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  1. Thread: Prendisone

    by Rayhanah
    Replies
    11
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    2,624

    Moon face

    Hey! Im on 60mg of prednisolone now because my lupus flare up so bad and im resting at home. But my face is gradually gonna become huge and when I get back to college later im gonna look different!...
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    Motivation

    You truly have inspired me as you have made it into grad school even with lupus nephritis class III. I have lupus nephritis class II and im in college now but taking a break because it flare up so...
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    Depression?

    Lupus comes with depression? So how do you all deal with it without medications? Im not taking any medication now and is depression caused by high doses of steroids? Please tell me! Thank you!
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    Thank you!

    Thank you Lori! You really gave me the motivation to fight my disease! My dad told me to eat 40mg now instead of 60mg. Whatever you say is true. I experience all that you experience. Cannot sleep at...
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    You can do it!

    Lucky you! Haha! You take only 7mg of prednisolone. Im taking 60mg now and woah! feel disoriented like crazy. So headache and light-headed. Night time cannot sleep like ghost. Sighs.
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    Like disoriented

    I very disoriented now. Sighs. I got 5 tests next week. Will this feeling (light-headedness) go away? I hope it does. I want to study and find a cure for lupus. Currently in college now. Panadols...
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    Mamimo!

    Sorry I feel very disoriented now cause I eat like 60mg of steroids as Im having the worst flare up in 3 years and I asked the doctor for mc from school for a week. Now I start having headaches and...
  8. Replies
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    2,991

    Very high dose of prednisolone

    Im having the worst flare in 3 years and on 60mg of prednisolone. At night, I can't sleep and have headaches and migraines during the day and feel very disoriented. Is it because of the steroids?...
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    Thank you

    Thank you oluwa for the research. Anyway, I have considered not fasting before because of my disease but I was like,"If I can bear with it, why not?" So I just continue fasting even after I was...
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    Exam Tips for a Lupus student

    Hello people out there! Haha! I have been in this forum since last year but I was not active at the beginning of this year because of some stuff that has been happening such as moving house and etc....
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    I experience the same too!

    Hey living in my Day dream! Well, I have the same problem too. I was diagnosed with lupus when I was 13 and at that time I was in secondary school. I am 16 now and in my final year of my secondary...
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    Thanks

    Thank you for your encouragement and support. Yep, there is a counsellor in my school and I am having an appointment with her next Tuesday to talk about stuff and yeah I think I get the sleep that I...
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    Oh ya!

    Oh ya! Do you guys know that before I had lupus, I was sooooo thin that when I breathe in, my ribcage can be seen? I had a really wide forehead, and small cheeks, but after having lupus, my face...
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    Support

    Thanks everyone for the support. So that means that the face puffiness will slooooowly go away if my prednisolone dosage is small? And my prednisolone dosage have to be small for a loooooong time?...
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    First day at school and so tired!

    Well, my first day at school was ok, I guess. It ended at 3.15, and then I went back home straight from school. But, half the time in school, I was so tired and I wanted to doze off! I feel so bad...
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    Agree

    Thanks hatlady, for agreeing with me. Haha. So people out there, just get the real deal!
  17. Thread: I have wolfs!

    by Rayhanah
    Replies
    10
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    2,107

    Idea

    Thank you saysusie for the idea. Well, it's not that I don't want to tell them, but my parents don't want to, so there's nothing that I can do about it. Haha.
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    I'm scared.

    I am so scared about the hair loss thing. I do not want to lose my hair. I thought that lupus will be active when you are around my age (16 to 21), and that it will slow down when you are an adult....
  19. Thread: I have wolfs!

    by Rayhanah
    Replies
    10
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    2,107

    Thanks for the info!

    Thank You so much everyone for the info. Am I glad that the steroids that I'm taking does not cause sexual perversion. Yes, I do take Prednisolone. Well, it's not that I don't want to ask my doctor...
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    Thanks!

    Hey, thanks everyone for the encouragement and support! I really need those, since an important exam is coming up for me this year that will detemine which college I go to.

    Anyway, I have been to...
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    Unsure

    Well, thanks for the link for the snopes webbie. It really explains the situation. But, anyway I will just stay clear from those things that contains it, just to be on the safe side.

    Anyway, this...
  22. Thread: I have wolfs!

    by Rayhanah
    Replies
    10
    Views
    2,107

    Thank You So Much!

    Thank You So Much for all your support! Honestly, I feel so relieved because when I am here, people actually know what I'm talking about. They know what lupus is, what mmf is, how the disease is...
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    Teenager with lupus

    I just have a question here. Do you think that teenagers who have lupus can have successful careers and great jobs when they become an adult? It's just that I really want to make my parents proud and...
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    Burning question

    I have been diagnosed with lupus since I was 13 and it has been two years now that I had been taking prednisolone.
    I really, really want to know, if my face puffiness will reduce and if I will lose...
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    A bit shocking

    Hey
    I recently came across this email and I was quite shocked. Please read it and give your comments. Thank You!



    ASPARTAME - THE SILENT KILLER

    For those who take
    Ricola & Fisherman ,...
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