less pain. now i'm fighting a bad case of the all day sleepys.

    be well!!

    mleinda
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    hi kait, i'm 35. must be hard to be home so...

    hi kait,
    i'm 35. must be hard to be home so much, but it does sound like you are making the most of it. keep reaching out to find other kids who live with illness. there are alot other kids out...
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    hello, i found much help and comfort from a...

    hello,

    i found much help and comfort from a famlie friend of mine. she was told she had lupus when she wasin her 20's, she is 76 now and doing good.
    there are alot of things out there to scare...
  7. Thread: new

    by derlinda
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    hi sandfeet, so glad that you posted. so...

    hi sandfeet,

    so glad that you posted. so sorry your not feeling well, but if your like alot of us this will come and go. what i have learned is that i have to really keep on the doc's to get...
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    need sun experiences!

    hello, sorry about my spelling :oops:
    i know we all have diffrent reactions to the sun. i'm just trying right now to see how how sensative i am to the sun. so far dirrect sunlingt seems to make...
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    soooo glad your husband is helping out! thanks...

    soooo glad your husband is helping out! thanks for keeping me updated.
    have a great day,
    melinda
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    hi spacey, what did the naturapath say about...

    hi spacey,

    what did the naturapath say about diet and lupus? did you get a good feeling that they had hope dealing with people like us?

    hope you well,
    melinda
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    thanks good info. thanks for the reminder that...

    thanks good info. thanks for the reminder that i'm not alone.

    i took only half of one of sleep meds last night (doc said it was fine), in hopes that it might help with the low energy during the...
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    i'm glad your getting to the doctor so soon. ...

    i'm glad your getting to the doctor so soon. most of my doc's say diet will not change anything, but thats western doc's for you. all the eastern doc's say much can be helped by proper diet. i...
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    dear coco, (sorry about the spelling :? ) i'm...

    dear coco, (sorry about the spelling :? )

    i'm so sorry you had such a hard time and had the run around with all the doctors. i'm sure you wanted to have fun with your sister and not be stuck, in...
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    wow, good for you! i'm saving my $ to see a...

    wow, good for you! i'm saving my $ to see a naturapath here in boulder.
    i have this secret fantacy that if i totaly change my diet i will be restored to health. i hear alot of people talk about...
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    sorry your in a flare, but i think your right to...

    sorry your in a flare, but i think your right to hold on to the hope that it went away befor and it will go away again.
    i to am in the biggest flare i have ever had since i was told i have lupus....
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    i thought i was the only one who cryed in the...

    i thought i was the only one who cryed in the shower. it's a great place because i can really let go and my house mate won't hear me.
    glad to hear most of us are doing a little better today.
    i...
  17. Thread: Exercise

    by derlinda
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    dear debbie, good for you for trying! i don't...

    dear debbie,
    good for you for trying! i don't think walking is a no no, it just might be a no no for now. when i find i can't do things i used to i just put them on the back shelf (mental...
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    hey tracy we both made it to "tadpole", i guess...

    hey tracy we both made it to "tadpole", i guess thats somthing :lol: !

    my body feels worse but my heart feels a little bit better, think its all that crying...

    take care,
    melinda
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    so glad that you posted. i just spent the last...

    so glad that you posted. i just spent the last hour walking around the house crying. feeling lonly, sick and lost. just wanted you to know that ou are not alone out there. i know one day i will...
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    dear angela, wow it's so good not to be alone...

    dear angela,
    wow it's so good not to be alone with this, thanks! i see my doc next week and i will discuse taking out some of the less importent meds. i would love to feel at least a little like...
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    is it my meds or my lupus? help!

    hi all,
    just wondering if any one else out there is having the same problem as i'm having. i'm on 10 diffrent meds, some are for lupus and some are for depression and anxiety (maybe due to lupus,...
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    dear kait, so happy you are reaching out, good...

    dear kait,
    so happy you are reaching out, good for you! i'm not sure how to help you find kids your age with lupus but i do know if you surf around long enough on the computer you will find some...
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    welcome, good for you for having a list for...

    welcome,

    good for you for having a list for your doc, i always bring in a list and he lets me know what is lupus related and what is not. i could really understand feeling alone, i to have had a...
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    re: hello everyone

    hi debbie,
    so glad your here. i'm on 9 diffrent med's so i know what its like to be lost in all the pills. my doc said it's not going to get rid of all the pain but it will help me get by untill...
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    itchy

    hi spirit,

    thanks for the info. maybe that is what is going on with me, the colorado sun is just starting to really come out i hope it will fade soon.
    how long have you had lupus? i'm 2 years...
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